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Old 06-06-2014, 06:36 AM   #766
Dmom2three
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We just found out MAW is sending our family to Disney in Sept! The kids don't know yet. I promised not to tell them and let MAW do it at the reveal party.

We are going because meeting Anna and Elsa at Disney World was the wish of my 5 year old. She has pilocytic astrocytoma ( tumors on her optic nerves and in the chiasm) as well as neurofibromatosis type 1. She is near the middle of a one year long chemo regimen. It changed slightly recently due to an allergic reaction. So now she goes every other week.

We also have 2 more kids. We have been once before but it was in peak season. I have heard the crowds are better in Sept.
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Old 06-06-2014, 06:56 PM   #767
sunleigh
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How very exciting!!!! You will have a magical time, our family did. Brings tears to my eyes just thinking back to our trip. So excited to hear about other family's adventures!!
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*FIRST FAMILY TRIP TO DISNEY 5/11~Campground at Fort Wilderness Campground
9 YEAR ANNIVERSARY TRIP 10/11 (had to go back sans kids)~Caribbean Beach Resort F/W was amazing
SECOND FAMILY TRIP 5/13 with a very excited 3 year old~Cabins at Fort Wilderness Campground
My DD's Make a Wish trip, her first time to Disney 1/14 Thanks MAW!
We have become a DISNEY FAMILY


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Old 06-12-2014, 05:56 PM   #768
MrsMeow
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We FINALLY have dates for D's Wish Trip! We leave on Tuesday, Oct 7, and return on Monday the 13th. I was hoping for earlier, but we'll take it. Let the planning officially begin!!
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Old 06-13-2014, 03:14 PM   #769
Kristi77
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Make A Wish Trip for our Son - new to the group

Not sure if this is still open, but the Wish Trippers Site had amazing information.

I will start off telling you a little bit about us. My name is Kristi. I am a mom of three amazing kids. Alexis who is 16 Lillie who is 11 and AJ who is 3. My husband Rico and I have been together for 18 years

Our son was born on October 14, 2010. We were told early on something wasn't right. At 22 weeks a mass on the umbilical cord formed causing turbulence which eventually caused a lack of oxygen to AJ's brain causing some pre mature issues (laryngomalacia) and causing white matter disease aka Periventricular leukomalacia of AJ's brain. He was developmental delayed and they believe he has auditory processing disorder and ADHD. Then this past February AJ was diagnosed with FOP. Fibrodysplasia Ossificans Progressiva is one of the rarest, most disabling genetic conditions known to medicine, it causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another.

So AJ has had numerous flare ups and we were surprised by Make A wish, Apparently some family, friends and doctors have referred us. AJ choice was Disney, I know now we just wait but I found this amazing board and thought I would join. Thank you.
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Old 06-13-2014, 09:38 PM   #770
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Kristi77. We are going to disney in October. I always cry hAppy n sad tears when reading this site. I am so happy you were surprised. Your family will make amazing memories.
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Old 06-18-2014, 01:53 PM   #771
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Kiddyup- That is amazing. I am hoping we get to go in October/November. How long did it take for you to hear something.
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Old 06-18-2014, 02:38 PM   #772
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Make a Wish for our Sweet Girl!

To start I want to say thank you for all of the information that is found on this thread. I love reading everyone's experiences, even through the tears. Our daughter CG was diagnosed with High Risk Acute Lymphoblastic Leukemia in July 2013 at age 3. CG has been so very brave through every surgery, port access, long days at clinic receiving her chemo and even having to have shots from home. I sometimes have a hard time remembering that she is 4 (now) because of everything she has been through and she still smiles and just says ok when she is faced with a new challenge in her treatments. CG is now 4 and Cancer Free! She started the Maintenance Stage of her treatments at the beginning of May and has done well. CG has an older brother LJ who is now almost 7. He never leaves her side even at that hospital. He is the best big brother a little sister could have! We are very excited about out next journey that we are soon going to start. CG has been accepted for Make a Wish and we have all of our paper work in. I received an email from Make a Wish and now we just need to wait to be assigned volunteers. We talked to CG and have written down several ideas for her MAW and she keeps coming back to going to Disney and meeting the Princesses. I am looking forward too sharing this new journey. Thank you!!
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Old 06-18-2014, 05:29 PM   #773
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Everything is FINALLY 100% confirmed. We fly out October 7 and get it a little after 6pm, and come home the night of the 13th. Our Wish chapter was going to schedule a breakfast, but instead I asked about Mickey's Not So Scary Halloween Party, and they got us tickets to that instead - I'm so excited! D knows about it, but hasn't asked much. We will probably wait until early September to really talk to him and his brother about it more...otherwise we'll spend the next 3 months constantly being asked when we are going!
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Old 06-19-2014, 09:07 AM   #774
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MrsMeow : I think that is wonderful that they were able to get you tickets for Mickey's Not So Scary Halloween Party! MAW seems to really try to make everyone's trip I wonderful one! I can't wait to find out the details of our CG's trip.
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Old 06-19-2014, 10:57 AM   #775
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2lovebugs....I can't wait to hear about your daughters wish. We just meet our volunteers last week and they were great. Our son asked to go to Disney so just waiting now for us.

