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Old 04-01-2009, 08:56 PM   #16
KathyRN137
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Tracy,

Thank you (again!) for doing your part to "spread the word!"

It's so important for parents, teachers, uncles, aunts, grandparents... for everyone to realize that a small child may need early intervention if they are displaying unusual behaviors or developmental delays.

The earlier the intervention, the better the outcome!

Just like you and Bill, I will be forever grateful that Walt Disney World has such wonderful policies regarding accessibility and accommodation for those with both visible and invisible disabilities.


Kathy
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Old 04-01-2009, 09:10 PM   #17
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Originally Posted by DisMomAmy View Post
Thanks for posting that Tracy!! It brought tears to my eyes reading the last part that you added about kids behavior. There have been so many times that I've felt the need to explain Alex to people... he looks very much like his "typical" peers but can act so different sometimes. Thanks for bringing attention to the issue.
Hi Amy, you are very welcome . People need to understand that there are usually reasons why a child is acting out or not acting "normal", what ever the heck normal even is . Patience and tolerance is really needed in this world today.

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--------------------------------------------------------------------------------

Tracy,

Thank you (again!) for doing your part to "spread the word!"

It's so important for parents, teachers, uncles, aunts, grandparents... for everyone to realize that a small child may need early intervention if they are displaying unusual behaviors or developmental delays.

The earlier the intervention, the better the outcome!

Just like you and Bill, I will be forever grateful that Walt Disney World has such wonderful policies regarding accessibility and accommodation for those with both visible and invisible disabilities.


Kathy
Kathy, I hope you know how much Bill and I adore you and your family. You explain things so beautifully about dealing with Autism in WDW, you are so involved with helping Billy understand things and doing things to make him comfortable with his environment, you are such a great mommy. You are my hero .
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Old 04-02-2009, 12:23 PM   #18
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# 2 We are who we are

I figured it was about time to tell you a little about us since I rambled on and on about other people in the first installment. Bill helped me pick out pictures that give examples of how we really are.

First off is the 4 legged member of the family that has never been to Walt Disney World, will never go to Walt Disney World, and dislikes WDW. Bill can attest to the fact that if we mention the word “Disney” 8 times out of 10 you will hear a sigh, moan, or other noise come from this dog. Now it might be that we talk about Disney so much that it just coincides with his noisy nature, but we tend to think it is because we have left him 6 times in a little less than 3 years to go meet Mickey and the gang.

His name is Ace, he is a 4 ½ year old Jack Russell/Rat Terrier. He is funny, playful, neurotic, and scared to death of loud noises and thunderstorms. He doesn’t care what is going on with me when it thunders he climbs up in my lap, no matter if a lap top, book, etc, is there he doesn’t care he will step on top of it to get to me.

Mocking us:



Waking up from a weekend bender:



Being held hostage by my son:



Telling my son to shush:



Giving Bill that what are you doing? look:



Finally posing showing us how adorable he is:



Next up is my loving significant other, my spousal equivalent, my happily unmarried partner, Bill . He has Cerebral Palsy, is in a power wheelchair, has a speech impediment, can’t use his right arm-it has a mind of it’s own, and is the most intelligent person I know. He is finishing up his 4th college degree, a master’s in Rehabilitation Administration. What is the logic behind this? To have so much education people have to notice how smart he is and see past the darn chair, the speech impediment, and the right arm, to look at the MAN and give him a chance at a real job. He currently has a 3.83 GPA average, hopefully by the end of summer the classes will be completed.

Some pictures to show you Bill’s personality:

On the WDW train:



Not letting anything stop him from going to the parks:



Fun with Babs:



The look I get every time we have to leave Disney:



This man has a smile that melts my heart, blue eyes that can mesmerize, and a sense of humor that cracks me up every day.

Lastly, there is me, Tracy. I am Disney addicted, I admit it. Completely. utterly obsessed. I was one of those “it’s for kids” people before Bill practically dragged me there in Feb. 2006. I stepped foot on property, breathed in that Disney air, saw the magical decor and was captivated. It is so hard to explain exactly what it is that makes me long to be there all the time.

Perhaps it is because being there I don’t feel judged? I am very overweight, but working on myself. At WDW I am not worried about people looking at me and making assumptions, they have their vacations on their minds not worrying about what I look like. Perhaps it is because Bill says he feels more “normal” there. He can stay in his wheelchair for many of the rides and feels like he can participate, which makes my heart swell.

Perhaps it is the sense of fantasy, where the outside world doesn’t exist, or a million other reasons. All I know is I find WDW irresistible and will be going back year after year until I am not able to anymore. Before I started trying to lose weight I didn’t like pictures being taken of myself. This past year I have been more receptive when a camera is pointed my way, before I would run. Although, I have no idea why my eyes seem to bug out of my head when I try to smile, it totally is totally hilarious to me when I look at the pictures.

Here are some pictures of me that show what I become when I am at Disney:

MMM, I will act a fool to taste the wonder that is the Grey Goose Slushie:



Rockin my It’s Tough to Be a Bug glasses:



At MVMCP:



So that is us, a little odd, yes, but not dangerous, well maybe Bill just a little when he has been cut off for the 15th time wheeling though Disney. Please note there are more pictures of dog then there are of us because well we like him better and you will see more of us later in the TR if you are still hanging around by then. I hope you come along on the journey with us.

Next installment…Where are we staying and when?
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Old 04-02-2009, 12:52 PM   #20
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...I was wondering when you would get around to talking about yourself and your family!!!


I agree with Bill...we just feel so much more "normal" when in the World!! It really is magic!


Kathy
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Old 04-02-2009, 06:38 PM   #21
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Originally Posted by mrsksomeday View Post
In honor of the many Enchanted and DISer members with family or friends that have Autism I would like to bring attention to the fact that April is Autism Awareness Month.

- 1 in 150 individuals is diagnosed with autism, making it more common than pediatric cancer, diabetes, and AIDS combined.

- 1 in 94 boys is on the autism spectrum

- 67 children are diagnosed per day

- A new case is diagnosed almost every 20 minutes

- It occurs in all racial, ethnic, and social groups and is four times more likely to strike boys than girls.

- Autism impairs a person's ability to communicate and relate to others.

-It is also associated with rigid routines and repetitive behaviors, such as obsessively arranging objects or following very specific routines.

- Symptoms can range from very mild to quite severe.

- Autism is the fastest-growing serious developmental disability in the U.S.

- Autism costs the nation over $35 billion per year, a figure expected to significantly increase in the next decade

- Autism receives less than 5% of the research funding of many less prevalent childhood diseases

- Boys are four times more likely than girls to have autism

- There is no medical detection or cure for autism

For more information go to Autism Speaks

================================================== =============================================

Now a little note from me:

It is very important to remember in every day life and in WDW that just because a child is not behaving in what people might label as "normal" doesn't mean that child is spoiled, being a brat, or being loud. That child might have Autism and is coping with it they only way they can. So before judging a parent, a relative, a friend, a stranger or the child look past the behavior and think that there might be factors behind it.

Thanks for reading this.
H! I have always enjoyed reading along on your reports so I thought I would jump on this one too!

Thank you for posting this last part. It really is such a wonderful point ! It spoke to me so clearly because my son has been diagnosed with Sensory Integration Disorder and has difficulties with new places, loud places and new people. A couple weeks ago we went to a new restaurant with some of the moms and kids from my daughter's class. Well, DS had a meltdown, a major screaming kicking meltdown in the restaurant. I was so embarrassed and I know those people were thinking the things you posted above. *(that is a 4 year old and too old for tantrums) Eventually one of the mothers with me got him settled down by making a little mountain out of sugar and letting him play with it. (Big Sigh)

Thank you again. Looking forward to reading your report.
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Old 04-02-2009, 07:15 PM   #22
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I think you look fantastic & should post many more pictures of yourself! I'm glad you are feeling comfortable enough to at least post some though.

Love the picture of Bill in his poncho!
Thank you Amy for saying that . That picture of Bill has been the most commented on picture in any of my TR's .

Quote:
Originally Posted by KathyRN137 View Post
...I was wondering when you would get around to talking about yourself and your family!!!


I agree with Bill...we just feel so much more "normal" when in the World!! It really is magic!


Kathy
Hi Kathy, yeah I figured I better say something about us . There is nothing like the feeling of normalcy in WDW .

Quote:
Originally Posted by Dreamer & Wisher View Post
H! I have always enjoyed reading along on your reports so I thought I would jump on this one too!

Thank you for posting this last part. It really is such a wonderful point ! It spoke to me so clearly because my son has been diagnosed with Sensory Integration Disorder and has difficulties with new places, loud places and new people. A couple weeks ago we went to a new restaurant with some of the moms and kids from my daughter's class. Well, DS had a meltdown, a major screaming kicking meltdown in the restaurant. I was so embarrassed and I know those people were thinking the things you posted above. *(that is a 4 year old and too old for tantrums) Eventually one of the mothers with me got him settled down by making a little mountain out of sugar and letting him play with it. (Big Sigh)

Thank you again. Looking forward to reading your report.
Hello!! You are welcome. It really aggravates me when people sit in judgement of others. They need to just mind their own business, or if they have to think about what is going on at the other table or whatever, think about what could be behind the meltdown, instead of condeming the parents for it.
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Old 04-03-2009, 06:57 PM   #23
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Ok lurkers, this PTR has over 150 views, am I that boring that you have nothing to say after you read the oddness?

Come on you wanna say hi I know you do. Bill is a cutie, Ace is adorable, and I am goofy, so come on and join the fun already.
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Old 04-03-2009, 08:44 PM   #24
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I am here! I am here! (but I was NOT a lurker! ) so you will have to get onto the other 150 viewers! lol

Last edited by maroo; 04-03-2009 at 08:44 PM. Reason: to tell you I am not a lurker... :)
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Old 04-03-2009, 08:46 PM   #25
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I am here! I am here! (but I was NOT a lurker! ) so you will have to get onto the other 150 viewers! lol
The only thing I can figure is they read it and I bored them to sleep .
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Old 04-03-2009, 08:58 PM   #26
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The only thing I can figure is they read it and I bored them to sleep .
Maybe they are scared!

I talked to my cousin the other night and found out we have something in common. She is a major Disney fan. And I didn't even know it. We listen to the same podcasts. And... she... is also addicted to the DIS!!! Checks it daily.

I asked her what her user name is...

She doesn't have one!!! My cousin is a LURKER!!! Completely. Never posted. And spends hours on the DIS.

So maybe my cousin is one of your viewers. She won't come out and play!
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Old 04-03-2009, 09:21 PM   #28
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I know!!! That is what I said! She said she is scared to!

I talk too much not to post!
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Old 04-06-2009, 12:02 AM   #30
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# 3 Where to stay, who might come?

The dates were decided for us by the all mighty Buzz, aka Montana Disney Fan. Here he is last Ip Dip with his lovely and wonderful wife Linnie when they saw all of us for the first time:



They looked thrilled, didn’t they?? They actually knew we were coming, Buzz even made the ADR for that evening. Here they are while we are all talking and listening to Off Kilter:



This is the way I remember them and everyone else from that night, laughing and smiling. They (the Ip Dippers) are fantastic people, just amazing.

Jodi, aka jodster a member of the Fockers was there with her family, she might come again, I am hoping and praying she does. Here she is with me last year:



(pic stolen from someone that took it at Ip Dip)

She is a bright light in this world, has a warm brilliant smile and the sweetest soul, and she loves the COLTS!! Go Jodi!!

See why I want to go back?

We also get to meet some new people this trip. Here is Kym and her hubby Rob. She is a WDW fanatic and I love hearing about her trips!! Doesn’t it feel like you kind of “know” someone by reading about their WDW travels? I can’t wait to meet them:



We have some people that might come. Carrie was at Ip Dip last year. Her smile can light up the room, she is so sweet and kind. She says she might be able to make it this year. Here she is from last October, she is in the pink:



We are hoping many others will join us, 2 more people are coming so far if I am right and a couple more are trying to make the trip a reality. Once I get confirmation from everyone and permission I will give them a shout out.

The last 3 trips we have stayed at Pop Century. We like the place, the roll in showers are nice and big, the busses are dedicated so no sharing, and we don’t swim so the pools don’t matter to us. To me it is just a place to lay our heads. Bill on the other hand likes to try different resorts, etc. Scott kept mentioning Port Orleans Riverside (see subliminal messages again ). We had stayed there in Nov. 2006 on the Alligator Bayou side. Bill thought it would be fun to stay on the Mansion side and since he agreed to go to Ip-Dip I thought I could compromise on the resort choice. It is really pretty there, I just don’t think we will get to enjoy it much because we (well I) have plans, too many plans in fact. Scott was booked at Pop, but said he really wished he could do POR so with a little AP discount I suggested he book with us and then we could all stay at POR.

Oh goodness, some of you are probably thinking “Who the heck is Scott? He is Scottny on the DIS and Scott-loves-Disney on Enchanted. His love for Disney dare I say, rivals mine . He is my brother from another mother (Hi Scott ).

Here is Scott at Ip-Dip last October:



He is such a great guy, is so nice to everyone, and he cracks me up every day.


How do you fit in all this fun I have planned in 4 days and 3 nights? You don’t sleep!! Well not true, we have to sleep a little dang Bill wants to for some reason? We will get to Orlando before 11am, not sure as to when we will arrive at the resort, depends on how long MCO takes to bring Bill’s chair to him and how long it will take to get an accessible Magical Express bus to pick us up.

Here is the line up as I see it today (It will undoubtedly change many times, these things are being talked about daily):

Oct. 8, 2009: Drive to St. Louis, check into the hotel.

Oct. 9, 2009: St. Louis Airport to MCO. Check in at ME and take a bus to Port Orleans Riverside. Last time we had a problem with them not seeing that we needed an accessible room, so this time I called the special needs number directly, there is a lock/hold put on an accessible room in the Mansions section. I will call a couple of days to that number again and make sure they know we have to have a roll in shower room.

Here is where things will go one way or the other:

IF we can get into the room, we will freshen up, text with Scott to see where he is, take a boat to DTD and get lunch at T-Rex go back to the room and rest for a bit. Now I personally would rather grab a counter service at POR and lay down for a bit because we have MNSSHP that night and will have been up since about 3:30am that morning. Bill wants to see T-Rex so I am going.

IF we can’t get into the room, we will hope a bus to DHS look around and grab a counter service, with me obsessively calling until they tell us we can go to the room. Are you wondering why we aren’t just going to DTD either way? Personal care issues for Bill, if we don’t have the room we will make a stop at the First Aid station at DHS. We will then go back to the resort and get ready to meet the Enchanters for Mickey’s Not So Scary Halloween Party. We aren’t going to stay too late, I know Bill will be tired.

Oct. 10, 2009: Epcot, rope drop if possible. The lovely Enchanters say we might be meeting this day too and some even said they would help me load Bill into Test Track, he would love that if that would happen. There might even be an Enchanted lunch somewhere. I know some of them are going to be partaking in the Food and Wine Festival. I am just making a beeline for my Grey Goose Slushie goodness!! If we aren’t too tired we will watch Illuminations.

Oct. 11, 2009: Animal Kingdom day, Ip-Dip dinner that night and who knows what after that.

Oct. 12, 2009: Disney Hollywood Studios and departure day. We just want to hang out and watch the streetmosphere people, then back to POR for ME to pick us up. We have decided to spend the night in St. Louis so I am not driving at midnight or later to get home.

I am not going to plan out this trip like I normally do. There are too many variables involving other people. I am just going to take it as a fun trip and what ever we do, we do, what ever we don’t do we will do in December. Bill will love this touring style, but I reserve the right to be a trip planning Nazi for the December trip.

So that is it, that is the plan so far, so what the heck am I going to talk about for the next 6 months?

Next installment…We are going to a party so we have to dress up, right?

Last edited by mrsksomeday; 04-06-2009 at 01:05 AM.
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