Rolling thru the WORLD in a wheelchair on a WISH trip! 8/12 NEW UPDATE*CR CAPTIVES!!

[Disneymommom]

O.k. I was wondering about the response to NO Tears Now??? I was thinking who posted that??? And then I saw Dmommoms response with my post in quotes and I reread the bottom. OH I said that!!! I was actually meaning the boys had no tears now, but hey If ya'll are crying happy tears that's great. Goodness know I cried a ton of them on WendyGraces!!!!
You know the funny thing is at the time I didn't feel too stressed until about that 10th trip to the BR!!! I was just feeling HUNGRY!!! Of course the funny thing is I usually don't eat breakfast unless it's at night or I've been up a few hours!!!
Anyway reading back on our trip and talking with my husband about it. I've said whew that's enough to make you feel stressed!!! And then was like wait it's us we're talking about!!!! I guess when you live this kind of life you just get used to it!!
But you know what I wouldn't trade a single moment of it!! Now of course I would trade the sickness and pain for both Shannon and Braeton, but if it meant not having them No I wouldn't trade it. I believe that God doesn't put more on you than you can bear and that HE helps you bear it! Now have there been times when I felt like it was almost too much?? LIKE DUH!!! YEP!! In fact I've been know to tell God that I knew he wouldn't put more on me than I could bear and He must know how much I could bear, but would he tell whoever kept putting that extra stuff in my load!!! And Hey God one more straw on me and I'm gonna topple!! And you know sometimes I have toppled, but I've always had the strength to get back up. I know I keep those angels working overtime!!
Anyway back to the stress feeling. Last year I was having some health problems and I only had a few months and I knew I wouldn't be able to have Ins any longer so I was trying to get everything taken care of while I could Anyway I was in my GPs office and while setting me up w/a specialist for some other probs she's asking me different questions and Headaches came up. At that time I was suffering from headaches quite a bit. In fact I had a major one right then. anyway they had all the symptoms of migraines and what they were were..............

Tension Headaches!! I thought she was Crazy!!! Why would I have tension Headaches??????????????? Now this was back when Braeton had suffered a major setback. Dhs health was rapidly declining and they told us maybe 2 monts to live if he didn't get the transplant and to top it all off we had only been back together for I think 5 or 6 months. Back to living together and all. We had been seperated for over 3 years. I couldn't fathom why I would have tension!!!!??? She said roll your neck. And then she had me feel the tendons and muscles @ my neck and shoulders. Tight??? I just thought that was good muscles!!!:

I come from a family that has always had GREAT faith in God and believes in being there for each other and we all have a warped sense of humor and have been taught to LAUGH!!! I think laughter truly is the Best medicine and there are times when Nothing is funny that day So you know what we do. After our night time story and prayers and the lights are turned out. I sit on Tyler and Braetons bed and just start HA HA HA HA HAHAHAHAHAHAHAHHA and pretty soon we are all HAHAHAHAHAHAing and then it gets funny and it's even funnier cause we don't know whats funny!!!!!!!!!!!!! But we feel better anyway!!!!!!
So on a final note (for right now anyway!! ) Thank you all for sticking with me and being here!! Writing this TR is really helping me right now and when I see all the responses I just feel like I'm getting a real big
Oh yeah Tyler just has a major sinus infection, AND RINGWORM!!! How he got that I have NO clue. It's on his chest which is always covered except for a bath of course!! Anyway Braeton is feeling much better tonight. So much better that he's awake and wanting to put icons in. He likes the pictures!! So this is from Braeton........

goodvibes

You have a wonderful outlook on life and a wonderful attitude. You are truly an inspiration to everyone!!!! I love how you just sit there hahahahhaing and after a little bit you are all laughing and feeling better. What a wonderful idea.

Hey Breaton! Those are for you Buddy. I "chat" online with my DGS and we send icons and he types a bunch of letters and I type a bunch back. That is how we chat, so that was for your Breaton!

 

[kindakrazy2]

those are for Braeton from me!

