05-04-2012, 07:36 PM
|
#1 |
|
Earning My Ears
Join Date: Apr 2012
Posts: 29
|
Any Parents With Disabilities?
Hi I'm just wondering if there are any parents with disabilities out there?
I was just thinking it would be great to connect with others in similar situations.
__________________
 DS (6 months old)  DFi  me |
|
|
|
06-26-2012, 05:33 PM
|
#2 |
|
Mouseketeer
Join Date: Mar 2012
Posts: 353
|
I am!
|
|
|
|
| | | |
|
|
|
|
06-27-2012, 02:08 PM
|
#3 |
|
Have an Attitude of Gratitude!
*sadly, no emoticons because my pix max out the limit-my words will have to stand alone* 
Join Date: Oct 2004
Location: California
Posts: 773
|
my mom is-with a milder manifestation of Muscular Dystrophy than my sister and I.
__________________
My trip report: Driving 6000 miles for the Magic: A Miracle Trip
http://www.disboards.com/showthread.php?t=1427306 Boo'd!!  Frosted  , Snowed  , Ho ho'd  Tree'd! "Everything in life is a choice. Even if the only choice we have is the attitude with which we embrace each moment." Mattie Stepanek |
|
|
|
|
06-28-2012, 10:02 PM
|
#4 |
|
DIS Veteran
Join Date: May 2007
Posts: 2,111
|
I have a few things going on, unfortunately.
 
__________________
Carrie
 DH  , DS 23 , DD 9 Off-site '87, '93, '99, '07 CBR 4/08, 10/08, 12/09,Won a trip 7/09 GF,12/10 CR ,BWV 7/11, 9/12   |
|
|
|
|
06-28-2012, 10:24 PM
|
#5 |
|
Purple Heart Park Commando
Join Date: Dec 2003
Location: Columbus, OH
Posts: 855
|
Empty-nester, but DD used to fight with DW to push my wheelchair.
__________________
 Me  DW |
|
|
|
|
07-03-2012, 04:20 AM
|
#6 |
|
Earning My Ears
Join Date: Apr 2012
Posts: 29
|
Glad to hear I'm not the only one out there. Thus far, I've thankfully been able to independently care for my son. However, I'm anxious because I know there will come a day in which my disability limits how much I can care for him due to him getting bigger, more mobile etc. Any tips for dealing with that challenge of parenting?
__________________
DS (6 months old) DFi me |
|
|
|
|
07-03-2012, 08:46 AM
|
#7 |
|
Mouseketeer
Join Date: Mar 2012
Posts: 353
|
hi again...Ive looked online for resources/ message boards for disabled parents, havent ever found one, do you know of any? I am 35, i have aa DD5 and DS11m. I have ME/CFS/CFIDS...lol too many names. chronic fatigue syndrome I guess is the recognized but least descriptive name. also fibromyalgia and some arthritis. Ive been a hot mess of flares and low NK cells lately so everything is hard/...am starting to worry about our WDW trip in october. is anyone nervous about handling a trip? any tips? I am able to care for the kids about 75% of the time now so I shouldnt need wheelchair etc. we will see. Ive worked SO hard for this trip and it means so much to me that if I couldnt enjoy it or the kids couldnt do thigns because of me I will lose it
 One good thing about growing up with a disabled parent? Your kid learns to play on thier own and be more imaginative. DD knows fi I am doing really badly she and i can watch a movie, or she can play while I rest...coming up with inventive things to do on the couch/bed or on her own. legos, anything to build or create as well as little animal and people figurines are great for this. art too! kids also learn to be more empathetic 
|
|
|
|
|
07-04-2012, 10:27 AM
|
#8 |
|
Earning My Ears
Join Date: Apr 2012
Posts: 29
|
Hi, I am 24 and use a manual wheelchair due to a TBI in my early teens. Unfortunately I haven't found any forums, or really much of any support out there for parents with disabilities, online or in person. That's why I posted here.
I'm sorry you're stressing over your upcoming trip. DFi and I will also be going to WDW in October. It is my first-ever trip to WDW and his first as an adult. I'm a bit nervous but mostly excited. I hope going once for an adult only trip will be helpful for strategizing in a few years when DS (6 months) will be old enough to enjoy WDW. Thank you to everyone for the replies and support.
__________________
DS (6 months old) DFi me |
|
|
|
|
07-18-2012, 12:38 PM
|
#9 |
|
Earning My Ears
Join Date: Mar 2012
Posts: 3
|
Yep!
Hi! I am a single mother to my DD who is 5. I am in a wheelchair and will be taking her to Disney in August. We are both so excited since it will be her first trip and my first trip in 15 years. The best part about Disney is that they are so accommodating to all types of disabilities. So many rides at different amusement parks are just not okay with a wheelchair but Disney is so the opposite. If you have any questions about your disability and Disney, let me know and I can try to find out the answer when I am there.
|
|
|
|
|
07-19-2012, 09:21 PM
|
#10 | |
|
DIS Veteran
Join Date: Aug 2008
Location: MS
Posts: 8,049
|
Quote:
I hope you guys have a great time on your trip!
|
|
|
|
|
|
07-30-2012, 07:05 PM
|
#11 |
|
What we've got here is failure to communicate
Join Date: Oct 2009
Location: Too far from Disney
Posts: 5,355
|
I am! Though looking at me you cant see them. So some ppl think I am making it up but it isnt fun let me tell you.Its good that there are more ppl that may not have the same thing I have but know how I feel
__________________
  Our Magical Trip To Deez Knee A Nov 2012 PTR Does It Make You Hungry, Baby?? A DxDP PDR Erin  , DH  and 3 plus 2 |
|
|
|
|
08-21-2012, 11:29 AM
|
#12 |
|
Earning My Ears
Join Date: Jan 2011
Location: New Jersey
Posts: 21
|
I personally do not have a disability, but my DH is vision and hearing impaired due to Usher's syndrome. The hearing isn't quite as much of an issue, but the vision is difficult because he has little vision at night or in the dark, and has lost his peripheral vision...making it almost tunnel like to some degree. The two time I've been to WDW with him have definitely been new learning experiences for me.
__________________
 Mama - DH - DD(6) - DS (5) WDW: '87. '88. '90. '91. '94. '97. '98x2. '02. '03. '05. '11. Traveling with a Dairy + Peanut free DS and a Visually + Hearing impaired DH.  |
|
|
|
|
08-21-2012, 01:33 PM
|
#13 | |
|
DIS Veteran
Join Date: Mar 2003
Location: Baltimore MD
Posts: 4,007
|
Quote:
As a wheelchair user I found overalls to be a lot of help. I could reach over and grab the back of the overalls with one hand and lift my DD right up into my lap. It's great for crawling babies.
__________________
CR-77, Travelodge(DTD)-81, Poly-92, SOG-96, Offsite-97, ASMu-98, POR-03, Vistana Resort-04, WL-Sept 2006! CSR-December 2006, Pop-May 2007(first solo trip!), CSR-Sept 2007(Solo trip), and offsite-May-2008 visited Universal, SeaWorld, KSC and a couple of days at WDW. WL-March 2009 I turned 50 in WDW! May-10 Pop, Oct 2010- Pop for first F&W, Dec 2010-Pop for Christmas stuff, May 2011-POFQ. Currently no trip and it's killing me. Trip report from 1997:http://www.mouseplanet.com/dtp/trip....97/sears97.htm
 |
|
|
|
|
|
08-27-2012, 09:52 PM
|
#14 | |
|
Earning My Ears
Join Date: Apr 2012
Posts: 29
|
Quote:
 
__________________
DS (6 months old) DFi me |
|
|
|
|
|
09-10-2012, 07:45 PM
|
#15 |
|
DIS Veteran
Join Date: Feb 2008
Location: Roanoke, VA
Posts: 10,278
|
ME!!!! I have polymyositis. It took away my ability to walk at age 29. I'm 35 now. In remission and currently learning how to walk again!
__________________
 Aug. 2003 Off Property; Nov. 14-20, 2008-Port Orleans Riverside; Sept. 2012 Free Dining @ Art of Animation DD17 DS10  DS14 Follow Me On Twitter!  |
|
|
|
 |
| Thread Tools | |
| Display Modes | Rate This Thread |
|
|
Matty and the Gingerbread Men!
~ 
~
Linear Mode