Mess meow ...congrats on your dates and that was such a awesome choice about the party.
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Old 06-19-2014, 08:34 PM   #776
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Quote:
Originally Posted by 2lovebugs View Post
To start I want to say thank you for all of the information that is found on this thread. I love reading everyone's experiences, even through the tears. Our daughter CG was diagnosed with High Risk Acute Lymphoblastic Leukemia in July 2013 at age 3. CG has been so very brave through every surgery, port access, long days at clinic receiving her chemo and even having to have shots from home. I sometimes have a hard time remembering that she is 4 (now) because of everything she has been through and she still smiles and just says ok when she is faced with a new challenge in her treatments. CG is now 4 and Cancer Free! She started the Maintenance Stage of her treatments at the beginning of May and has done well. CG has an older brother LJ who is now almost 7. He never leaves her side even at that hospital. He is the best big brother a little sister could have! We are very excited about out next journey that we are soon going to start. CG has been accepted for Make a Wish and we have all of our paper work in. I received an email from Make a Wish and now we just need to wait to be assigned volunteers. We talked to CG and have written down several ideas for her MAW and she keeps coming back to going to Disney and meeting the Princesses. I am looking forward too sharing this new journey. Thank you!!
I am so glad to hear that your daughter is doing well. My daughter Reese was diagnosed with exactly the same thing (high risk acute lymphoblastic leukemia) this past January at 2.5. She is 3 now. She is so incredibly brave and strong as well. Her wish was to meet the lizard from tangled. Not tangled. Just the lizard.
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Old 06-19-2014, 08:36 PM   #777
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Kristy77 we met with our volunteer the end of January. She told us then the wish would most likely be approved pending doctors clearance. She said that we would know dates closer to April as they don't like to book out more than six months. We pickex two weeks and she was confident one would work. In April we were informed by a maw staff person thAt our dates were confirmed and we talked about needed medical equipment and vehicle needs. It has been a smooth process.
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Old 06-20-2014, 08:21 AM   #778
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Originally Posted by starearedkid View Post
I am so glad to hear that your daughter is doing well. My daughter Reese was diagnosed with exactly the same thing (high risk acute lymphoblastic leukemia) this past January at 2.5. She is 3 now. She is so incredibly brave and strong as well. Her wish was to meet the lizard from tangled. Not tangled. Just the lizard.
I was reading Reese's story just the other day on here. She is such a Cutie Pie! My little ones love Tangled too! That's just too cute how she wants to meet the lizard. I hope and pray that she is still handling the Chemo well. Cailyn's worst part of treatment, aside from her initial hospital/diagnoses stay was, Delayed Intensification. She spent more time at the hospital then at home through that stage. She had stayed fever free though all of the other stages until that one. Thank God it wasn't anything too serious. One time she spiked a fever during her blood/platelet transfusion and the other two times she had a bad cold. When that stage was over she started Maintenance and I can remember asking the Doc, Are you sure she is ready? Of course that just laughed and said yes. This journey has been hard but there is light and hope too. We will keep little Reese in our thoughts and Prayers along with all of the other Angles we have come to know along the way.
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Old 06-20-2014, 10:09 AM   #779
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Pictures and Questions

Here are Pics of my 2lovebugs ! Sorry so large, I am still learning

[IMG][/IMG]

[IMG][/IMG]

I was wondering if anyone can tell me what they did about booster car seats on their wish trip. (I'm and early planer) I have read several stories but have yet seen anything on them. LJ is 6 and CG is 4 so they both will need to have a booster for the car/van rides. Any help would be appreciated. Thank you!
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Old 06-20-2014, 10:18 AM   #780
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[QUOTE=Kristi77;51683123]2lovebugs....I can't wait to hear about your daughters wish. We just meet our volunteers last week and they were great. Our son asked to go to Disney so just waiting now for us.

So excited for your son!! Hopefully you guys wont have to wait too long to hear more.
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