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Multiple Sclerosis

Mizzoufan, I am sure that it's not what you wanted to hear but at least you have confirmation and can move ahead with your life and making a plan. I am a planner and I know I feel better knowing what to expect, not sure if your the same. I like what someone said above - you are still you. There are no truer words. Hang in there :-)
 
I was diagnosed in January of 2010. My last flare-up consisted of a "pins and needles" feeling that started in one foot and by the end went from my chest downward. You can get through this. And you will. Find a local support group if that would work for you. Take life moment by moment.

Also see if you can find doctors you are comfortable with. I have a great neurologist and ophthalmologist.

Pixie dust pixiedust:pixiedust: wishes.
 
I had another Neuro apt. He's sending me to Barnes Jewish in St. Louis to an MS specialist for extensive MRI and lab work and for a second opinion, He also seems to think I have Fibromyalgia in addition to MS. I'm a hot mess. He gave me about 50 prescription today as well. Also he getting me a apt for my vision as well.

Prayers are appreciated thanks
 
I had another Neuro apt. He's sending me to Barnes Jewish in St. Louis to an MS specialist for extensive MRI and lab work and for a second opinion, He also seems to think I have Fibromyalgia in addition to MS. I'm a hot mess. He gave me about 50 prescription today as well. Also he getting me a apt for my vision as well.

Prayers are appreciated thanks

Hugs and prayers. That's a lot to deal with. I hope all the meds at least have you starting to feel a little better soon. :grouphug:
 


I had another Neuro apt. He's sending me to Barnes Jewish in St. Louis to an MS specialist for extensive MRI and lab work and for a second opinion, He also seems to think I have Fibromyalgia in addition to MS. I'm a hot mess. He gave me about 50 prescription today as well. Also he getting me a apt for my vision as well.

Prayers are appreciated thanks
Sending out good, healing thoughts to you today. I think getting a second opinion is a great idea.
 


Barnes has some great docs in the MS field. Take your meds!! They will help! When my Dh had his first flare, it messed up his sight too. He had to get a prism that they stuck on his glasses. Without it he could not do anything. Everything was out of focus, which caused vertigo, headaches and so on. Once he had that silly sticker to look through it made things A LOT better! Hang in there!
 
My husband was diagnosed with MS in 2004 when he was 36. He had numbness, severe double vision, loss of balance, etc. It went on for months before he was diagnosed. The good news is he's been taking Avonex -- a weekly injection -- since diagnosis. He's had zero -- NO -- relapses. He has the occasional flare-up -- his vision will get a little blurry or he'll get pins and needles, etc. But it's never been anything like it was in 2004.

I know what it's like in those first few months. It's terrifying. I remember wondering if he'd be able to climb the stairs in our house. Would he be able to walk the dog? Stuff like that just ran through our thoughts all the time. But he's been really, really fortunate. In the past few years, he's done two 10-mile races, he's gone zip-lining, he lifts weights, he swims. In short, he lives a perfectly normal and wonderful life. And every week when I give him his Avonex injection, I'm very thankful for that.

Please let me know if you have questions. Most importantly, know this is a very livable condition. You still be you. MS doesn't need to change that.
 

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