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Old 09-07-2013, 06:00 PM   #481
Monie3
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<a href="http://s1274.photobucket.com/user/riik2/media/image_zps5c40a211.jpg.html" target="_blank"><img src="http://i1274.photobucket.com/albums/y429/riik2/image_zps5c40a211.jpg" border="0" alt=" photo image_zps5c40a211.jpg"/></a>
The first calendar is done! My co-workers created this for Christopher. We began explaining to him what is happening. We don't know how much he understands, but he did say Mickey and Disney World! We have not heard from our Dream Coordinator about the Pirates League yet, but are still hopeful! I hope everyone is enjoying their Football weekend!

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Old 09-08-2013, 10:42 AM   #482
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Originally Posted by Monie3 View Post
<a href="http://s1274.photobucket.com/user/riik2/media/image_zps5c40a211.jpg.html" target="_blank"><img src="http://i1274.photobucket.com/albums/y429/riik2/image_zps5c40a211.jpg" border="0" alt=" photo image_zps5c40a211.jpg"/></a>
The first calendar is done! My co-workers created this for Christopher. We began explaining to him what is happening. We don't know how much he understands, but he did say Mickey and Disney World! We have not heard from our Dream Coordinator about the Pirates League yet, but are still hopeful! I hope everyone is enjoying their Football weekend!

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Oh no something happened with your picture!! We can't see the countdown calendar!!

That is so awesome that you started explaining things and he is responding back Mickey and Disney World!! He must be excited too!!

You are under a month now!! Hooray!!

I totally know what you mean about the DIS feeling like one big family!! I feel the same too and I am glad that I got share my wish trip and now I share in the joy of others!!!

Thanks for sharing your family and trip with us!!

Oh by the way I noticed that you post using a tablet. I think this might be why you have trouble getting the smilies like the pixie dust to work. I could be wrong, but it seems like post works better for me from my laptop!!

I hope that helps!!!

Happy Count downing!!!

Madeline
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http://www.disboards.com/showthread.php?t=2602026 Mallory Makes a Magical Wish! -- UPDATE -- I wish for... Rudolph!? pg. 4 Post #46

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Old 09-08-2013, 06:53 PM   #483
Monie3
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I think I did it right this time!

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Old 09-08-2013, 07:00 PM   #484
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I have some great news to share! My niece and her husband own a screen printing business and they are going to make us all shirts for our trip. The immense kindness of people is staggering. We are truly blessed!

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Old 09-08-2013, 07:30 PM   #485
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Quote:
Originally Posted by Monie3
I have some great news to share! My niece and her husband own a screen printing business and they are going to make us all shirts for our trip. The immense kindness of people is staggering. We are truly blessed!

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Those shirts will help a lot at the parks! How awesome!
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Old 09-08-2013, 07:36 PM   #486
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Those shirts will help a lot at the parks! How awesome!
She is a very sweet lady! The kindness is amazing. Most of the people who worked on the calendar have never even met Christopher! I Am humbled beyond belief!

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Old 09-08-2013, 10:49 PM   #487
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Originally Posted by Monie3

She is a very sweet lady! The kindness is amazing. Most of the people who worked on the calendar have never even met Christopher! I Am humbled beyond belief!

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I had a sweet stranger that ran across our pre trip report send Talia shirts, her family is really cool. Its amazing how kind people are.
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Old 09-09-2013, 11:24 AM   #488
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We got our official approval letter a month or so ago! Our trip is scheduled for the week after Thanksgiving. The littles are so excited and have been asking to go to Disney every day since we met with our son's wish granters. Since he isn't communicative, we tell him about the trip and all the things he'll get to do and he smiles, so I'm really excited to see how he'll react once we're there. I'm just nervous about flying with him and all of his STUFF.
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Old 09-09-2013, 01:46 PM   #489
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Quote:
Originally Posted by Monie3 View Post
I have some great news to share! My niece and her husband own a screen printing business and they are going to make us all shirts for our trip. The immense kindness of people is staggering. We are truly blessed!

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how awesome!!! People are really genuinely good-hearted - i love hearing stories like this! And that calendar - LOVE!!! So amazing!

Thanks for sharing the pics! I can't wait til I can share a few!


terra
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To read more about Kendall's story - check out her Facebook Page
Hope for Kendall
Or read more on my blog: Terra Talking

Kendall's MAW trip PTR - "Part of Her World"
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Old 09-09-2013, 01:54 PM   #490
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Originally Posted by erinalicia View Post
We got our official approval letter a month or so ago! Our trip is scheduled for the week after Thanksgiving. The littles are so excited and have been asking to go to Disney every day since we met with our son's wish granters. Since he isn't communicative, we tell him about the trip and all the things he'll get to do and he smiles, so I'm really excited to see how he'll react once we're there. I'm just nervous about flying with him and all of his STUFF.
SO exciting to get that official approval!
The Disney magic on these kids' faces is beyond words. We were able to take a 2 day trip (not wish related) this past winter and my 4 year old (the one with all the health issues) absolutely LIVED those two days - i can't even put it into words. I'm so excited to see/read more about the trip! That seems like an awesome time of the year to go!

