Oh, LeeLee, I am so glad I found this TR. You are doing a fantastic job, but I don't know how you EVER have time to post. Your life is like a three ring circus some days, isn't it? I'm kind of glad I found it after some of the cliffhangers were answered though!
My DGD6 has migraines also, and it is so tough to deal with that alone, much less all the other issues.
I'm so glad you took him off the topomax. DGD lost a year and a half of learning on that - it totally dulled her mind. She is on depakote and a beta blocker now, and doing much better. The triptans really work well for her as rescue meds also. If you don't do well with the new pediatric neurologist consider taking him to Dallas. One of the nation's foremost pediatric migraine specialists is there, and that is DGD's doctor. He is terrific.
With migraines there is so much trial and error, and with his other conditions it makes it even tougher to figure out, I'm sure. Bless you all. You are now all on my prayer list.
BTW, Braeton's ears look like my DH's - his mother tried to fix them when he was a baby by taping them to his head!
No luck, needless to say! I'm glad the surgery was successful, and I realize he had other medical issues with his. Anyway, thanks for sharing it all with us, and I look forward to keeping up with the TR (and your LIFE!) now that I have found it. PM me if you have any questions about the migraine meds or the doctor.
Greetings to Braeton and Tyler: