Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Disney Trip Planning Forums > disABILITIES! > disABILITIES Community Board
Find Hotel Specials & DIScounts
 
facebooktwitterpinterestgoogle plusyoutubeDIS UpdatesDIS email updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read





Reply
 
Thread Tools Rate Thread Display Modes
Old 02-25-2011, 01:27 AM   #1
Singledad
DIS Veteran
 
Singledad's Avatar
 
Join Date: Feb 2011
Location: Wisconsin
Posts: 1,233

Question First IEP meeting, what do I expect?

Okay, my DD4 (nearly 5, march 3rd) has been in headstart since 3 years old. The teacher there was concerned about her fine motor and asked me to ask the doc about it. I did, and was basicly told she will catch up on her own, it is too early to worry.
this year, she is still in headstart (mornings) and afternoon is in 4K. She still has issues with fine motor skills, and I personally believe she has trouble with Sensory as well.
at the first parent teacher conf. of the year her 4k teacher asked for permission to get her evaluated for an IEP. spefically under the "significant developmental delay." citing not just fine motor skills, but also her high lvl of anxiety and inablity to stay on task without direct adult invovlement.

I gave the permission, the evaulations are done, and now we have set up our first meeting, to discuss the findings of the evualation, and what are are going to do (IEP, nothing, OT, etc).

I just want to know, what should I expect when I walk into this meeting. I assume everyone will be sitting at like a conference table. I know who is going to be there (Her teacher (who is also the special education teacher, so even if they want to have her helped by the SE teacher, it is the same one, so no changing of classrooms or anything.), I asked for the headstart teacher to be included (and she is going to be there.), the OT, and the case manager type dude. and of course me.)

Will they have actual copies of the results, for me to keep? can I request them if they do not?

Do they go around the table and each say what they tested (I know what tests were done, from the sheet they sent me to approve the tests), the results and what they suggest from the results? or will just the head guy say, 'this is what we want to do' and the others agree or disagree?


I am not very good in any sort of social interactions (very very high anxiety issues) and just trying to prepare myself.

I am in Wisconsin if state matters, but I figure most of these type meetings must be similarly run.

any suggestions of things I should make sure to do/bring at this very first meeting?

I'm not antisipating any problems, like them suggesting something I don't agree with... but what if I like what they have, but still don't feel they are addressing the sensory issue (which is why I think she has the trouble with anxiety and staying on task.) ? (I did ask for them to evaluate for SPD, and they did include a questionnare type thing to try to see if that needs to be evaluated. sorry, wish I had my paperwork on this with me right now so I could give you the actual name of it)

I feel so out of my element here....
__________________
Me (27): DD (5):

PTR June 2011 TR June 2011 Dis Dad's club member #594
Singledad is offline   Reply With Quote
Old 02-25-2011, 05:09 AM   #2
bookwormde
Heading out now, another adventure
Have a good time, WDW is a magical place
 
bookwormde's Avatar
 
Join Date: Mar 2008
Posts: 5,558

Someone will be there as a representative of the school or district to "commit" them to whatever the IEP team decides (this may be the case manager). Any clinician or educational professional who performed a part of the evaluation should be there to interpret and answer questions about that evaluation. you may also bring anyone who you believe can help you and has knowledge of your child or your situation. You may also bring an Advocate (either volunteer or paid)
What you will do at the evaluation/classification is to decide if you child has a qualifying disability under IDEA regulations and then if it is impacting her education (FAPE). There are 2 components to education, academic and functional (developmental areas like motor skills, sensory adaptation, social skills, EF executive function and so forth). If either is impacted then she qualifies
You will get copies (which you can request ahead of time) of the scoring and results of the evaluation tools (you do not get copies of the actual evaluation notes or forms).
If you have brought up concerns about SPD then they should have evaluated for it since they are required to evaluate for all suspected disabilities and areas that have impact. Quite honestly with the motor skills, EF issues, sensory and the anxiety issue they should be evaluating her for Aspergers/ASD. This is especially true since you indicate anxiety related to social interactions. Most schools do not have the diagnostic "skills" to properly evaluate girls who are as young as your daughter for Aspergers so they may have to look to a specialized clinical group at a regional hospital for assistance.
If it looks turns out that she has the genetics related to Aspergers then congratulations, since you are blessed with a amazing gift and child who has an amazing potential to change the world for the better. OF course this is all contingent on getting the full supports that she needs to be comfortable in her educational (and societal at large) environment so anxiety does not become damaging, has the functional intellectual compensatory skills taught, that are missing with these genetics, and that her gifts and different style of leaning are respected and supported.
If you want to lean the basic about this area Get a copy of "The complete guide to Aspergers" by Tony Attwood which is available on Amazon for about $17. If it looks like this is a stong possibility also get a copy of Genius Genes by Fitzgerald and Obrien which is also available on Amazon. The third book I recommend is "perfect targets" which outlines one of the critical areas of damage that can happen with these children.
One other note is that if your anxiety interferes with your ability to be effective as the parent at the IEP meeting they must accommodate that under ADA (such as taking breaks so you can distress).
On rare occasions, when the school portion of the team is fully educated in IDEA and disabilities and focuses on meeting the needs of the child the IEP meeting are easy and go well, unfortunately this is the exception in multifaceted cased like you describe.
You can get local help from your states parent information center

