disbility help

what other sort of help can disney give to for adults with Dyspraxia as i can still do want i want just take me longer

Good luck. You cannot use bikes or anything two wheeled and propelled at the parks. You can however pay for a scooter but it is expensive and getting them on and off the busses are difficult. Nyou can use the monorail with a private owned scooter far easier than the busses. As a MD you can request the bed rails prior to check in, as well as other items that will help you acclimate to the room. I would highly recommend staying away from the handicapped rooms. The hearing aided form of such rooms will exacerbate your condition. The wheel chair accessible ones actually have lower toilets and the rails are not placed where they would offer you the help you need. My suggestion is to get a smaller room or if you're on the shorter side find a room that has a drop down bunk bed. It is simply a bed that flips down from under the TV. They are much lower to the ground. One would think that such a large corporation would offer more tothose with disabilities and could afford to not charge do much for necessities for the disabled community.
 
i am try to get some piedro boots from the hospital if not will be them privately to help me with my fleet feet as well as my insoles. what advice will you say about using them at disney in the heat etc i am going to to try the Rehabilitation from uk and use them round the house and send them back if there are no good will then try stability footwear which i will have to get in the usa if hospital uk don't help at all

Hi Adam. I'm not familiar with Piedro boots so I Googled it and I don't believe they are available in the U.S. The people I know who wear orthotics/APOs/AFOs have them custom made, and if necessary may buy shoes a size larger to fit. So I honestly don't know what might be similar here other than a good sturdy athletic shoe. Hopefully someone else may have some suggestions.

But my main suggestion is to really try and get your footwear at home prior to your trip. Get the shoes well enough in advance so you have an opportunity to wear them and "break them in." Brand new shoes at WDW can lead to a lot of blisters and/or sore feet. I recommend you speak with your doctor or physical therapist if you have concerns about what shoes will provide the best support for your needs.

Enjoy your vacation!
 
Good luck. You cannot use bikes or anything two wheeled and propelled at the parks. You can however pay for a scooter but it is expensive and getting them on and off the busses are difficult. Nyou can use the monorail with a private owned scooter far easier than the busses. As a MD you can request the bed rails prior to check in, as well as other items that will help you acclimate to the room. I would highly recommend staying away from the handicapped rooms. The hearing aided form of such rooms will exacerbate your condition. The wheel chair accessible ones actually have lower toilets and the rails are not placed where they would offer you the help you need. My suggestion is to get a smaller room or if you're on the shorter side find a room that has a drop down bunk bed. It is simply a bed that flips down from under the TV. They are much lower to the ground. One would think that such a large corporation would offer more tothose with disabilities and could afford to not charge do much for necessities for the disabled community.

The pull downs are not recommended for anyone over the age of 11.

I don't really know why they'd be considered a disability aid, certainly not a necessity. If bed rails don't do the trick, anyone can bring an air mattress and I believe they still provide rollaway beds.
 
if was to use Piedro boots in disney will there be to hot in the heat etc

I agree the boots (any boots) look like they would be hot for wearing in Florida. But I found an athletic-style (called Trainers in the catalog) that might be comfortable, if they provide the support you need. Maybe paired with a good wicking sock to help keep feet from getting too sweaty.

My family wears good athletic-style footwear when we go to the parks. Like I mentioned, I'm not familiar with this particular brand of footwear and I suspect very few people in the U.S. are. Maybe some of our international posters have experience with them.
 
piedro boots are medical footwear for kids and and adults there have more stiffness then other footwear who need extra support for things like

Rehabilitation Footwear
  • people who need shoes with more support

  • Neuro-physiological conditions such as Cerebral Palsy

  • Varus or valgus instability

  • Painful or pressure sensitive feet

  • Attachment of external bracing such as used in the SMART Walker Orthosis
Stability Footwear
  • Severe Cerebral Palsy (CP) patients.

  • Painful or pressure sensitive feet.

  • Partial or complete paralysis of the malleolus area.

  • Deterioration of the talo-crural joint.

  • Feet with extreme varus or valgus instability.

  • Problems with ligaments in the lower limb area.