 

[LeeLee2U]

Ya'll are so sweet!! I'm up with Braeton AGAIN!! (He was hungry!!) Anyway I decided to pop in abd see what ws going on. I just couldn't write an update earlier after reading the sad news of Alicia and family.
Anyway I got on and realized I hadn't responded to Sharky about her sweet Icons and then saw the others!!!
So I had to get Braeton on my lap.
"Braeton, remember Trents Mommie? The one that sent you all the smilies?"
"Yea! That was sweet and nice!"
"Well, now Trents Grandma has sent you some."
"Let's See!!!!
"Wow!!! I wish I could send some back to them, They r nice!!"
You can sweetie."
"Oh look here's some more!"
"Just for me?"
"Yea Baby just for you."
Who's those from?
"Her name is KindaKrazy"
OOOHH She's Fun!!!! I like to be crazy!!!?
Sarah He likes you for your DIS name!!!!!

You know you just got to love this kid!!!!


So her's from Braeton to you 3!!!
br

 

[DisneyJo]

Aww that's so sweet, Braeton here's some from me too.

​

 

[disneyfanforlife]

More smiles for Braeton.

 

[LeeLee2U]

HEy You guys!!! JO and Disneyfanforlife Thank you!!! Braeton will be excited!!! At this moment he is asleep! Thank you LORD!!! And that is very sincerly! The more he rests right now, the quicker he will heal!

Amy, I didnt respond earlier, Sorry! I am very glad youare here and Look Down for another post draweth nigh!!!!!

 

[LeeLee2U]

The Boys are all smiles after meeting the Pilots and are wearing their Wings! We are rolling thru the airport when on of our flight attendants comes right by us. Now at this point we are trying to find out where to go. The directions we recieved from one person were a little confusing which may have been from the heavily accented Englis punctuated with the heartily chewing of a mouthfull of gum!
Anyway she smiles and greets us again and I ask her where to go to get to DME. She says follow me and leads us to the right shuttle. Off we go! Braetons head is a bit droopy and I can tell something is just not right. I'm suspecting a headache. Please Not a Migraine! (We need a praying emotican or at least one with hands clasped and head held high, even a begging one would work for me!!!) But he's smart enough to know that would make him miss stuff, so he keeps saying, No Mom I'm fine. But that precious smile is not really there and when Braeton is not smiling he's not feeling well.
Anyway we get off the Shuttle and I see some people in Disney shirts, FOLLOW THEM!!! Alas they are too quick for us as Tylers eyes are big as Saucers and he keeps stopping every 2 feet to turn around and stare!!!
We finally get to the right spot and we
FOLLOW THE RED CARPETED PATH
< FOLLOW THE RED CARPETED PATH,
you get the idea!!!
AND
THEN WE SEE THE Disney CMs
WITH the Mickey Hands!!!!

HONEY WE"RE HOOOME!!!!!!!

Instantly tiredness washed away from my poor sleep ridden body. When you get infront of that section it's no longer the airport, but part of Disney World. Even standing in the very long line everyone seemed to be alittle animated. So Shannon stays with the kids while I go through the line and give our luggage tags. Oh great, Do we have 6 or 7 pieces???? We have 7 claim tickets, but I can only remember 6 checked pieces. Is one maybe the Wheelchair???
If I have an extra piece it looks like that! I think?????????????
Oh Well we'll see when our luggage gets there, if I have everything or not. So I go to Shannon where he is talking to this tall athletic, spicey as Rentayenta would put it young man. Turns out that he was ging to The World of Sports for some kind of Soccer thing. He was an international Soccer player from.........................
??? I can't remember!
Anyway we get in the line for our bus which was already pretty crowded. and the Driver Helps me with the chair, I pick up Braeton and He says NOw Sit up right behind me, I'll get ya'lls chair off first. We climb on and NO SEATS till about halfway back. Poor Braetona nd People his legs were bumping into the seats. If anyone reads this that was on that Bus. I apologize if we hit you! I was trying to carry him and a couple of our things and by then His Body was a Like HmmmHow do I describe this????????????????

