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Old 10-28-2013, 09:38 PM   #1
alizesmom
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Seizure parents

HAs your child ever stopped breathing after a cluster of seizures? DS7 didn't breath on his own for 18 hours. Praise God he has a ventilator for when he sleeps. Neuro is telling us he just got tired from the seizures. I'm finding this explanation hard to swallow.
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Old 10-28-2013, 09:54 PM   #2
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That's a pretty simplistic explanation. You said he's on a ventilator at nights? So he already has disordered respiratory drive? It's not entirely inconceivable that the seizure significantly disrupted the portion of his neurological system that controls his breathing. I don't know that I would simplify it to the point your neuro did.
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Old 10-29-2013, 08:19 AM   #3
alizesmom
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This may be reaching but I was wondering if he was a near miss SUDEP.
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Old 10-29-2013, 01:05 PM   #4
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SUDEP is uncommon in children. OP stated her son had had a "cluster of seizures" which leads me to believe that status epilepticus disrupted his respiratory control causing respiratory insufficiency. SUDEP isn't off the table, but it's much less likely.
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Old 10-29-2013, 04:21 PM   #5
alizesmom
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I am OP. To clarify, he had a seizure at 4:30, 6:10, 6:15 and 6:30. Each one was reported to last about 75 second and we're tonic/clonic in nature. Hope this helps.
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