I have a question... does GKTW ever have any supplies that you can use there?
I would not count on it. They don't have medical staff on duty or anything. There is a Walmart right on the corner very close to Disney that would have some basic supplies.
GKTW does have a basic first aid kit there and did have a thermometer that we used for Lauren (and some Tylenol), but I would not count on much more than the basics at GKTW. The Walmart is a regular size Walmart and I am pretty sure they have a pharmacy. There are also lots of drug stores close by.
I think most parents have had supplies delivered to GKTW by a Medical Company so that you didn't have to travel with everything. I know some things can't be delivered, but anything that can, I would let MAW request for you and it can be delivered to GKTW.
We'll be traveling with a ventilator, so she uses a hundifier at night. Plus all the oxygen, gauze pads, etc... Also, how did MAW schedule your airline tickets?
Our chapter just purchased them for us and let us know our flight numbers, etc.
We're going to have 8 people traveling with us, our family of 4, my parents, and our 2 nurses. And with K's vent, we'll need seating for that.
Also, what about transportation at GKTW? Are there shuttles to/from the parks? Do we NEED a rental car?? With having 8 people, plus all the luggage and equipment, that's pushing it.
They do have shuttles...but from what I have read here, I think most families would prefer renting a car unless they just could not drive. The shuttles are on a very fixed schedule. Some don't leave the resort until late morning and at one point they did not have room for very many wheelchairs. They also only go to specific parks on certain days - so your touring would be very rigid. You are probably going to want flexibility with that many people.
I would ask your MAW chapter to rent you guys a wheelchair accessible van or something similar - hopefully it would have enough room.
What about our nurses? For example, our night nurse obviously won't be with us during the day. Someone in my PTR thread suggested that the nurses can stay off-site in a regular hotel room. But if we do that, then our night nurse wants to go do something during the day, how would she get around?
I think I would rent the nurses a car? Maybe just one between them? So that they can travel during the day - I would not want to be stuck at the hotel.
You can check http://www.mousesavers.com for great deals on rental cars. The best deals come out about 14 days before you will travel. You can always book a rental car, even if you don't end up needing it.
There is also a rental car place right on Disney property...if you decide you need one once you get down there, but I am not sure how good of a deal you could get.
I would think cab fares would add up very quickly and that the best bet would be to rent a car for them.
I'm sure I'll have a lot more questions, but just getting started! LOL! I just don't know what to expect! I don't know what we need to buy, schedule, plan for, etc...