http://www.wifacets.org/

I hope that helps a little,
Feel free to ask anything else

Bookwormde
__________________
bookwormde is offline   Reply With Quote
|
The DIS
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 02-25-2011, 07:02 AM   #3
Singledad
DIS Veteran
 
Singledad's Avatar
 
Join Date: Feb 2011
Location: Wisconsin
Posts: 1,233

Quote:
Quite honestly with the motor skills, EF issues, sensory and the anxiety issue they should be evaluating her for Aspergers/ASD. This is especially true since you indicate anxiety related to social interactions.
Actually, her anxiety is more related to the fine motor, "I can't do this" and the I am unsure what I should be doing with the stuff in front of me variety. I am the one with the social interaction troubles.

I have thought of in the back of my mind about ASD/PDD however she is 'missing' some pretty key 'signs' as far as I know. She is NOT repetitive. Not in body movements, not in play, I've not seen repetitiveness, not even in what her interests are. She also is great choas surviver. Changes in schedule/routine do not really phase her. if we switch things up, she is more woohoo something new. and finally, she has always been our little empath. She really can 'read' people.

from my research and obersvations, I'd guess she has the same/similar fine motor skill issues I have, SPD (she is a seeker.) and ADD inattentive type...

most of which there is family history of all over the place. both my side and her other parent side, including the parentals ourselves.

Well, I will learn more in a week, just wanted to know the basics of how this would work. Glad to know I can copies of scores/results. (I'll even let the manager type guy know I want them ahead of time. )

Quote:
Most schools do not have the diagnostic "skills" to properly evaluate girls who are as young as your daughter for Aspergers so they may have to look to a specialized clinical group at a regional hospital for assistance.
that is the issue I already had with the SPD request. I asked about Sensory Integration and Praxis Tests (SIPT)... and they said that the only person near that can give those is an hour and a half away, and they have found often that the information from it isn't 'helpful'. so instead they suggested Sensory Processing Measure (found the paperwork!). Which I went ahead and approved as an acceptable compromise. If the measure shows what I expect, I will push for the formal evaluation, SIPT.

Thanks again for the information!

Now to just wait a week when I want to know *now*.
__________________
Me (27): DD (5):

PTR June 2011 TR June 2011 Dis Dad's club member #594
Singledad is offline   Reply With Quote
Old 02-25-2011, 09:19 AM   #4
StephC1217
Mouseketeer
 
Join Date: Jun 2010
Location: Near Boston, Ma
Posts: 236

I'm not from Wisconsin so I dont know the state rules here but I can speak from the experience of a teacher of severe special needs, as well as a parent (my son receives speech therapy). In Ma, you receive a written eval of test results before the IEP meeting so you can read the results of testing prior. At my school, the district LEA is present, as well as the principal, teacher, therapists. When I went for my son, it was just the teacher who evaled him (he doesnt go to the school he was evaluated at) and a speech therapist. It will probably be around a conference table. Everyone will sign in and introduce themselves so you will know who everyone is. Then they will ask you what your concerns are as a parent (you should mention everything you said here so they will be able to address your concerns in the IEP). They will briefly go over the results of the testing, probably each person who tested will go over their results individually. They may do it more in depth for you if you did not receive the written results yet. They will talk about your child's strengths and interests. They will ask you where you see your child in the next 1-5 years (your vision for you child)- or at least they do in Ma. Each person involved (OT, Teacher, etc) will go over results of the testing, how your child is currently performing, what goals they would like to see your child reach over the next year- probably fine motor goals, maybe some social/behavior goals, whatever pertains to your child. They will tell you how often they want to see your child (the OT may want to see your child 1 or 2 times a week for 30 min). If you have any goals you would like to see your child reach- like getting dressed, or another fine motor skill, you should bring it up and they can add it to the IEP or let you know why or why not they can address it. It will be a fairly informal meeting and remember that YOU are a big part of it. Dont be nervous- make sure you bring up all concerns and questions you have. They are there to help you and your daughter. I know its easier said than done (I get very anxious in social situations and in IEP meetings- both as the parent AND as the teacher) But they are there for you. If you dont agree with something, bring it up. If you have concerns, bring them up. If you want to see something done for your daughter sensory-related, bring it up. If you want to have her tested for something, bring it up. The more involved you are, the better! Dont feel like you are being a pain for bringing up concerns or asking questions. Once the meeting is over, they will write up the final IEP- making any changes to it that need be. Then you read it over and sign it. Once you sign it, they are obligated to follow it by law- so make sure its what you want before signing it. But if you change your mind after, you can always call another IEP meeting. If you feel more comfortable with someone else there, feel free to bring someone. You can hire an advocate but they are expensive and since your are not anticipating problems, it is probably not worth it right now. If you and the school disagree then you may want to hire one. Good luck and if you have any questions, feel free to ask or shoot me a message!!
__________________
Me! (33) : DH (33) DS8

StephC1217 is offline   Reply With Quote
Old 02-25-2011, 09:48 AM   #5
jodifla

DIS Veteran
 
Join Date: Jan 2002
Location: South Florida & Motown
Posts: 10,721

Schools aren't often the best evaluators, unfortunately. They don't really look at the "whole" child either, just the part they need to get schoolwork done.

So I'd be prepared to know what you want, and to get outside evals if theirs sound all wrong. (Seriously, the people doing the evaluations sometimes don't even have the training to do it properly!!!!)

And don't be surprised if they try to slap an "educational autism" Dx on your child. In many states, that label comes with lots of extra cash behind it.
jodifla is online now   Reply With Quote
Old 02-25-2011, 10:54 AM   #6
Singledad
DIS Veteran
 
Singledad's Avatar
 
Join Date: Feb 2011
Location: Wisconsin
Posts: 1,233

thank you StephC1217 for a very clear idea of what the meeting may be like.

@jodifla sadly i know where you are coming from, but thankfully i do NOT see any of that as an issue at this school. I chose this school when she was still a newborn, because not only is some of the staff extended family members, and not only did it make a national top list for the high school (details escaping sleep deprived brain.) but it is also know as one of the better schools for taking care of not labeling kids if they don't need them, nor do they fight against you for getting you what the child needs. Heck, if I said that the SIPT was the only test i would accept, then they would have made the arrangements. The special education director/LEA guy just asked if it had to be SIPT or if we could do the measure first to make sure that they didn't waste not just the money to get the testing done, but my daughter's time as well. (my words not his. he explained his reasoning and waited for MY decision.)

but yeah, i understand the need to know what my wants are as well.

thanks again everyone!
__________________
Me (27): DD (5):

PTR June 2011 TR June 2011 Dis Dad's club member #594
Singledad is offline   Reply With Quote
Old 02-25-2011, 05:31 PM   #7
bookwormde
Heading out now, another adventure
Have a good time, WDW is a magical place
 
bookwormde's Avatar
 
Join Date: Mar 2008
Posts: 5,558

Girls are a different world, so that is why they are so hard to pinpoint.

In reality you have to educate yourself as to every possibility since you know your child much better than any clinicain will ever be able to.

Good luck at the meeting

Bookwormde
__________________
bookwormde is offline   Reply With Quote
Old 02-25-2011, 07:03 PM   #8
SmallWorld71
DIS Veteran
 
SmallWorld71's Avatar
 
Join Date: Feb 2007
Location: Eastern Massachusetts
Posts: 5,023

I am a special ed teacher from MA as well. My two biggest pieces of advise are:

1) Bring someone with you (spouse, sister, friend, someone who you feel comfortable with); it can be overwhelming to be at a meeting as the only one not from the school. It's nice to have someone with you to support YOU while you are supporting your child. Also, they may hear things/ remember things a little differently. I have also found the meetings to be more productive for whatever reason.

2) Remember that nothing is official until you sign it. And, even then, things are not set in stone and can be changed if it is deemed necessary.
__________________
me DH DS18 DS15 DD11 Zeke Coco

SmallWorld71 is online now   Reply With Quote
Old 02-25-2011, 07:14 PM   #9
LMC
aka 3senuf
I love my sorcerer mickey "dangler"
 
LMC's Avatar
 
Join Date: Dec 2000
Location: AL, USA
Posts: 1,721

Start writing down all your questions so you don't forget them. If you have private evals then they must consider those. Where I am that is all they have used in the past several years; they have not done their own testing. They have not followed those private recommendations, but they used them as their reference and said "we don't do that, we can't do that". So if Wisconsin is anything like here, you may hear alot of that. That is wrong. You have more rights than they want you to know. My sons attorney enlightened me last summer. They can not tell you we can't or we don't if it is a documented need. I had VERY good detailed documentation and recommendations they ignored for 5 years but we are on the tail end of getting that resolved.
You must be firm. DO NOT sign an IEP if you do not agree with it. Get up and leave. Do not sign anything at the beginning of the meeting. Here, they used to hand you a form at the beginning and it said "I have met and agree to this IEP", well, wrong how can you agree if you haven't even had the meeting yet! Well now the pre-meeting form just states who is in attendance. I read it word for word and then sign it. I don't sign anything based on what they tell me it says; I read it word for word. I don't care it we sit there for 2 hours while I read documents. I won't sign it if I have not read it or I don't understand it.
If you don't understand their language in the IEP have them re-write it in more plain language. Here they like to use confusing verbage and then tell you it says this or that and then later it doesn't say what they tell you it says but because it is worded so confusing you cant understand it.
Don't be intimidated to ask to have it re-phrased. I told our people last summer to write it so a 3rd grader would understand it. It was a little better but probably because I had an attorney. We still have to finalize some things in April because it didn't happen before January and I have a new job and can't get off work but I won't sign it if I don't agree and they have a resolution agreement at this point they must follow so I am not too worried about getting it resolved now.
Good luck.
LMC is offline   Reply With Quote
Old 02-25-2011, 07:20 PM   #10
SmallWorld71
DIS Veteran
 
SmallWorld71's Avatar
 
Join Date: Feb 2007
Location: Eastern Massachusetts
Posts: 5,023

Quote:
Originally Posted by LMC View Post
Here, they used to hand you a form at the beginning and it said "I have met and agree to this IEP", well, wrong how can you agree if you haven't even had the meeting yet!
Good luck.
That's insane! I have also heard people say that they signed IEP's during meetings. How is that even possible. Here, we have the meeting, then I (the liason) write the IEP and then send it to the director of spec. ed. for proofreading. We have 10 school days from the meeting to get it to the parent. They then have 30 days to read it over, see if changes need to be made and then return it to the school signed if they agree.
__________________
me DH DS18 DS15 DD11 Zeke Coco

SmallWorld71 is online now   Reply With Quote
Old 02-25-2011, 07:28 PM   #11
LMC
aka 3senuf
I love my sorcerer mickey "dangler"
 
LMC's Avatar
 
Join Date: Dec 2000
Location: AL, USA
Posts: 1,721

Quote:
Originally Posted by SmallWorld71 View Post
. They then have 30 days to read it over, see if changes need to be made and then return it to the school signed if they agree.
See to me THAT's insane!!! Here when you walk out it is DONE. You better know what you are signing because that's it. I know the schools lack resources but I was told NO and CAN'T so much (yes I have it recorded because it got to where I had to record our meetings!!!) that it was frustrating. A teacher event last spring led us to seeking help from a professional and she was dumbfounded by what she saw. It was bad. I really want this resolved without taking it further and I hope we get there but I am prepared to do what I have to, to make sure my child gets the services needed.
LMC is offline   Reply With Quote
Old 02-25-2011, 08:09 PM   #12
SmallWorld71
DIS Veteran
 
