Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Disney Trip Planning Forums > disABILITIES! > disABILITIES Community Board
Find Hotel Specials & DIScounts
 
facebooktwitterpinterestgoogle plusyoutubeDIS UpdatesDIS email updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read





Reply
 
Thread Tools Rate Thread
Old 04-30-2009, 09:41 PM   #1
toocherie

By the way, the foregoing is not LEGAL advice
I'm also easy--it says so on all the bathroom walls
 
toocherie's Avatar
 
Join Date: Jan 2008
Posts: 6,323

Fibromyalgia Thread

Talking with some ladies on another board it appears that there are quite a few of us with fibro--and I know others have posted on this board about it as well. I thought it might be good to share our ups and downs with this disease and new developments.

Welcome!

I was diagnosed about thirty years ago by a rheumatologist who was on the cutting edge of the disease. At that time it was called something else (which I can't recall) but he did the point test and told me I had it. I was re-diagnosed a year or so ago.

I also have OA so the medications I take for that seem to help the Fibro. I need more exercise (I know, I know) and when the weather changes I have a lot of pain.

What type of symptoms do you get and how do you relieve them?
__________________

toocherie is offline   Reply With Quote
Old 04-30-2009, 09:56 PM   #2
Boo Bear
DIS Veteran
 
Boo Bear's Avatar
 
Join Date: Jun 2008
Location: Zionsville, IN
Posts: 1,994

I'm Bridgette, I'm 24 and I was diagnosed a little under 10 years ago when I was 15

I suffer from chronic headaches among many other things.

Another thing that could possible be attributed to fibromyalgia is reoccurring stress fractures in my feet. In my right foot, where it primarily happens, it's in my second metatarsal and gradually happens when I wear shoes without arch support in combination with being on my feet for long stretches of time.

During seasonal changes into the colder months I get severe joint pain in my hips, wrists, spine and ribs.

Right now I'm having a lot of trouble with my chest area radiating through to my back. I keep thinking that I need to take my rescue inhaler but it doesn't work. When I take an anti-inflammatory like ibuprofen it helps a little.

I've taken Lyrica but it made me really agitated so it wasn't worth it. As of right now I just cope. I also break a Loritab in thirds and take that when needed. I usually don't take more than 1/3 a day.

I just began Topamax for the headaches and it's REALLY helping. So the headaches are probably more migraine than Fibromyalgia.

I continue to have chronic severe pain at the base of my skull more than anything else. It is constant and rarely ever subsides. There are days where I struggle with the pain over control of my life. I always get through.
__________________

Boo Bear is offline   Reply With Quote
|
The DIS
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 04-30-2009, 10:25 PM   #3
toocherie

By the way, the foregoing is not LEGAL advice
I'm also easy--it says so on all the bathroom walls
 
toocherie's Avatar
 
Join Date: Jan 2008
Posts: 6,323

Bridgette: I've also had repeated stress fractures in my feet. and now my feet are "morphing" (I don't know what else to call it) and the toes are turning in while the rest stays normal (which makes shoe buying a real pain!)

Other than Mobic, Advil and occasional prescription painkillers I just cope too. Rain is awful. The day or two before I'm really in pain--I am my own barometer. The other weird thing is that when I lived in Utah I always knew when it was going to snow because my nails would all snap off!
__________________

toocherie is offline   Reply With Quote
Old 05-01-2009, 07:17 AM   #4
Boo Bear
DIS Veteran
 
Boo Bear's Avatar
 
Join Date: Jun 2008
Location: Zionsville, IN
Posts: 1,994

Quote:
Originally Posted by toocherie View Post
Bridgette: I've also had repeated stress fractures in my feet. and now my feet are "morphing" (I don't know what else to call it) and the toes are turning in while the rest stays normal (which makes shoe buying a real pain!)

Other than Mobic, Advil and occasional prescription painkillers I just cope too. Rain is awful. The day or two before I'm really in pain--I am my own barometer. The other weird thing is that when I lived in Utah I always knew when it was going to snow because my nails would all snap off!
Yeah I'm my own barometer too. Usually when its about to storm I feel like my eyeballs are going to pop out
__________________

Boo Bear is offline   Reply With Quote
Old 05-02-2009, 04:32 PM   #5
toocherie

By the way, the foregoing is not LEGAL advice
I'm also easy--it says so on all the bathroom walls
 
toocherie's Avatar
 
Join Date: Jan 2008
Posts: 6,323

Omigosh--so humid here--threatening rain--and I ache all over! Of course, that hasn't stopped me from clothes shopping, puppy shopping, tomato plant shopping and cat food/litter shopping. So far the only thing I wasn't successful at was the puppy shopping (but I have an appt. with a breeder at 4 p.m.)

I've found with fibro you just have to push through the pain . . . .
__________________

toocherie is offline   Reply With Quote
Old 05-02-2009, 07:36 PM   #6
arminnie
Tossed the butter kept the gin
I had to save it for "special" occasions (like when no one I knew would see me)
 
arminnie's Avatar
 
Join Date: Aug 2003
Location: Arkansas and New Orleans
Posts: 7,455

Quote:
Originally Posted by Boo Bear View Post
Yeah I'm my own barometer too.
I have a friend who will call and say "How are you doing?" Sometimes when I automatically say "Fine" -she will reply "No you're not - the weather is changing so I know you feel awful like I do."
__________________
Fear the tree!
arminnie is offline   Reply With Quote
Old 05-02-2009, 07:58 PM   #7
Boo Bear
DIS Veteran
 
Boo Bear's Avatar
 
Join Date: Jun 2008
Location: Zionsville, IN
Posts: 1,994

Quote:
Originally Posted by toocherie View Post
Omigosh--so humid here--threatening rain--and I ache all over! Of course, that hasn't stopped me from clothes shopping, puppy shopping, tomato plant shopping and cat food/litter shopping. So far the only thing I wasn't successful at was the puppy shopping (but I have an appt. with a breeder at 4 p.m.)

I've found with fibro you just have to push through the pain . . . .

Keep at it Cheryl, you'll find your corgi! (I read that somewhere, right? or did I dream that?)
__________________

Boo Bear is offline   Reply With Quote
Old 05-03-2009, 09:16 PM   #8
goofy4mykids
Mouseketeer
 
goofy4mykids's Avatar
 
Join Date: Oct 2005
Location: DALLAS, GA
Posts: 155

Hi Im Kim and I was diagnosed about 3 years ago. I take Evail for the pain and that seems to help. I also had Cyber knife Radiation on my brain in 06' so complications from that can make it hard. I push forward and thank the lord I am here.. I have a DS 9 who has Asbergers Syndrome and a beautiful DD 4. I am tired of being tired all the time... I feel bad when I tell the kids or DH I dont feel well enough to do something or that it hurts when the kids want to hang on you... any advice on how to get through the bad days without feeling like you are letting your love ones down?
TIA-I am glad you started this thread!!
__________________
goofy4mykids is offline   Reply With Quote
Old 05-03-2009, 09:26 PM   #9
Boo Bear
DIS Veteran
 
Boo Bear's Avatar
 
Join Date: Jun 2008
Location: Zionsville, IN
Posts: 1,994

Quote:
Originally Posted by goofy4mykids View Post
Hi Im Kim and I was diagnosed about 3 years ago. I take Evail for the pain and that seems to help. I also had Cyber knife Radiation on my brain in 06' so complications from that can make it hard. I push forward and thank the lord I am here.. I have a DS 9 who has Asbergers Syndrome and a beautiful DD 4. I am tired of being tired all the time... I feel bad when I tell the kids or DH I dont feel well enough to do something or that it hurts when the kids want to hang on you... any advice on how to get through the bad days without feeling like you are letting your love ones down?
TIA-I am glad you started this thread!!
Nice to meet you Kim. I'm sorry that I have no advice for you about not letting your loved ones down, as I'm still trying to figure that one out for myself. I've never heard of Evail... what is it like? Any side effects?... Duh! What doesn't have side effects?! *sigh* It's been a tension headache filled headache for me today and yesterday. It hurts badly behind my ears today especially. to everybody. Keep staying strong!
__________________

