Chronic illness is killing me... - The DIS Discussion Forums

BelleMaria · 01-27-2013, 02:12 PM

Just asking for prayers and advice, or just someone to listen. I am 27.

Recently my medical issues have hit a wall. I was diagnosed in November with a rare esophageal disorder (1 in 3millionish have it). I cant eat anything more than soup and shakes without getting horrible chest pains like mini heart attacks throughout the day.Along with the new recent development of rapid heartbeat and all day nausea. Oh and yes after being on a medicine which was working for a month my doctor decided to leave practice at Stanford and disappear. Thus leaving me doctor-less and now having to wait till Feb 26th for my next appointment with a new doctor. Btw I would just go see a regular gastro but there are only 3 doctors in Nor. Cal that are "motility specialists".

I am just in so much pain, sick, and weak. I have dropped to 89lb at 5"4 and knowing my disorder has no cure, little medicine to relieve the pain, no access to a doctor for over a month, I am just feeling so hopeless.

Also has anyone taken Klonopin? My doctor gave me a script for my now depression and anxiety due to my illness but I am scared of getting addicted and having to wean off it. I cant take an SSRi (anti depressant) because at the time I am to weak to deal with the side effects on top of my already sickness.

mommasita · 01-27-2013, 10:37 PM

Gosh, you poor thing.

I have no experience with that medication, or your condition. That is a long wait for a Dr, and I hear you on that. I have too many to count right now.

Don't let this title scare you, but have you hopped over to the disability forum? It is fantastic IMHO, and you may just get a good helpful answer.

I will most definitely keep you in my thoughts and prayers.

NumberOneDisneyFan · 03-06-2013, 01:25 PM

Sorry to read about this...

I will keep you in my thoughts...

rewardsinlife · 03-06-2013, 10:48 PM

I am so sorry for your illness. Having a dr. Disappear on you as well is the last thing when you have just been diagnosed and need answers. Don't know about your medication..but because of your weight loss you really need to have supplement shakes and vitamins. I take an Ensure daily...I would recommend ensure complete for you since you probably need overall immune, bone, muscle, and heart health from losing that much weight. Hopefully you have seen the new dr. By now and they have helped you out with medication options and nutrition. You are in my thoughts! P.s. I second the PP post on looking at the disability form for some support and ideas.

disney212 · 03-07-2013, 07:51 PM

Hang in there. I have very similar symptom and am still searching for some of the answers so I do understand how frustrating it is

. You are in my thoughts and prayers.

01-27-2013, 02:12 PM	#1
BelleMaria Earning My Ears Join Date: Nov 2012 Location: Nor.Cal Posts: 47	Chronic illness is killing me... Just asking for prayers and advice, or just someone to listen. I am 27. Recently my medical issues have hit a wall. I was diagnosed in November with a rare esophageal disorder (1 in 3millionish have it). I cant eat anything more than soup and shakes without getting horrible chest pains like mini heart attacks throughout the day.Along with the new recent development of rapid heartbeat and all day nausea. Oh and yes after being on a medicine which was working for a month my doctor decided to leave practice at Stanford and disappear. Thus leaving me doctor-less and now having to wait till Feb 26th for my next appointment with a new doctor. Btw I would just go see a regular gastro but there are only 3 doctors in Nor. Cal that are "motility specialists". I am just in so much pain, sick, and weak. I have dropped to 89lb at 5"4 and knowing my disorder has no cure, little medicine to relieve the pain, no access to a doctor for over a month, I am just feeling so hopeless. Also has anyone taken Klonopin? My doctor gave me a script for my now depression and anxiety due to my illness but I am scared of getting addicted and having to wean off it. I cant take an SSRi (anti depressant) because at the time I am to weak to deal with the side effects on top of my already sickness.

01-27-2013, 10:37 PM	#2
mommasita I am like HELLO IT IS TEN OCLOCK...Anderson is on Has a sweetie who is Furbilicious Join Date: Aug 2004 Location: Montreal, Canada Posts: 18,320	Gosh, you poor thing. I have no experience with that medication, or your condition. That is a long wait for a Dr, and I hear you on that. I have too many to count right now. Don't let this title scare you, but have you hopped over to the disability forum? It is fantastic IMHO, and you may just get a good helpful answer. I will most definitely keep you in my thoughts and prayers. __________________ It's nice to be important, but it's more important to be nice.

03-06-2013, 10:48 PM	#4
rewardsinlife Mouseketeer Join Date: Aug 2012 Posts: 229	I am so sorry for your illness. Having a dr. Disappear on you as well is the last thing when you have just been diagnosed and need answers. Don't know about your medication..but because of your weight loss you really need to have supplement shakes and vitamins. I take an Ensure daily...I would recommend ensure complete for you since you probably need overall immune, bone, muscle, and heart health from losing that much weight. Hopefully you have seen the new dr. By now and they have helped you out with medication options and nutrition. You are in my thoughts! P.s. I second the PP post on looking at the disability form for some support and ideas. __________________ If your heart is in your dreams, no request is too extreme, when you wish upon a star your dreams come true! me on the way to DL...every time!

03-07-2013, 07:51 PM	#5
disney212 DIS Veteran Join Date: Apr 2011 Location: Ft. Wright, KY Posts: 678	Hang in there. I have very similar symptom and am still searching for some of the answers so I do understand how frustrating it is. You are in my thoughts and prayers.

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03-06-2013, 01:25 PM	#3
NumberOneDisneyFan #1 Disney Fan Join Date: Mar 2013 Location: Lake Buena Vista, Florida Posts: 10	Sorry to read about this... I will keep you in my thoughts...