Like carrying a sack full of rocks as far as the Heaviness, but withthe consistency of Jello!! He was slithering Everywhere!! Poor Baby!!

Now when We got on, In the big seat behind the driver was 1 child, and across waas the Dad and another child
Behind was the Mom and then 2 more people and then empty seats and the crowded until we came to the nly 2 rows together that were empty. Yes Yes I should have sat on the 1st empty row, But the parents of the child inthe seat with the Handicappe sticker could've had her/him move, But you know that really didn't bother me. I was on the Way to Disney World!!!!
At this point I think I was more excited about No Bills! No Cleaning (My house anyway!! No cooking, No Dr appointments, No Nothing we didn't just want to do!!!!!!!
And the Bus starts up and after @ 10 min the Disney satellite hasn't kicked inyet and after Mooom are we there? Mom are we there?? Mom are we even ALMOST there?????? I give in and let Tyler put his headphones on!

Me thinks the man is a little tired!!

[SIZE]

 

[LeeLee2U]

Uh Oh!! Wrong Pics in the above Post!!! Those are from the plane!! If you can see past the glare you can tell Tyler is having a rough time with this flight!!!
I can't find the DME pics. If I do I'll Post it if they are postworthy!!!!!!!!!!

 

[Iluvmickeymouse!]

LeeLee you are doing an awesome job with your trip report!!!!!!!! I'm thinking I will try and write one when we get back, I don't know if I can do as well as you guys are doing!!

Here are some smilies for Braeton from my DD.

 

[LeeLee2U]

Rolling Rolling Rolling......
And It starts
Raining
Again
Oh Well! It's Fl in Hurricane season No Less, What do I expect???
Somehow the rain is just not a big deal. That's waht we bought them ponchos for right???
Umm Honey Do you know what I did with the ponchos???? They are int he checked luggage. O.k.!!!

Oh Well a little rain won't hurt us
We pull up first to the BEACH CLUB!!!!!!!!
It's Gorgeous and I didn't take any pictures. My hands were alittle occupied and I didn't think about it!
A very nice CM meets us coming off the Bus and helps us into the Lobby where we go to the desk. There a VERY nice CM who was from Russia I think, helps us. She gives us our Keys to the World, Explains the DDP to me (whick I already understood thanks to the DIS ) and gives us 1st visit buttons, stickers, Books and really makes us feel like we are special. In giving the stickers and books to the kids she had some of the other CMs come and meet Braeton and Tyler. They made a BIG deal about it being our 1st Visist and then they noticed the WISH buttons, more CMs gather around. We are made to feel like Royalty. After gathering our stuff, by then the boys are munching on apples that are always out by the front desk we head for the elevator. We get off take a left and another left got into another sitting area, which was beutifull and take another left and find our room #4719
We walk in and see this

Our room was really nice and our view was pretty good!!
Tyler ... We have a balcony Dad!!!!

More pics of our Room coming up and What????
Who Is On the Phone???
And Is that someone knocking on our Door???????????
Uh Oh!!!!!!!!!!!!!!!!!!

 

[kindakrazy2]

I am glad Braeton likes my Krazy name! I like it too, it suits me!

Great update! And the cliffhangers.....argg....you are really good at them!

 

[LeeLee2U]

a long shot

The vanity

close up of the vanity and our 2nd towel animal!!!

the cute Mickey lamp on the desk

view from the balconey

These aren't the best pics but you get the idea
And now a clue for my next post
Who was at the door????
What's in Braeton's hand????

 

[Bill_Lin]

I decided to check out where you stayed, after reading that you could see the boardwalk. We took the boat ride from Epcot to MGM and stopped at your hotel. I wondered if it was the one with the "ship on the beach" so I did some research. COOL!

Here is the boat we rode as it comes to your hotel:

It looks like a really great place to stay, and SO close to Epcot and MGM.