SmallWorld71's Avatar
 
Join Date: Feb 2007
Location: Eastern Massachusetts
Posts: 5,023

Quote:
Originally Posted by LMC View Post
See to me THAT's insane!!! Here when you walk out it is DONE. You better know what you are signing because that's it. I know the schools lack resources but I was told NO and CAN'T so much (yes I have it recorded because it got to where I had to record our meetings!!!) that it was frustrating. A teacher event last spring led us to seeking help from a professional and she was dumbfounded by what she saw. It was bad. I really want this resolved without taking it further and I hope we get there but I am prepared to do what I have to, to make sure my child gets the services needed.
Seems like maybe a happy medium is needed.

Anyway, good luck OP.
__________________
me DH DS18 DS15 DD11 Zeke Coco

SmallWorld71 is online now   Reply With Quote
Old 03-01-2011, 11:17 AM   #13
stace1214
Mouseketeer
 
stace1214's Avatar
 
Join Date: Jun 2008
Posts: 268

As a special education teacher, I have a few pieces of advice...
- Definitely bring someone with you. It can be intimidating to go into a conference room on your own. You'll not only feel more comfortable, but you'll have a second set of ears listening to all of the evaluations and recommendations being made.
- Make a list of questions as you think of them
- Don't be afraid to ask the evaluators to explain things. Test scores and what they mean can be confusing and not everyone will explain them in ways that can easily understood
- You are your child's very best advocate, if you're not happy with the IEP recommendations, speak up

I hope your first meeting goes well!
__________________
Me , DH , DS(4) , DD (1)
stace1214 is offline   Reply With Quote
Old 03-01-2011, 11:30 AM   #14
Disney4us2
Mouseketeer
 
Disney4us2's Avatar
 
Join Date: Sep 2010
Location: Granada Hills, CA 1hr from Disneyland
Posts: 130

Quote:
Originally Posted by jodifla View Post
Schools aren't often the best evaluators, unfortunately. They don't really look at the "whole" child either, just the part they need to get schoolwork done.

So I'd be prepared to know what you want, and to get outside evals if theirs sound all wrong. (Seriously, the people doing the evaluations sometimes don't even have the training to do it properly!!!!)

And don't be surprised if they try to slap an "educational autism" Dx on your child. In many states, that label comes with lots of extra cash behind it.
That happened to my DD when she was three. They did it to get her into a special pre-school program in the LAUSD school system. It turned out to be Auditory Processing Disorder. She has been in special ed classes since second grade. I hated going to those IEP meetings. It seemd like they were just picking your child apart. They did help though, she will be graduating in to middle school .
__________________
Marci
Premium AP Countless Saturdays at Disneyland
DVC owner at VGC

7/2005 All Star Movies
12/2006 All Star Movies
12/2010 ASMO/CBR
4/2011 POFQ
8/2011 AKL Kidani DVC

Next: 9/30-10/4 Staycation at VGC Trick or treat
Disney4us2 is offline   Reply With Quote
Old 03-01-2011, 11:37 AM   #15
SmallWorld71
DIS Veteran
 
SmallWorld71's Avatar
 
Join Date: Feb 2007
Location: Eastern Massachusetts
Posts: 5,023

Quote:
Originally Posted by jodifla View Post
And don't be surprised if they try to slap an "educational autism" Dx on your child. In many states, that label comes with lots of extra cash behind it.

I've seen this mentioned a few times on the DIS. I don't even know what that means. LOL To me, that's like saying educational diabetes etc... It's too bad that the system is set up to mislabel a child just for the purpose of getting money.
__________________
me DH DS18 DS15 DD11 Zeke Coco

SmallWorld71 is online now   Reply With Quote
Reply



Thread Tools
Display Modes Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

facebooktwitterpinterestgoogle plusyoutubeDIS Updates
GET OUR DIS UPDATES DELIVERED BY EMAIL



All times are GMT -5. The time now is 08:13 AM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.