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Old 04-13-2014, 11:10 AM   #1
MindyLuvsMickey
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Disney with Type 1? How do you do it?

We will be taking our first trip as a family since my oldest son was diagnosed in Dec. 2012. We have a good system at home but have never had to think about surviving outside in the heat for multiple days at a time.

He is a very active, athletic 9 year old but he is super sensitive to the heat. His blood sugars drop quickly, particularly when overheated. We always carry quick snacks and fast acting carbs that we will replenish in a regular basis.

How do those with experience cope with the heat? We keep Chilly Pads and misters in his soccer bag and will be bringing them along for the trip.

We are planning a trip in January for Marathon Weekend, as well as cooler temps to help avoid some of those heat-related issues.
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Old 04-13-2014, 03:47 PM   #2
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My 2 year old is T1 and we have done 2 trips and a cruise since Dx. You will get a variety of answers as every kid seems to be different in how they react.

We were really liberal with food as we found it was low much more than he was high. So treats like fries, ice cream were not an issue. We carried all supplies with us at all times in a backpack.

We only had 1 incident when he crashed fast in the middle of the Gorilla trail at AK. He was sobbing so we raced back to the stroller, got juice and some a/c until things had settled down.

Some families will get a DAS we have not felt the need at this point. We used Fp+ and were there at a very slow but hot time (Sept).

Housekeeping brought a sharps container for our room. The restrooms also had sharps disposal but I found most were full

We also tested A LOT! at least 10-12x a day. Now he has a CGM so our next trip will be a little different.
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Old 04-13-2014, 04:01 PM   #3
jcano
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If you're going in January, you shouldn't
have many heat related issues. We do usually take our mister fan from previous years in case of a hot day.
One thing we learned quickly. Test, test and test. She has always been on a pump when we have gone, so we would test her bg almost
hourly and make adjustments as needed. When she goes high, it can take awhile for the insulin to kick in and meanwhile she feels lousy, so we watch the bg closely. Next time she'll be on injections, so we probably won't
test as much for fear of stacking.
We have not found the need for a GAC / DAS. We typically go during lower crowd times and haven't seen the need.

Have fun!
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Old 04-16-2014, 12:43 PM   #4
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Our DD was diagnosed right after a much awaited Disneyland trip in 2011. We Have done 3 trips to Disney World and have done 3 cruises since then. Testing is very much the key as others have mentioned. We have however gotten the old GAC card and the new DAS card as she is very sensative to the temperature and all the walking. We used it as needed with the old fast pass system. With the new Fastpass+ it made it a bit more challenging. The new DAS card was the perfect answer for us.

Carb counts at Disney are anything but easy. I have spoken with chefs and food supervisors at both the World and on DCL. All have said they do not keep lists of carb counts. Error on the higher side, or try to do the dual wave or square wave if on the pump, and again test frequently! The fast food locations often have books behind the counter with individual ingrediant labels to give you a "guesstimate".

Drink lots of water and take breaks in the middle of the day during the hottest times of the day. (That is why I like the new DAS card, you can get a return time for a ride and take a snack, bathroom or cooling break while you wait for your time to go back to the ride.
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Old 04-17-2014, 01:41 PM   #5
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Talking

I don't know what your plans are for your trip or if your son is on a pump or MDI, but I will say this...

From my personal experience as a T1D (I'm on the OmniPod), I have no problems in the regular parks because I'm testing all the time and I have a CGM so it obviously alerts me. There is also food/drinks EVERYWHERE... and in a pinch, I'll just steal from my 2 year old. That being said... the water parks is a WHOLE DIFFERENT story for me. (Gosh now I just realized you said you are going in January... oh well, I will give my story anyway. ) Swimming + walking + stairs to get up to the slides (you won't believe how many there are!!) + NOT testing because I'm away from my meter and CGM = DISASTER that takes a solid 2 days to recover from. I've had some of my most gnarley lows after trips to a waterpark! So... even though you are likely not doing that in January... I hope that helps for future reference!
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Old 04-17-2014, 02:26 PM   #6
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He is MDI now. He has no desire to pump. He is honeymooning pretty good now and we find that he is pretty sensitive to exercise. He will have lows even when he's not exercising. I think he'd probably welcome all of the extra snacks.

