pacrosby
DIS Veteran
- Joined
- Nov 6, 2009
Hi to all!!
I already wrote a verrrry long detailed intro that for some reason would not post and sadly............. I'm too tired to do it again. Still, I wanted to at least get started so here's my very quick version.....
Just heard today from our MAW rep that Matty's wish trip was approved and tentative dates are 12/10-16th at GKTW. We're just waiting on the airline representative to confirm airline reservations. I CANNOT believe this still..........it's all been such a whirlwind (a story for another day). I actually didn't even get the ball rolling until early October so they really came through for us. An amazing organization!
Quick intro.....I'm Pamela, married to Stephen and living in central Massachusetts (originally both of us from the metro Boston area). We have 4children 9, 8, 6 and 4.............the 6 yr old being my Matty, the Wish recipient. Matty is living with Hypoplastic Left Heart Syndrome and has had 3open heart surgeries, one in utero surgery when I was 26 wks pregnant and a multitude of other procedures (r/t to cardiac/GI and endocrine systems). At present he is doing quite well without any outward appearances of ill health or plans for any surgeries/procedures in the near future but, as many of you also experience, we essentially live year to year and hope for the best enjoying every blessed minute we have with our most incredible little boy.
Matty's Wish was specifically to be a "gingerbread man in the Christmas parade at Disney World" but, alas, that was not to be LOL The rep said that the ""trip is the Wish and although other 'extras' are often arranged they cannot be arranged through them and are essentially up to me to figure out how I might get things done. I understand why they can't allow kids to be in the parades (a logistical nightmare....can you imagine???) but I was wondering if it might be possible for him to 'meet' the gingerbread men (they march in the MVMCP) before or after the parade and perhaps take a px of him with them. We are buying him a gingerbread man costume (yes, you read that right LOL) that he wants to wear at the parade....it's the gingerbread boy from Shrek....hilarious! Perhaps that will help influence some nice CM with a sense of humor???? Any thoughts from you veterans? He presented a 'Wish book' to the volunteers that came over on Wednesday and in it we had multiple px of these crazy gingerbread men all arranged in a collage. I'd love to find some way to make some form of that wish a reality
Well that's a real quick (and lousy) intro and my first question. I'm looking forward to participating in this site.
Thanx in advance for all the wonderful advice I am sure to receive.
Pamela
I already wrote a verrrry long detailed intro that for some reason would not post and sadly............. I'm too tired to do it again. Still, I wanted to at least get started so here's my very quick version.....
Just heard today from our MAW rep that Matty's wish trip was approved and tentative dates are 12/10-16th at GKTW. We're just waiting on the airline representative to confirm airline reservations. I CANNOT believe this still..........it's all been such a whirlwind (a story for another day). I actually didn't even get the ball rolling until early October so they really came through for us. An amazing organization!
Quick intro.....I'm Pamela, married to Stephen and living in central Massachusetts (originally both of us from the metro Boston area). We have 4children 9, 8, 6 and 4.............the 6 yr old being my Matty, the Wish recipient. Matty is living with Hypoplastic Left Heart Syndrome and has had 3open heart surgeries, one in utero surgery when I was 26 wks pregnant and a multitude of other procedures (r/t to cardiac/GI and endocrine systems). At present he is doing quite well without any outward appearances of ill health or plans for any surgeries/procedures in the near future but, as many of you also experience, we essentially live year to year and hope for the best enjoying every blessed minute we have with our most incredible little boy.
Matty's Wish was specifically to be a "gingerbread man in the Christmas parade at Disney World" but, alas, that was not to be LOL The rep said that the ""trip is the Wish and although other 'extras' are often arranged they cannot be arranged through them and are essentially up to me to figure out how I might get things done. I understand why they can't allow kids to be in the parades (a logistical nightmare....can you imagine???) but I was wondering if it might be possible for him to 'meet' the gingerbread men (they march in the MVMCP) before or after the parade and perhaps take a px of him with them. We are buying him a gingerbread man costume (yes, you read that right LOL) that he wants to wear at the parade....it's the gingerbread boy from Shrek....hilarious! Perhaps that will help influence some nice CM with a sense of humor???? Any thoughts from you veterans? He presented a 'Wish book' to the volunteers that came over on Wednesday and in it we had multiple px of these crazy gingerbread men all arranged in a collage. I'd love to find some way to make some form of that wish a reality
Well that's a real quick (and lousy) intro and my first question. I'm looking forward to participating in this site.
Thanx in advance for all the wonderful advice I am sure to receive.
Pamela