Cancer

Hello Mr low-key
I am a long time lurker here on the dis, but never joined (very shy). When fed up after a long day, I like to read all the nice chatter amongst the dis folk. Your threads always make me smile and always cheer me up. When I saw this thread title, I felt sick with fear and an awful feeling of dread - then I read the whole thing and I couldn't be happier for you. So I registered just to tell you this. Thanks for the smiles and I am thinking of you.
Roger the Rocket
 
Hello Mr low-key
I am a long time lurker here on the dis, but never joined (very shy). When fed up after a long day, I like to read all the nice chatter amongst the dis folk. Your threads always make me smile and always cheer me up. When I saw this thread title, I felt sick with fear and an awful feeling of dread - then I read the whole thing and I couldn't be happier for you. So I registered just to tell you this. Thanks for the smiles and I am thinking of you.
Roger the Rocket


I am honored, thank you . I wasnt going to post this but its been a long summer with this hanging over me, felt like I had to get it off my chest
 


Glad it is going well.....it is always a worry, for sure.
It is a horrible thing.

We just lost BIL in June......but he started with the cancer when he was 20 and he passed at 64. Wasn't always easy and he had a hard time a lot of the time. Just kept fighting.

:hug: to you. (lost my mom to colon cancer. She was only 59)
 
I had a double mastectomy 2 months ago for breast cancer (cancer in 1 breast, but they took the other one, too, because I won the genetic lottery and have a genetic mutation that greatly increases the odds of developing breast cancer). I totally understand! Sometimes you just have to get it all off your chest. Hang in there, buddy.
 


I was diagnosed with HPV cervical cancer when I was 18. It's 20 years later but I still remember how scared I was every time I went in for a colposcopy after they removed the cancer. And every pap smear after that.
HPV is one of my diagnoses and it scares the crap out of me. I don't know if I have had it for 25 years without knowing or if I contracted it a few months before I was diagnosed, as those are the only options. I feel like it is this ticking time bomb that could go off any time. If you don't mind me asking how often do you have to get a colpo? They did it the first year and I expect they will want to do one this year. I remember just how much it hurt for a few days afterward.
 
I had a double mastectomy 2 months ago for breast cancer (cancer in 1 breast, but they took the other one, too, because I won the genetic lottery and have a genetic mutation that greatly increases the odds of developing breast cancer). I totally understand! Sometimes you just have to get it all off your chest. Hang in there, buddy.
Genetic lottery winner too. I had bilateral mastectomies in 2002 followed by reconstructive surgery in 2003. They will never droop😂.
Seriously, the fear never entirely goes away but it does get easier.
 
The thing is,.............................., all is well......................

CONGRATULATIONS

For myself, I am not a survivor but instead am simply surviving. Having had 1 recurrence and expecting additional with the possibly of metastasizing increasing daily, I am a livivor.

Best to all.
 
HPV is one of my diagnoses and it scares the crap out of me. I don't know if I have had it for 25 years without knowing or if I contracted it a few months before I was diagnosed, as those are the only options. I feel like it is this ticking time bomb that could go off any time. If you don't mind me asking how often do you have to get a colpo? They did it the first year and I expect they will want to do one this year. I remember just how much it hurt for a few days afterward.
I'm so sorry this happened to you. Are you seeing a specialist or a regular gynocologist? I was sent to a specialist because I was pregnant at the time, I feel like he was much more aggressive with the colposcopies than a regular doctor would be. Did you have cancer that was removed? Or did you test positive for the virus? Mine was found with an abnormal pap, at my very first gynecologist appointment. They didn't routinely screen for HPV back then like they do now. My cancer was too big for cryosurgery so my gyn had to cut it out, but I've heard they also do the surgery with a robot now. I had 3 colpos before they removed my cancer, but that's because I was pregnant when they found it, they were watching closely to see how aggressive it was. I believe after they removed the cancer I had a colposcopy one month after to check how I was healing, then one at 3 months, then one 3 months after that. When those were both ok then they moved me to every 6 months. They watched me closely for 2 years, but at some point in there my gyn gave me the ok to try for another baby (I lost the first pregnancy). I remember going in for a colposcopy while I was pregnant the second time and being terrified that they would find something that they needed to biopsy, I was convinced that the biopsies they took during my first pregnancy were what caused me to lose the baby.

I don't know how long I had HPV, like I said, this happened at my very first gynecologist appointment when I was 18 but I had been voluntarily sexually active since I was 12, and had been sexually abused as a child as well. Who knows how long the virus festered in my body before causing the cancer. Like you said, it could have been years or months.

The colposcopy itself doesn't hurt, that's just the microscope thing that they use to look closely at your cervix. I'm sorry to say this but I think the biopsies that they take during the procedure hurt way more than a pap. My doctor told me to start taking ibuprofen before the biopsies and it helped a lot.
 
so glad all is well right now. i am so grateful for you jason! you make all of us smile!! i battle with very bad depression, and when i'm low, i search out your threads. you are a bright spot in a dark world at times. thank you for the laughter and i hope we can repay in a small way with our support and love for you! stay strong!

i am in the middle of testing right now, they found some atypical cells last week that they didn't like, so now they are working me up. i'm a bit nervous, but until something is found i try not to waste my time worrying.
:hug:
 

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