Boo Bear is offline   Reply With Quote
Old 05-03-2009, 10:24 PM   #10
toocherie

By the way, the foregoing is not LEGAL advice
I'm also easy--it says so on all the bathroom walls
 
toocherie's Avatar
 
Join Date: Jan 2008
Posts: 6,323

Quote:
Originally Posted by goofy4mykids View Post
Hi Im Kim and I was diagnosed about 3 years ago. I take Evail for the pain and that seems to help. I also had Cyber knife Radiation on my brain in 06' so complications from that can make it hard. I push forward and thank the lord I am here.. I have a DS 9 who has Asbergers Syndrome and a beautiful DD 4. I am tired of being tired all the time... I feel bad when I tell the kids or DH I dont feel well enough to do something or that it hurts when the kids want to hang on you... any advice on how to get through the bad days without feeling like you are letting your love ones down?
TIA-I am glad you started this thread!!
Hi Kim--welcome to the thread. Could it be Elavil that you are taking? I know that Elavil is a commonly prescribed drug for fibro--it has been used for many years. I guess when it gets bad for me I try to be happy with the things that I CAN do--and I'm thankful for that. I'm sure your family understands and that they would rather have you not in pain.
__________________

toocherie is offline   Reply With Quote
Old 05-03-2009, 10:24 PM   #11
toocherie

By the way, the foregoing is not LEGAL advice
I'm also easy--it says so on all the bathroom walls
 
toocherie's Avatar
 
Join Date: Jan 2008
Posts: 6,323

Quote:
Originally Posted by arminnie View Post
I have a friend who will call and say "How are you doing?" Sometimes when I automatically say "Fine" -she will reply "No you're not - the weather is changing so I know you feel awful like I do."
Yeah--it's really weird--especially when its going to rain. Just ache all over.
__________________

toocherie is offline   Reply With Quote
Old 05-04-2009, 05:11 AM   #12
bookwormde
Heading out now, another adventure
Have a good time, WDW is a magical place
 
bookwormde's Avatar
 
Join Date: Mar 2008
Posts: 5,557

I know this is not a practical solution for most people but a best friend and business partner actually moved to Florida (west coast island) and it made all the difference in his quality of life.

bookwormde
__________________
bookwormde is offline   Reply With Quote
Old 05-04-2009, 08:43 AM   #13
Momelie
Mouseketeer
 
Momelie's Avatar
 
Join Date: Apr 2004
Location: Tampa
Posts: 488

ROFL!!! I live on the west coast of FL, and while I really do better here than I do at our other place in TN, remember that FL has the rainy season in the summer - every single day!!!!! And yes, the fibro is an absolutely accurate barometer, I can always tell the minute it starts to fall!
Momelie is offline   Reply With Quote
Old 05-04-2009, 09:03 AM   #14
goofy4mykids
Mouseketeer
 
goofy4mykids's Avatar
 
Join Date: Oct 2005
Location: DALLAS, GA
Posts: 155

ooops! Sorry It is Elavil that I am taking! We moved to GA a year ago for the warmer weather... I love it.
__________________
goofy4mykids is offline   Reply With Quote
Old 05-04-2009, 07:06 PM   #15
stampin_fool
Mouseketeer
 
Join Date: Sep 2006
Posts: 242

HI Everyone,

I was diagnosed about a year ago and have been on Cymbalta for about 5 months with no relief in my symptoms. I am going to the doctor tomorrow to hopefully get her to give me something else to try so I am glad that I ran across this thread. I also take hydrocodone for the pain and that doesn't really help at all either. Like some of you said, I am tired of being tired and I am tired of being in pain to the point of tears some days. For those of you on the Elavil, what kind of side effect have you seen and has it helped you at all for the pain? We also live in GA but this winter has been so cold I don't think it has helped at all. Thanks.

Ronda
stampin_fool is offline   Reply With Quote
Reply



Thread Tools
Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

Similar Threads
thread Thread Starter Forum Replies Last Post
Survivor-Tocantins***Winner is named in thread*** 4greatboys Community Board 489 05-22-2009 06:32 PM
Swine Flu - General Discussion and how it affects Disney maroo Theme Parks Attractions and Strategies 1952 05-19-2009 08:22 AM
Girls Only Trip ~ Summer Exchange thread (Complete! Thanks ladies!) mommaU4 Disneyland Community Board 664 05-14-2009 06:02 PM
The What's For Dinner Thread - Feb '09(recipe index in OP) TigerKat Community Board 3316 05-04-2009 10:40 AM

facebooktwitterpinterestgoogle plusyoutubeDIS Updates
GET OUR DIS UPDATES DELIVERED BY EMAIL



All times are GMT -5. The time now is 01:34 AM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.

You Rated this Thread: