Wolff–Parkinson–White Syndrome - anyone have/had this? - The DIS Discussion Forums

kimmar067 · 09-21-2012, 01:38 PM

Wolff–Parkinson–White syndrome (WPW) is one of several disorders of the conduction system of the heart that are commonly referred to as pre-excitation syndromes. While the majority of individuals with WPW remain asymptomatic throughout their entire lives, there is a risk of sudden cardiac death associated with the syndrome.....

My DS was just diagnosed with this and the heart specialist will be performing an ablation this Tuesday. Does anyone have any info they can share, especially about the procedure that he is having done?

kimmar067 · 09-21-2012, 01:58 PM

....anyone?

wendypooh · 09-21-2012, 02:05 PM

OHHH Kim,

I've never even heard of this - so I can't help with your question, but I'm here for you. Sending hugs and prayers your way. I hope your DS will be OK - PLEASE keep us posted and if you need anything, know I"m here!!

Hugs my friend

kimmar067 · 09-21-2012, 02:06 PM

...thanks...

wickey's friend · 09-21-2012, 02:14 PM

Kimmar -- I don't know anything about it either, but I'm sending tons of prayers to your son, you and your family.

John's Mom · 09-21-2012, 02:17 PM

Wendy said it perfectly.

Am checking with a doctor for any info. Of course, it is not her field.

Kathy

SadieDog · 09-21-2012, 02:29 PM

I have never heard of this condition. I can only imagine how difficult this news must be to your family. Thinking of you and sending good thoughts your way.

pilesoflaundry · 09-21-2012, 02:29 PM

I've heard of it, I don't know much about it. Good luck to your son with his procedure. *hug*

GRUMPY PIRATE · 09-21-2012, 02:30 PM

I googled it and found some interesting pages.

Pikester · 09-21-2012, 02:41 PM

My cousin who is in his 20s had that but I can offer no advice. His was diagnosed while on tour in Iraq and he passed out. Thank goodness there were people there to help him. He had a procedure to correct it and has been home ever since with his wife and twin boys. This happened over a year ago.

kimmar067 · 09-21-2012, 02:49 PM

....well, it turns out that he was having a physical to try to make the NYPD and FAILED! If you know my DS and have seen him, he's pretty much a perfect specimen of health [115 over 72 PB, 150's cholesterol range, less than 1% body fat, low sodium, low sugar, low carbs diet, not too much red meat, no smoking, works out every day] but he failed because they heard an abnormality in the heart (an arythmia) so he had to go to a specialist, get and EKG, a stress test (he only turned 24 in July), so it was actually a blessing in disguise tht he failed the physical....

kimmar067 · 09-21-2012, 02:50 PM

Quote:

Originally Posted by Pikester

My cousin who is in his 20s had that but I can offer no advice. His was diagnosed while on tour in Iraq and he passed out. Thank goodness there were people there to help him. He had a procedure to correct it

...it is mostly diagnosed in late teens/early 20's....did your cousin have the ablation done? How was the re-coop?

Quote:

Originally Posted by Pikestar

and has been home ever since with his wife and twin boys. This happened over a year ago.

...sooo, was he discharged? Is he unable to work? My DS thinks that once he gets this procedure done, he will be able to continue his application with the NYPD....

TruBlu · 09-21-2012, 03:02 PM

Hugs

, my friend!

I know you must be terrified - I know I would be! I have never heard of this condition, either. Sending you prayers, hugs, pixie dust... Everything I've got!
Please keep us updated. I wish I lived closer. I'd come sit with you at the hospital.

kimmar067 · 09-21-2012, 03:05 PM

Quote:

Originally Posted by TruBlu

Hugs

, my friend!

I know you must be terrified - I know I would be! I have never heard of this condition, either. Sending you prayers, hugs, pixie dust... Everything I've got!
Please keep us updated. I wish I lived closer. I'd come sit with you at the hospital.

....well, thank you....you bdon't know how much I truly appreciate that...

TruBlu · 09-21-2012, 03:14 PM

Quote:

Originally Posted by kimmar067

....well, thank you....you bdon't know how much I truly appreciate that...

I know how you feel. My DS had a bone tumor when he was 5. It was SO hard feeling so helpless. PM me any time you need to talk! I never sleep, so I'm usually around.

I know it's impossible, but try not to worry. Someone told me once that worry is like rocking in a rocking chair - you do a lot of work, but don't get anywhere.

I'll be praying.

Sent from Tracey's iPhone using DISBoards

09-21-2012, 01:38 PM	#1
kimmar067 Kimmie Moo Boo Boo I’m SERIOUS..milk just fell from my --- udder Join Date: Mar 2001 Location: "Exit 16W" of the Land of the Last! Posts: 77,971	Wolff–Parkinson–White Syndrome - anyone have/had this? Wolff–Parkinson–White syndrome (WPW) is one of several disorders of the conduction system of the heart that are commonly referred to as pre-excitation syndromes. While the majority of individuals with WPW remain asymptomatic throughout their entire lives, there is a risk of sudden cardiac death associated with the syndrome..... My DS was just diagnosed with this and the heart specialist will be performing an ablation this Tuesday. Does anyone have any info they can share, especially about the procedure that he is having done? __________________ July 1992~off-site Dec 1999~CSR Feb 2001~DxL Nov 2001~Dolphin July 2002~CBR Aug 2002~WL Feb 2005~AKL/concierge Feb 2005~AKL Aug 2006~PoP C Aug 2006~AKL Dec 2007~DolphinJuly/Aug 2010~Mystic Dunes "That's IT! The absolutely, positively VERY LAST Marino....." "We WEREN'T the 'Castle Family', We Didn't..." "The Trippie Who Hath..." Last edited by kimmar067; 09-21-2012 at 01:58 PM.

09-21-2012, 01:58 PM	#2
kimmar067 Kimmie Moo Boo Boo I’m SERIOUS..milk just fell from my --- udder Join Date: Mar 2001 Location: "Exit 16W" of the Land of the Last! Posts: 77,971	....anyone? __________________ July 1992~off-site Dec 1999~CSR Feb 2001~DxL Nov 2001~Dolphin July 2002~CBR Aug 2002~WL Feb 2005~AKL/concierge Feb 2005~AKL Aug 2006~PoP C Aug 2006~AKL Dec 2007~DolphinJuly/Aug 2010~Mystic Dunes "That's IT! The absolutely, positively VERY LAST Marino....." "We WEREN'T the 'Castle Family', We Didn't..." "The Trippie Who Hath..."

09-21-2012, 02:05 PM	#3
wendypooh Jambo Wildbunch Gang Cajun Tinkerbell Princess Tag Toggler Loves kissing Tag Fairy butt ;) Join Date: Jun 2003 Location: Baton Rouge ~ GEAUX TIGERS!! Posts: 8,001	OHHH Kim, I've never even heard of this - so I can't help with your question, but I'm here for you. Sending hugs and prayers your way. I hope your DS will be OK - PLEASE keep us posted and if you need anything, know I"m here!! Hugs my friend __________________

09-21-2012, 02:06 PM	#4
kimmar067 Kimmie Moo Boo Boo I’m SERIOUS..milk just fell from my --- udder Join Date: Mar 2001 Location: "Exit 16W" of the Land of the Last! Posts: 77,971	...thanks... __________________ July 1992~off-site Dec 1999~CSR Feb 2001~DxL Nov 2001~Dolphin July 2002~CBR Aug 2002~WL Feb 2005~AKL/concierge Feb 2005~AKL Aug 2006~PoP C Aug 2006~AKL Dec 2007~DolphinJuly/Aug 2010~Mystic Dunes "That's IT! The absolutely, positively VERY LAST Marino....." "We WEREN'T the 'Castle Family', We Didn't..." "The Trippie Who Hath..."

09-21-2012, 02:14 PM	#5
wickey's friend I can get older but who says I have to grow up . . . Tittered at the Twitter comments Co-workers think I'm nuts anyway Join Date: Oct 2001 Location: Texas Posts: 2,697	Kimmar -- I don't know anything about it either, but I'm sending tons of prayers to your son, you and your family. __________________ Kimmar is the Queen!!!!

Sponsored Links
The DIS Register to remove Join Date: 1997 Location: Orlando, FL Posts: 1,000,000

09-21-2012, 02:17 PM	#6
John's Mom Jambo Wildbunch Gang AKL Lover Join Date: Jun 2004 Location: Central Florida Posts: 3,696	Wendy said it perfectly. Am checking with a doctor for any info. Of course, it is not her field. Kathy __________________ Kathy

09-21-2012, 02:29 PM	#7
SadieDog Minds are like parachutes, they only function when open Hell's Kitchen time The thing got inside my shirt and was slithering around Join Date: May 2006 Location: Maine Posts: 6,843	I have never heard of this condition. I can only imagine how difficult this news must be to your family. Thinking of you and sending good thoughts your way. __________________

09-21-2012, 02:29 PM	#8
pilesoflaundry it doesn't get scratched as often as I like Join Date: Jan 2009 Location: wherever the army sends us, currently the desert Posts: 2,689	I've heard of it, I don't know much about it. Good luck to your son with his procedure. hug __________________ -Jackie My knight in shining armor turned out to be a soldier in combat boots.

09-21-2012, 02:30 PM	#9
GRUMPY PIRATE DIS Veteran Join Date: Aug 2007 Posts: 10,351	I googled it and found some interesting pages.

09-21-2012, 02:41 PM	#10
Pikester DIS Veteran Join Date: Aug 2006 Location: New Hampshire Posts: 5,091	My cousin who is in his 20s had that but I can offer no advice. His was diagnosed while on tour in Iraq and he passed out. Thank goodness there were people there to help him. He had a procedure to correct it and has been home ever since with his wife and twin boys. This happened over a year ago. __________________ DH Me DS15DS12

09-21-2012, 02:49 PM	#11
kimmar067 Kimmie Moo Boo Boo I’m SERIOUS..milk just fell from my --- udder Join Date: Mar 2001 Location: "Exit 16W" of the Land of the Last! Posts: 77,971	....well, it turns out that he was having a physical to try to make the NYPD and FAILED! If you know my DS and have seen him, he's pretty much a perfect specimen of health [115 over 72 PB, 150's cholesterol range, less than 1% body fat, low sodium, low sugar, low carbs diet, not too much red meat, no smoking, works out every day] but he failed because they heard an abnormality in the heart (an arythmia) so he had to go to a specialist, get and EKG, a stress test (he only turned 24 in July), so it was actually a blessing in disguise tht he failed the physical.... __________________ July 1992~off-site Dec 1999~CSR Feb 2001~DxL Nov 2001~Dolphin July 2002~CBR Aug 2002~WL Feb 2005~AKL/concierge Feb 2005~AKL Aug 2006~PoP C Aug 2006~AKL Dec 2007~DolphinJuly/Aug 2010~Mystic Dunes "That's IT! The absolutely, positively VERY LAST Marino....." "We WEREN'T the 'Castle Family', We Didn't..." "The Trippie Who Hath..."

09-21-2012, 03:02 PM	#13
TruBlu I was very excited to see how yummy it looks! You can do what we do and go to BOTH! I could have been contender.... instead, I'm just itchy Join Date: Mar 2006 Location: North Carolina Posts: 10,636	Hugs , my friend! I know you must be terrified - I know I would be! I have never heard of this condition, either. Sending you prayers, hugs, pixie dust... Everything I've got! Please keep us updated. I wish I lived closer. I'd come sit with you at the hospital. __________________ 2006-CSR 2007-POP, SSR 2008, 2009-POFQ 2010-Christmas with Mickey at AKL 2013-AKL Me (Tracey) DH DS13 DS11 "Not all treasure is silver and gold, mate." -Captain Jack Sparrow

Thread Tools
Show Printable Version Email this Page
Display Modes	Rate This Thread
Linear Mode Switch to Hybrid Mode Switch to Threaded Mode	Rate This Thread: