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Old 09-03-2009, 09:58 AM   #91
ireland_nicole
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I have an eliptical at home at it has been good for me; It definitely is less impact than other machines, which I find helpful. Mind you, I am still only up to about 5 minutes at a time on it, but I've worked my way up from about 30 seconds. I use it at least a couple of times a day and I find that it seems to be keeping me a bit more limber. I also walk with a friend who has RA, so we don't get frustrated w/ each other when we only manage a few blocks or have to go slower sometimes. I used to do yoga, but can't fit it into my schedule right now. I have a Wii fit that I still need to try out. I also swim when I can but the pool needs to be heated, otherwise my muscles "seize up". I try to do gentle stretching, too in the mornings even though it hurts because it seems to make that tight painful feeling go away sooner if that makes any sense. I have also gained significant weight since my dx, and get frustrated, because I know that's making it worse, but I can't seem to lose any. It has leveled off, but I'm still up over 80 lbs.
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Old 09-03-2009, 12:06 PM   #92
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Hi Guys!

Beautiful day her in Pennsylvania I'm hoping to get some juice out of the good weather since last week was a nightmare for me. 5 straight days of continuous migraine. Every time I thought I might get it down to "just a headache" I would need to bend over to do something, the kids would yell, etc and I was right back to Ice packs and bed. Even increased my pain med's I was so desperate. I admit I sat on the couch and cried for about 10 min on day five. Just couldn't take it any more. All my kids now in school for first time (Including my big baby DH LOL) so I slept the first two days too tired to even be sad about the change. With the sleep and the weather changing things seem to be improving. Sorry to hear about your bad spell Brighteyes. If misery likes company than you had lots of comapny from me!
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Old 09-03-2009, 12:11 PM   #93
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Regarding the weight thing it is one of the hardest things to deal with. On a day I can appear "normal" I'm still not looked at the way I used to be because I'm fat. I too was 130lbs size 8-10. Like I have said before every crash brings 15-20 lbs. I'm now up 17 from May because I crashed after returning from Disney. I have been as low as 160 after my son was born. Last fall I had gotten up to OMG dare I say it 235 lbs! Then from Oct to May I had gotten out of a insomnia mode started using meletonin and losing a little weight . lost a total of 50 lbs. I got into a size 14 bathing suit for the first time in 6 years! People started to look me in the eye again. Ever notice how when your weight goes up to a size 16 or above people don't look at you the same as the did when you were a size 8 or 10? For me It is the sleep not the exercise or eating that causes weight gain.

I have a Pilate's Machine that I like and have tried on and off. I need support when I do exercises. When I'm good its great. however, when I'm bad I always have to decide what do I want more exercise or to take the kids to the park or watch a soccer game or go to a museum. I cant do it all so I use my daily activities as my exercise. My Dr told me to do that many years ago when I bought a treadmill. She warned me I would probably over do that and I may be better becoming more functionally active.
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Old 09-03-2009, 12:37 PM   #94
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Guess I really need to "talk" after the last week LOL!

As far ar the accepting my illness goes well that's a yes and no. I have learned to ride out most of my symptoms. I tell people its like being in childbirth. If you fight it the pain gets much worse if I use relaxation, imagery and creative planning of med's and energy I do better. I am very good at accepting that if we go to a museum I may need to leave early because I'm tired. We now become members of anyplace we like to go so the pressure is off of me to stay.

I do have great frustration with my weight, my memory/concentration issues and not being able to work because they affect how people look at me and how much I contribute to the world around me now. I come from a family with a Puritan work ethic. There is no excuse not work. to this day I'm always on the lookout for some career I can pursue when "I get on my feet". My husband used to call me Tigger because I bounced from one commitment to another without a misstep and I really miss those days. Most of all I really hate looking dumb and the memory stuff makes it pretty hard to look put together sometimes.

I have tried to look a the silver lining to all this. The only thing I have come up with is that I never would have been able to stay home with my kids if I didn't have the Fibro. While I have not been the Mother I have wanted to be I have been here for everything. I am hoping my kids will look back and not think about the days I yelled and was grumpy but at the fact that I was hear every day fighting to care for them and keep things "normal" As far as acceptance It does get easier but I think we need to get mad once in awhile to keep fighting. Getting mad for me is about being hopeful that I will get better someday and frustrated that its not right NOW! Hang in ther Brighteyes we know where your comming from!

Pain free vibes and Pixie dust to all!
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Old 09-03-2009, 02:25 PM   #95
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Quote:
Originally Posted by TLSnell1981 View Post
You may try to find a water aerobics class for arthritis patients. The water is warm and helps ease the pain. I started feeling better as I started to lose weight...it helped quite a bit. I rarely take pain meds as this adds to the weight issue.

I still get ticked at times. I try not to stress over it...makes it worse. They hardest part is that not many folks understand what we go though. I've had a pretty good summer, but the weather's changing and I've overdone it a bit. So, today I'm doing nothing. I've learned to read my body. I know I'm going downhill when I get irritable, my memory gets foggy and I'm tired, tired, tired.... Pace yourself, do what you can and then rest.

You're not alone!
I also agree with the water aerobics, I try to do them when ever I can, just go to a pool
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Old 09-03-2009, 02:27 PM   #96
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Quote:
Originally Posted by ireland_nicole View Post
I have an eliptical at home at it has been good for me; It definitely is less impact than other machines, which I find helpful. Mind you, I am still only up to about 5 minutes at a time on it, but I've worked my way up from about 30 seconds. I use it at least a couple of times a day and I find that it seems to be keeping me a bit more limber. I also walk with a friend who has RA, so we don't get frustrated w/ each other when we only manage a few blocks or have to go slower sometimes. I used to do yoga, but can't fit it into my schedule right now. I have a Wii fit that I still need to try out. I also swim when I can but the pool needs to be heated, otherwise my muscles "seize up". I try to do gentle stretching, too in the mornings even though it hurts because it seems to make that tight painful feeling go away sooner if that makes any sense. I have also gained significant weight since my dx, and get frustrated, because I know that's making it worse, but I can't seem to lose any. It has leveled off, but I'm still up over 80 lbs.
I can walk longer using the treadmill then the elipter is why I like it, I am like you, can only do about 5 minutes elipter vs 35-40 on the treadmill
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Old 09-03-2009, 08:41 PM   #97
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Thanks everyone for the replies and the support. I too feel I gained weight when my sleeping was at it's worst. I just feel so pathetic that I can't move for two days cause I washed my car. OMG are you kidding me? That is what I feel like. Being a single mom for my whole DS's life, I am pretty independent, so that really bugs me.

I would post pics from my first WDW trip to the second if I knew how. Just a span of 16 months. You all would be really shocked. I know I am overweight, but I can only see my stomach. So when I walk by a window and catch my reflection that is my reaction.

I have orthodics and even with those in I get shin splints if I walk less than a block and my calf muscles seize up, sometimes for days. I am hoping an elliptical will get me limbered up a little bit and lose the weight. My knees are in pain with the slightest movement.

Do you all find when you are having a bad flare of fibro fog, that you are swollen up. My eyes, my face, everything puffs out on those days. My employer was like "What happened to you?" So I got sent home.

All the best to you out there. I'm glad to know you can all relate, but sad that you all can relate.

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Old 09-03-2009, 08:46 PM   #98
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Quote:
Originally Posted by ireland_nicole View Post
I have an eliptical at home at it has been good for me; It definitely is less impact than other machines, which I find helpful. Mind you, I am still only up to about 5 minutes at a time on it, but I've worked my way up from about 30 seconds. I use it at least a couple of times a day and I find that it seems to be keeping me a bit more limber. I also walk with a friend who has RA, so we don't get frustrated w/ each other when we only manage a few blocks or have to go slower sometimes. I used to do yoga, but can't fit it into my schedule right now. I have a Wii fit that I still need to try out. I also swim when I can but the pool needs to be heated, otherwise my muscles "seize up". I try to do gentle stretching, too in the mornings even though it hurts because it seems to make that tight painful feeling go away sooner if that makes any sense. I have also gained significant weight since my dx, and get frustrated, because I know that's making it worse, but I can't seem to lose any. It has leveled off, but I'm still up over 80 lbs.
Do you mind me asking what type and model elliptical you have. I looked at some today but don't know which ones are good. I am short so I am sure that plays a role too in which kind to choose.

The front part of my ankle where my foot meets my leg already hurts from being on them today in the store. That was only a few minutes each one.

I know stretching helps I used to go to physio, but now t hat I've stopped stretching hurts, evne though I know it will help.

I didn't know if overweight people could do yoga.
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Old 09-03-2009, 09:09 PM   #99
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Yes I swell up with the heat ,fatigue and flares.I tried the flat belly diet and the sassy water was good for this but kind of a pain to make so I haven't been making it consistantly.

Toocheri how is your geutton free diet going? Has it helped with the water retenton?

Ireland nicole doent the eliptical hurt your hips? Mine hurt just thinking about it.lol

I will post the sassy water recipe next time I'm on my computer. Its easier to post plus I have to find recipe. May be a few days before I'm back on.
Pain free vibes and pixie dust to all!
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Old 09-03-2009, 09:47 PM   #100
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I just found this thread and am so glad I did!!

I have fibromyalgia also. It's been five years now and it took me a long time to accept the reality of it. When I finally did I realized that I could not do some of the things that I have always done, BUT there was still plenty of things that I could still do. I try very hard to just concentrate on that. Like all of you I have been to doctors, specialists, etc. and have tried different things. With me it's worse in the cold and when the weather changes. I get migraines too, although the hormonal ones stopped after I went through menopause. My migraines usually are related to weather and sometimes stress (which my doctor tells me to avoid, HA HA). I am not on any pain killers for the fibro, except exedrin migraine which helps. I also have high blood pressure and am on pills for that. I try to walk and exercise and that helps. I am constantly telling myself to keep putting one foot in front of the other and I have been able to do it, but know that a lot of people aren't as lucky as I am.

I loved reading everyone stories and hope and pray that all of you are well and get better and better every day. It really helps to know that you are not alone. Thanks for this thread. I will use my Disney ending...

Enjoy The Magic!!
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Old 09-04-2009, 12:06 PM   #101
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Originally Posted by tiggspring View Post
Yes I swell up with the heat ,fatigue and flares.I tried the flat belly diet and the sassy water was good for this but kind of a pain to make so I haven't been making it consistantly.

Toocheri how is your geutton free diet going? Has it helped with the water retenton?

Ireland nicole doent the eliptical hurt your hips? Mine hurt just thinking about it.lol

I will post the sassy water recipe next time I'm on my computer. Its easier to post plus I have to find recipe. May be a few days before I'm back on.
Pain free vibes and pixie dust to all!
I almost bought the flat belly diet book. Are you on the flat bellydiet? Does it work? I already drink a TON of water a day, usually 8-10 glasses day. I am already on my 6th glass and it's only 1:00. I do not go anywhere without my water.

My big thing that I cannot live without is my xlarge coffee a day. Only problem I have two large sugars and cream in that cofee.

I am on water retention pills. And the amitryptyline makes me sooo thirsty but the water pill makes me pee all day. lol
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Old 09-04-2009, 12:13 PM   #102
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I just found this thread and am so glad I did!!

I have fibromyalgia also. It's been five years now and it took me a long time to accept the reality of it. When I finally did I realized that I could not do some of the things that I have always done, BUT there was still plenty of things that I could still do. I try very hard to just concentrate on that. Like all of you I have been to doctors, specialists, etc. and have tried different things. With me it's worse in the cold and when the weather changes. I get migraines too, although the hormonal ones stopped after I went through menopause. My migraines usually are related to weather and sometimes stress (which my doctor tells me to avoid, HA HA). I am not on any pain killers for the fibro, except exedrin migraine which helps. I also have high blood pressure and am on pills for that. I try to walk and exercise and that helps. I am constantly telling myself to keep putting one foot in front of the other and I have been able to do it, but know that a lot of people aren't as lucky as I am.

I loved reading everyone stories and hope and pray that all of you are well and get better and better every day. It really helps to know that you are not alone. Thanks for this thread. I will use my Disney ending...

Enjoy The Magic!!

Welcome to the boards, we are all learning so much from each other. When no one else can relate to what we are going through, it is helpful to know there are others here to talk to.

It is true that you have to keep walking. My mother suffers from horrible migraines. I used to have hormonal migraines though not as bad. I found once I went on the depo for b.c. that it took my migraines away. Before that for 15 years I LIVED on ADVIL migraine. Now, no more migraines. I should have went on this years ago.

I think many of us suffer from high blood pressure. Mine has been creeping up for about 4 years now. About the time I started having my first FM symptoms.

The nurse where I used to work said that if you are in pain, it will raise your bp! On the days I am in a lot of pain, my bp skyrockets. I think FM and BP go hand in hand. Losing weight didn't help, quitting smoking didn't help, and they were at a loss as to why it didn't come down.

Wishing everyone a great weekend and pain free days
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Old 09-04-2009, 10:24 PM   #103
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Thank you so much for the warm welcome brighteyes. You know, you got me thinking. My high blood pressure started around the time my fibro started! Yes I had put it together in the past, but after reading your post it makes so much sense now. I also think that taking so much pain stuff hasn't helped either. When I was first diagnosed with firbo I was talking to someone who said it was strange that my firbo started right around the time that my husband was diagnosed with cancer. Coincidence? Maybe, but who knows.

Anyway, I hope everyone has a wonderful Labor Day Week-end. And a pain free week-end. Wishing I was still in WDW. I got back 8/25 and miss it already!!

Enjoy The Magic!!
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Old 09-04-2009, 11:52 PM   #104
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Ohh I am so jealous!! Hope you had a wonderful trip!

Well so many meds to can quicken your pulse. This summer one of my docs who was checking my blood pressure and not happy noticed my pulse has been quite high for some time. So on went all the cardiac tests, etc.

Turns out my heart is healthy, it's just all my meds make the pulse speed up. It's just such a pain - all the meds and all the tests.

But I am finally decluttering my roon, one paper at a time.
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Old 09-06-2009, 09:57 AM   #105
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A beautiful week here in PA! Yeaterday I had my first truly good day in a long time. Did a lot of running around and found a new dinning room table that we have need for several years at 80% off. Cant beat a day when you feel good and save money!
Brighteyes yes the flat belly diet did work somewhat for me even when the sleep thing was still going on. I also had minimal success with the fat flush diet. I could lose about 10-20 lbs on these which ment I yo-yo’d. when ever I crashed I gained 20. Dieted lost 20 which is frustarating as you know. That being said , these are the only diets that have helped me lose any weight. That was before I found the melatonin diet LOL! Basicly the olther two are low carb, no caffenine, no sugar diets. I seem to be very sensitive to carbs and since this eliminated about 95% breakfast foods I find it hard to stick them. I like the Flat belly diet because it includes what she calls mufa’s which includes things like nuts and chocolate with every meal. If I can eat chocolate it’s a good day.

Here is the recipie for Sassy water :
2 liters of H2O
1 tea fresh grated ginger root
1 medium cucumber peeled and thinly sliced 1 med lemon thinly sliced
12 mint leaves
I tend to put all the ingredients in a gallon of water instead of 2 quarts and let it steep longer. I use mint tea in place of the fresh since it can be hard to find fresh in good condition.

Nice to see you Disneymim

I've got a menapuse question for you. I'm perimenapusal and have never had PMS of any kind. In the last year I have noticed that the time of my cycle that many woman complain of PMS my Fibro is flaring more. especially the intestinal issues. DId this happen to you or is this another one of my personal fibro tricks?
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