I was wondering if Disney had a nice grasp on the carb counts but it sounds like not so much. He is not a very adventurous eater and will likely stick to thing that we can easily estimate.
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Old 04-17-2014, 05:27 PM   #7
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Quote:
Originally Posted by MindyLuvsMickey View Post
He is MDI now. He has no desire to pump. He is honeymooning pretty good now and we find that he is pretty sensitive to exercise. He will have lows even when he's not exercising. I think he'd probably welcome all of the extra snacks.

I was wondering if Disney had a nice grasp on the carb counts but it sounds like not so much. He is not a very adventurous eater and will likely stick to thing that we can easily estimate.

I knew from reading here and other places I wouldn't get carb counts so I never even asked. Never notated we had a T1 in our group because it didn't matter. I stuck to what I know or what I could weigh (pasta, rolls, fruit etc).

Like I know a McDs chicken nugget is 4 or 5g so I figured WDW's is probably similar. Fries I can weigh. A pain but I carried my scale everywhere. This worked well on the cruise too.
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Old 04-18-2014, 01:46 PM   #8
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Test, test, test! I basically test whenever I have an opportune moment. It may be harder to get a nine-year-old to do it, but the symptoms of a low or high are so easy to mistake for the normal effects of the fatigue, overstimulation, excitement, hunger, thirst, motion sickness, varying temperatures, etc. that you encounter in a day at the parks. Also, you’re getting lots more exercise (six miles a day of walking is the low ballpark) and carb/fat content estimates can be really hard. I easily test twice as often as usual at WDW.
Let’s see… what are the other usual things?

--Stay hydrated. As silly as it sounds, it’s SO easy to forget. Keep drinking even when you don’t feel thirsty.

--If you’re at a Disney resort, get a sharps container from Mousekeeping. Some of the public restrooms in the parks have them now, too.

--Frio wallets are good for keeping insulin cool. The First Aid stations in the parks will keep some in their fridges if you need them to.

--The inspectors at bag check at the park gates have asked me what my OmniPod PDM case is, but they’ve never asked me to open it.

--At the advice of my doctor, I don’t take a correction for a high BG right before getting on a ride, because I don’t want to risk a low while I’m stuck in there. Your doctor’s advice supersedes mine if it’s different.

--My favorite snacks to carry in the park are dried fruit, granola, and PB&J. I also usually have a bottle of juice in addition to the dextrose gel for low BG.

--Keep Ziploc bags in your park bag to slip BG monitors, etc. into on rides where you may get wet. Don’t forget the spare batteries!

--I pack twice as many supplies as I’ll need, plus emergency prescriptions.

--I seem to be a bit of a weirdo in the Type 1 community, because heat doesn’t seem to affect my BG’s.
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Old 04-19-2014, 10:13 AM   #9
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I'll ditto what everyone else has said. We are usually at Disney in the summer and while my son also seems to drop really quickly with the heat, we've never had much of an issue. We just carry everything with us, use lines as a way to just relax and cool down. We treat lows in line if we have to, but by and large, the food is sooooo fatty that he ends up running high a lot. We also tend to slightly under dose for breakfast and lunch, knowing that by mid afternoon he's going to be plummeting when we're back at the hotel swimming. Then we try to dose accurately for dinner. And nighttimes we just play by ear. IF he's been low a lot during the day, I generally know he'll be low at night. If he's running high during the day, nights will generally be fine.

The biggest thing - just test and test and test. Test more than you think you should, even if it's every hour. If you test a lot, you'll be able to ward off most problems. I would make sure you're got a good grasp on how long insulin lasts in him and really use that information to help you make good decisions regarding treating/dosing. Like if he's eaten at 12 and it's 3:00 and he's 78, and you know his insulin lasts 4 hours, that means he's still got more insulin to work, which is going to pull him down lower. On the other hand, if he's 300, then you know you're probably safe to correct.

Also, be aware that excitement can actually make the kids go high. Adrenaline can make them go high. You have to be careful correcting those as they usually end up crashing back to normal later, on their own.

Isn't diabetes fun?? LOL. But you'll do great. It's important to not let it rule your vacation. Carbs are the same as at home. Restaurant food is always extra fatty. You'll do great.
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