As for flying with all the attachments - just plan plenty of time for TSA. We flew with TPN fluids running into her IV, drainage bags, urine foley bags, oxygen concentrator, and then all the "emergency" bags for each body system plus the extra stuff you need to entertain a kid and changes of clothes. (My husband drove with my other three since we couldn't afford airfare). I had a friend come with to the airport and they gave her a "medical assistant' card to help me get to the gateway with all of this stuff. Not sure if that would be feasible in your case, but with two other littles underfoot - you'd likely have your husband focused on them, you focused on your son, and can see if a friend or family member can come to the airport as an assistant with all the medical stuff. TSA ended up shutting down our lane except for just us so we didn't feel any pressure. They checked every single bag, and tested some of the fluids. I had letters from every doctor detailing what was running/what fluids were what/and why she needed all of that. I think they just glanced to be sure it was on letterhead and that was that.

That's not to say it wasn't without stress - but it definitely wasn't the MAJOR ordeal that I was prepared for it to be! (we live in chicago - TSA on a good day with just my own healthy self is a nightmare - oddly enough they had their act together for my kid with all the TSA no-no's, go figure.)


Let me know if I can answer any other questions!
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Trip Dreams are Made of for my beautiful girls:
Kealey Grace - 11 yrs old, Karissa Lynn - 9yrs old, Kaylen Hope - 6 yrs old, and Kendall Quinn - 4 yrs old, brave mito warrior


To read more about Kendall's story - check out her Facebook Page
Hope for Kendall
Or read more on my blog: Terra Talking

Kendall's MAW trip PTR - "Part of Her World"
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Old 09-09-2013, 08:23 PM   #491
Redwavess
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Quote:
Originally Posted by Monie3 View Post
I have some great news to share! My niece and her husband own a screen printing business and they are going to make us all shirts for our trip. The immense kindness of people is staggering. We are truly blessed!

Sent from my iPad using DISBoards
Hooray for trip shirts!!! What a blessing!!

Also I love the countdown calendar!! It came out GREAT!!

Getting close!!!

Madeline
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Me Madeline Wife, Mom, & 1st Grade Teacher Extraordinare Husband Jason Michael 15 Mallory 5

http://www.disboards.com/showthread.php?t=2602026 Mallory Makes a Magical Wish! -- UPDATE -- I wish for... Rudolph!? pg. 4 Post #46

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Old 09-09-2013, 08:34 PM   #492
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Quote:
Originally Posted by erinalicia View Post
We got our official approval letter a month or so ago! Our trip is scheduled for the week after Thanksgiving. The littles are so excited and have been asking to go to Disney every day since we met with our son's wish granters. Since he isn't communicative, we tell him about the trip and all the things he'll get to do and he smiles, so I'm really excited to see how he'll react once we're there. I'm just nervous about flying with him and all of his STUFF.
Hooray for your wish trip!!

That sounds like an awesome time to go!!

Your family most be really excited!!!

Happy Planning,

Madeline
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Me Madeline Wife, Mom, & 1st Grade Teacher Extraordinare Husband Jason Michael 15 Mallory 5

http://www.disboards.com/showthread.php?t=2602026 Mallory Makes a Magical Wish! -- UPDATE -- I wish for... Rudolph!? pg. 4 Post #46

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Old 09-09-2013, 10:04 PM   #493
Monie3
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Hooray for your wish trip!!

That sounds like an awesome time to go!!

Your family most be really excited!!!

Happy Planning,

Madeline
Hooray for you! It is so exciting!
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Old 09-10-2013, 08:55 PM   #494
Monie3
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Elizabeth's countdown calendar is done. My dear friend, who is a beautiful artist (I AM NOT!). We are so very blessed with some amazing people in our lives!

photobucket.com/user/riik2/media/image_zpsfd6fa814.jpg.html][/URL]

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Old 09-11-2013, 11:34 AM   #495
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Originally Posted by Monie3 View Post
I have some great news to share! My niece and her husband own a screen printing business and they are going to make us all shirts for our trip. The immense kindness of people is staggering. We are truly blessed!

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SO AWESOME! People really are mostly good in this world! Sometimes it's hard to believe, but this MAW experience has made me feel confident in goodness for sure
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[FONT="Comic Sans MS"] http://www.disboards.com/showthread.php?t=3134773 MAW Family! Caitlin Jeremy Ramona (4p-/Wolf-Hirschhorn Syndrome-WISH KID!) and Ezra (Ramona's wild baby bro) Going to WDW November 2013!
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