On the plane, it sounds like you had even more trouble than we did. When the airline cancelled Jason's ticket, instead of putting us in 2 groups of 2 for seats, they put us in 1 group of 3 and left 1 person alone. We tried to get them to make it two 2s, but had not luck. Then for some reason they stuck the extra person on the window seat instead of on the aisle seat where we could have been 4 in a row. Lin could not get the man on the aisle seat to trade with her. I considered trying to offer him money to switch.

Your pics are a tad big. Have you resized them in photobucket?

 

[dismom9761]

Great updates!

I couldn't do an update last night either.Too sad.

I hope Braeton doesn't feel too badly.

Who is at the door?!

 

[Disneymommom]

Hi Braeton! Here's some little smileys for that nice big smile you always have.

 

[Disneymommom]

Great update Lee Lee. I really enjoy reading it and I love the pics. You had a beautiful room and a great view. I'm so glad that you all got to stay there! I can't wait to find out what is in Breaton's hand and who was at the door!!! Hurry, don't leave us hanging too long!

 

[Trentmom]

Ya'll are so sweet!! I'm up with Braeton AGAIN!! (He was hungry!!) Anyway I decided to pop in abd see what ws going on. I just couldn't write an update earlier after reading the sad news of Alicia and family.
Anyway I got on and realized I hadn't responded to Sharky about her sweet Icons and then saw the others!!!
So I had to get Braeton on my lap.
"Braeton, remember Trents Mommie? The one that sent you all the smilies?"
"Yea! That was sweet and nice!"
"Well, now Trents Grandma has sent you some."
"Let's See!!!!
"Wow!!! I wish I could send some back to them, They r nice!!"
You can sweetie."
"Oh look here's some more!"
"Just for me?"
"Yea Baby just for you."
Who's those from?
"Her name is KindaKrazy"
OOOHH She's Fun!!!! I like to be crazy!!!?
Sarah He likes you for your DIS name!!!!!

You know you just got to love this kid!!!!


So her's from Braeton to you 3!!!
br

You are very welcome Braeton.

Thank you for your smilies..

I love them!!!!

Your Friend from NJ

 

[Trentmom]

Great update LeeLee!!!

Love the pics. Beach Club looks great and I love your view.

Hmmm....what is in Braeton's hand?? I can tell in his one hand is an apple???

Looks like a ticket or card in the other?? is it a card for the arcade???

On the phone??? Hmmmmmmmmm......is it the front desk saying your luggage has arrived??

Could it be their is a package downstairs for you???

At the door.....Could it be someone from Make the Wish Foundaiton???


Your cliffhangers are great

 

[5dwarves]

Hurray! I'm back from my trip to TX to see the folks and a little blue about it all, so I was so glad to see so much activity on the DIS. I can't wait to catch up on everyone's TR's...three going right now....awesome! Leah, I am so glad you jumped in and did this....I'll post more when I catch up to it all!

~Elisa

 

[Momof2wCF]

Out the door we go.

OH NO!!!

We go back in the room where I grab Braetons stuffed dog!

Out the door we go again!

AAAAGHHH!

In we go and I grab the forgotten meds that I had taken out of the refridgerator and placed on top of it!

O.k. look around do we have everything? Check under the beds! O.k. Let's go!!

Open the door and I proceed to drop everything. Pop goes my purse and boy oh boy do I have a lot in that little ole thing!

Pick it up, out he door down the elevator, back up the elevator, pick up the meds that I had put by the TV when I dropped everything. Out the door we go! Throw th stuff in the van buckle everybody up. Take the stuff I need out of my purse put itin the back pack, seperate everything and Shnnon starts to drive out.
Mooooom I don't have my camara!!!

Bak in the Hotel to the desk, get a key and up the elevator we go. AHHa the camera is inbetween the folds of the bedspread!!!

Back to the van, where Braeton is frantacally kicking the back of the seat. Yep he had to GO!!

So off to the bathroom we go

Yep, this is exactly what WE are going to do, and you still made your flight, so it's all good!!
Poor Braeton, terrible to have a fever at the beginning of his trip!
Okay, back to reading!