  • Limited dorsiflexion.
will they be ok to use in disney all day in the heat
 
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if i do get the piedro boots for disney world what advice will you give me about use them

Adam:

No one here can really advise you on the best way to use those boots.

It's not because we don't want to, but every person is different, just like a snowflake!

Your shoes look very much like the shoes our daughter had to wear when she was younger. (Her shoes were made by Markell, and they were very flat, stiff, and generally similar in appearance to your Piedro Boots)

She had to wear them from her first year until she was 12. To make her as comfortable as possible, we would make sure that her socks fit properly. We learned to lace them up per the instructions from the Children's Hospital where she was fitted. We made sure to never tie them too tightly, or too loosely.

Even so, those shoes did get hot in the summertime.

Luckily, the Hospital had open-toed versions of the shoes for summer, which helped tremendously. They were called "sandals", but they were really just the same shoe with the toe box open.

Here are some of the things we learned about straight-last shoes when our daughter was younger:

1. Properly fitting socks are important. Cotton socks will hold moisture in. Look for socks that help your feet stay cool and dry.
2. Lace and tie the shoes properly. When you put the shoe on, the laces should all be "open" and loose. Tighten the laces from the bottom (closest to the toes) up. Don't tie the laces too tightly or too loosely.
3. While you are getting used to the shoes, sometimes it can help to take a "shoe break" for a short period of time. Take your shoes all the way off, and your socks as well. Wiggle your toes, and gently flex your ankles. If you can, try to massage your feet a bit to help them feel refreshed.
4. Keep a different pair of shoes handy at home or when you travel; with leather shoes you really should not wear the same pair all day, every day. The shoes need a chance to air out completely.
5. Never try to break in a new pair of shoes on a vacation or other trip. I can't stress this enough. You need to break in your new Piedro Boots over the course of at least a few *weeks* of regular wear. Don't try to take them on a trip until they are well broken in.

Remember that at Walt Disney World in Florida that people routinely walk anywhere from 5 to 10 miles per day while visiting the Theme Parks and Disney Springs. That's a LOT of walking!

Adam, you need to practice wearing your new boots well before you visit Disney World. You are the only person in the world who knows how those shoes feel upon your feet, and you are the only person in the world who knows if they will be comfortable enough for the entire trip.
 
i hope you don't mine me ask how much more stiffers did you daughter have them other footwear can pick from Rehabilitation staffers or Stability stiffers
 
i hope you don't mine me ask how much more stiffers did you daughter have them other footwear can pick from Rehabilitation staffers or Stability stiffers

Our daughter had flat feet (like you) but also many other problems with her feet, ankles, legs and hips. When she was born, we were told that she would never walk. We were very fortunate, and found the specialists at the Children's Hospital who helped her, and she learned to walk before she was 4 years old. We had to travel (sometimes as often as every two weeks) over 8 hours by car to get to the Hospital.

Our daughter was only allowed to wear her "Hospital shoes" (as we called them) until she was 12 to make sure that her bones grew as properly as was possible in her case. She underwent multiple procedures for her feet and ankles, and countless hours of physical therapy. We typically had two or three (identical) pairs of shoes, and I would rotate the pairs of shoes every day so that they would wear more evenly.

In addition to her special shoes, she has always had to wear leg braces. The leg braces she wore were made from special plastic that was heated, and then molded on plaster models made of her feet and legs that were in the position that her doctors wanted her to grow in. There was a hinge at the ankles so she could walk more normally, and Velcro straps helped keep them on.

The hard plastic braces meant that her ankles did not have to bend or work as much, and they kept her feet in a certain position.

When she would get dressed, she had to wear long socks, then her braces, and finally her shoes. The braces and the shoes worked together to hold her feet and legs in the proper position.

When she was finally able to wear "regular" shoes, the fitters in the Orthotics & Prostethics department at the Hospital steered us towards shoes like these.

BLA.jpg

(At the time, they were called "skate shoes" in the USA. Not sure what the kids call them now! LOL)

Those shoes had a shorter toe box, so that you could open the shoe more fully by loosening the laces, and pulling the tongue of the shoe back towards the toe box. This allowed her to put her foot (with either her braces that are SFO's or AFO's) easily into the shoe. We would still have to pull out the lining of the shoe to make room for her orthotics, but it worked, and she had a (more reasonably) fashionable shoe.

She would match the print on her orthotics to her shoes.

Several of her friends who had flat feet wore "skate shoes" as an off-the-shelf solution for their flat feet, but their feet were not so bad that they required the intervention of a specialist.

She still wears one AFO brace (right foot) and one SFO brace (left foot) to this day. She is supposed to use a personal mobility device, but refuses to, because she wants to walk for as long as she can. At Disney World, she will sometimes use a personal mobility device just so she can see and do everything she wants to, now that she is an adult.
 
what do you mean by ECV and the problems i have are for Dyspraxia
3) i cant alway say what i want and put it in words but i can more easily on computer when do paper work

Adam, I recently learned about an App (for your smartphone) that can help you have a conversation with another person when you are too stressed to speak words.

It's called Emergency Chat and it is available for both iOS (iPhones) and Android (Samsung) phones.

You can put your own information in there. You might want to put something like:

Hi! I have Dyspraxia. Sometimes I have a hard time talking about things, but I can type them. Will you help me communicate by using this app with me? Thanks!

Then you and the person who is helping you each type back and forth.

The app is free.
 
if i get the boots in usa i will have piedro boots with me any me normally trainers i am planing on use boots 1 day next trainers and so till i am use to using them every day
 
Can you not get the boots you want where you live? If not, I'd talk to your orthopedic doctor or physical therapist about some footwear you can get in your area as I think it'll be easier for you to break them in and get used to them long before you go to Disney World. I wear a custom AFO brace on my right leg (wear this with a traditional athletic shoe) and I am still getting use to it as it is fairly new to me, I think with a rigid shoe like the boots you've mentioned it could take a lot to get used to them and even going one day with them and one day in a different shoe doesn't seem like it'd be enough with the amount of walking you'll do. I highly suggest you discuss your plan with an orthopedic doctor and see if they can offer any other solutions for you.
 
if i get the boots in usa i will have piedro boots with me any me normally trainers i am planing on use boots 1 day next trainers and so till i am use to using them every day

What do you use now? Why are you waiting so long to get the right footwear? You deserve the right footwear now :)
 
I have been try to get then whth the hospital for almost year with no luck so I have decided to by then myself I will try the rehabilitation boots fro. United Kingdom if they don't work I get stability boots but I need hospital prescription in United kindom for stability boots don't need one in the USA and as I am coming to Disney I thought best time to get them as the company all ship in Canada and USA
 
I have been try to get then whth the hospital for almost year with no luck so I have decided to by then myself I will try the rehabilitation boots fro. United Kingdom if they don't work I get stability boots but I need hospital prescription in United kindom for stability boots don't need one in the USA and as I am coming to Disney I thought best time to get them as the company all ship in Canada and USA

Ok, that makes sense to do it that way then. Geesh, your healthcare system stinks though!
 
If you want something like Piedro boots, search for Dr. Martin boots.
Here's a link to them from US Amazon:
http://www.amazon.com/Dr-Martens-Mens-1460-Classic/dp/B004CLZGD4
They are high stiff boots with flat soles.

I am familiar with Piedro boots and similar orthopedic shoes.
Prior to the 1970s, shoes like that were used frequently for medical footwear in the US, sometimes with modifications and sometimes just by lacing them tightly.
Currently, if someone needs ankle or foot support, it is generally treating with AFOs (ankle foot orthosis) or arch support orthotics. Those can be molded for each individual person to put support exactly where the person needs it, so they are much more effective and comfortable than just using tight and stiff boots.
People do sometimes wear Piedro boots, but they have usually been modified to add small orthosis or arch supports or have been modified so that AFOs fit in them better. Piedro boots are not necessary to wear AFOs or supports - more wear shoes similar to the picture mamabunny posted.

This picture shows an example of a child's AFO/ (the higher ones) and foot orthosis. Because they are made individually, they all look quite different.
image.jpeg

I'm not clear why you think Pietro boots will help you. I would suggest you see about getting an evaluation and recommendation. There are very likely choices that would probably work better.
 

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