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Old 03-19-2010, 12:51 AM   #136
honeydiane1953
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IF I didn't rent an ECV(outside source) while in WDW I could not go. When I buy groceries I lean on handle of grocery cart to reduce pain in back. I had spinal fusion surgery 5 yrs. ago. Although I am much better re pain I still have some pain, some days awful pain. I am in my fifties and some days r better than others. Next month my grown daughter and my granddaughter(2) and I will go to WDW. When I told my daughter how we will get on the rides quickly she said well I will feel guilty. After I explained the only way I could go would be to use an ECV she agreed and then all was ok. She was thinking since they didn't need consideration for easier access she didn't consider my HAVING to have easier access. So plz plz don't allow others to make you feel bad. love is all there is
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Old 03-19-2010, 08:47 AM   #137
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Originally Posted by honeydiane1953 View Post
IF I didn't rent an ECV(outside source) while in WDW I could not go. ... When I told my daughter how we will get on the rides quickly she said well I will feel guilty.
You should know that the ECV will not get you on rides any more quickly than usual. Every now and then you may get lucky and get on faster, but, by my calculations (based on the days when my DW has been able to park the w/c and wait in the lines) the average wait is longer when using a w/c or ECV.

Maybe this will help your daughter?

Have a great trip!
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Old 03-19-2010, 08:57 AM   #138
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Originally Posted by FIREKYMMIE View Post
... My son told me i was a guy trapped in a female body.. I am pooh sized now since i have not been able to exercise but It is to the point i have trouble sitting in my chair at work and walking. I am having problems excepting this but i know I will enjoy Disney so much more than I have in the past... Does anyone have any special advice for me about where and how to get around?
I'm sure if you've been reading around here, you've already figured this out, but just to make sure - rent your ECV from an off-site vendor. That way you don't have to depend on getting to a park in time to get one, and you'll have it to get to and from the busses. I've always used Walker Mobility, and they've always been great. One time my scooter died in the one of the parks, and they were there in under and hour with a new one. Their batteries seem to last forever, too. I've used their scooters for 16+ hours and it seems that the needle showing the charge level barely moves. I'm sure the scooters from other companies are probably just as good; I just don't have any experience with them.

Oh, and as a PS - I've always thought I was a gay man trapped in a woman's body! I wasn't a tomboy - I always like hanging with my gay male friends, LOL!

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...The hardest thing to do is parking them on the bus, so the more familiar you are with them the better...Most important... ENJOY YOURSELF!
Amen about parking them on the busses! And of course, I'm already self-conscious because of the people waiting to get on the bus. Some bus drivers are terrific about loading the EVCs, though, and that really helps!
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Old 03-19-2010, 11:57 AM   #139
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[QUOTE=JenniBugInPink;35893424]I'm sure if you've been reading around here, you've already figured this out, but just to make sure - rent your ECV from an off-site vendor. That way you don't have to depend on getting to a park in time to get one, and you'll have it to get to and from the busses. I've always used Walker Mobility, and they've always been great. One time my scooter died in the one of the parks, and they were there in under and hour with a new one. Their batteries seem to last forever, too. I've used their scooters for 16+ hours and it seems that the needle showing the charge level barely moves. I'm sure the scooters from other companies are probably just as good; I just don't have any experience with them.

Oh, and as a PS - I've always thought I was a gay man trapped in a woman's body! I wasn't a tomboy - I always like hanging with my gay male friends, LOL!

Hi have rented one for the whole trip threw Randys mobility.. They were very nice over the phone. I get in late monday , so they said to call monday night when i get my room # and the guy will be out at 8 am at my room with the EVC... I have used the ones in the stores on and off do to my knee surgerys and more recently cause i had done to much one day ...lol...
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Old 06-20-2010, 03:50 PM   #140
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Wow. Thank you for this thread. I read it all. My Dad rwas recently ill, and now will be need an oxygen tank for most part sof a day however long he lives (which I hope is a really long time!) . He can walk slowly for a few minutes at a time, but the days of him walking WDW for hours is gone. He is having a really hard time with this. He was trying to tell me he thought, if he rested lots, that he could manage without an ECV. "Where to put your tank, Dad?", I asked. "The stroller" was his reply. That is a man having a difficult time accepting his new reality. I want to scream "Your lungs are garbage now!" but I don't. I simply told him what was what and he sort of rolled his eyes. Thank you for helping me understand. I also had no idea that people commented about ECVs riders. That's crazy. That's evil. I never realized. I guess I will paint Dad's tank a nice orange color, and maybe the tubes in his nostril will keep the idiots at bay.
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Old 06-20-2010, 04:11 PM   #141
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Originally Posted by PajamaBagStitch View Post
Wow. Thank you for this thread. I read it all. My Dad rwas recently ill, and now will be need an oxygen tank for most part sof a day however long he lives (which I hope is a really long time!) . He can walk slowly for a few minutes at a time, but the days of him walking WDW for hours is gone. He is having a really hard time with this. He was trying to tell me he thought, if he rested lots, that he could manage without an ECV. "Where to put your tank, Dad?", I asked. "The stroller" was his reply. That is a man having a difficult time accepting his new reality. I want to scream "Your lungs are garbage now!" but I don't. I simply told him what was what and he sort of rolled his eyes. Thank you for helping me understand. I also had no idea that people commented about ECVs riders. That's crazy. That's evil. I never realized. I guess I will paint Dad's tank a nice orange color, and maybe the tubes in his nostril will keep the idiots at bay.
Just as a note, you can often get an oxygen tank holder put on an off-site scooter rental - just inquire at the rental companies, and one should be able to help you - better than balancing it in the stroller or on his lap!
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Old 06-20-2010, 04:31 PM   #142
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I know this thread is old but I wanted to say that I 100% relate to the OP. We are going to WDW in 3 months I have to rent an ECV or I won't be able to go. I was in a car accident almost 3 years ago and fractured my spine. We didn't know about the injury until 3 months later so it healed off and is pinching nerves. I also sustained a neck injury which has caused problems with both arms. On top of that I have arthritis in my knees and lower back. All of this happened 5 weeks after I had my daughter.

It has been hard and I worry about the looks I will get, the remarks I will hear, etc. I talked to my husband and he already said if anyone trys to make a remark he will put them in their place and to remember that if I don't use a ECV I will never be able to go. Then I wouldn't get to see my DD experiencing WDW for the first time. So....I will use one and try to ignore everyone else focus on my DD, because after all she is the only one who matters.
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Old 06-20-2010, 04:45 PM   #143
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I talked to my husband and he already said if anyone trys to make a remark he will put them in their place and to remember that if I don't use a ECV I will never be able to go.
Just warn you husband that if he tries to put others in their place he should do it with sweetness. No violence, threats or undisneylike language. This could get him in trouble. Or something like: "maybe you can be in an automobile accident also and have to spend the rest of your live in a wheelchair too".
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Old 06-20-2010, 06:30 PM   #144
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Just wanted to jump in and say "thank you" for bumping this thread up again. I am experiencing the same feelings. I'm just coming to terms with needing to use a cane at 25 years old. It's so ahrd for me to imagine having a Disney experience that wont be like the hundreds I've had before where I've literally skipped down Main Street USA. It's not that I think the EVC is wrong, and I completely understand that their purpose is to help enhance the experiences of guests (like me) who wouldn't normally be able to get around on their own. I guess I'm just looking at it as a sign of defeat right now. I've really deteriorated so much in the past 2 years that it's almost like it's happening to someone else. I feel like my body is trapping me inside. I know that there's no choice in the matter other than to get an EVC or endure horrible pain, but it still concerns me that my battle may be made worse by guests who just don't understand how devistating it is (mentally and physically) to have to arrive at the decision to use one.

I cannot thank the DISabilities community enough for being so incredibly supportive and helpful. You've all really helped eliminate some of my fears, and it's great being able to connect with others who share a common love of Disney, but also have a unique perspective of the magic it holds. Thank you, thank you, thank you!!!
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Old 06-20-2010, 08:26 PM   #145
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Originally Posted by MandyMaloo View Post
Just wanted to jump in and say "thank you" for bumping this thread up again. I am experiencing the same feelings. I'm just coming to terms with needing to use a cane at 25 years old. It's so ahrd for me to imagine having a Disney experience that wont be like the hundreds I've had before where I've literally skipped down Main Street USA. It's not that I think the EVC is wrong, and I completely understand that their purpose is to help enhance the experiences of guests (like me) who wouldn't normally be able to get around on their own. I guess I'm just looking at it as a sign of defeat right now. I've really deteriorated so much in the past 2 years that it's almost like it's happening to someone else. I feel like my body is trapping me inside. I know that there's no choice in the matter other than to get an EVC or endure horrible pain, but it still concerns me that my battle may be made worse by guests who just don't understand how devistating it is (mentally and physically) to have to arrive at the decision to use one.

I cannot thank the DISabilities community enough for being so incredibly supportive and helpful. You've all really helped eliminate some of my fears, and it's great being able to connect with others who share a common love of Disney, but also have a unique perspective of the magic it holds. Thank you, thank you, thank you!!!
The past 2 years have certainly taken it's toll on some of us. Seems like one day I was working at a job I loved, climbing stairs to my office, able to lift heavy bins..etc, then whamo.. I was laid off. About the same time I began having some serious health issues. I believe there's a reason for everything and have come to accept that someone bigger than I knew what was coming down the road.

I look at the availability of ECVs as a blessing. What wonderful technological times we live in to be able to have such freedom to go and do whatever I want without pain.
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Old 06-20-2010, 08:50 PM   #146
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Originally Posted by KPeveler View Post
Just as a note, you can often get an oxygen tank holder put on an off-site scooter rental - just inquire at the rental companies, and one should be able to help you - better than balancing it in the stroller or on his lap!
Yes, that is what I am planning, thanks to this site! He really told me he thought he could walk the whole time, and just put his tank in the stroller basket as tried to walk for more than a few minutes at a time....I see now that this is a whole new world, and I have to help him see it's not the end of the world. He can do what he loves, but in a different way.

I am blown away by this board. What an amazing resource...and as I read, I see it goes well beyond Disney.

I did tell my Dad that if he feels well, he can walk, it's fine. That seemed to help him imagine it. I don't know if he thought I was going to duct tape him to the unit...
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Old 06-21-2010, 12:13 PM   #147
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Originally Posted by bouncy54 View Post
The past 2 years have certainly taken it's toll on some of us. Seems like one day I was working at a job I loved, climbing stairs to my office, able to lift heavy bins..etc, then whamo.. I was laid off. About the same time I began having some serious health issues. I believe there's a reason for everything and have come to accept that someone bigger than I knew what was coming down the road.

I look at the availability of ECVs as a blessing. What wonderful technological times we live in to be able to have such freedom to go and do whatever I want without pain.
Boy, howdy, can I relate to your post. My story is quite similar, though I had been having medical problems for some time (back pain, foot pain, and a connective tissue issue foremost among the things that really interfered with my mobility) prior to losing my job last September after almost 16 years of working at the same place. Broke my heart! I loved what I did, and it was my whole identity. I had no warning - a new company bought us 2 years prior, and when they 'laid me off', it was the beginning of getting rid of about half of my department, starting with the highest paid folks first.

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Originally Posted by MandyMaloo View Post
...I am experiencing the same feelings. I'm just coming to terms with needing to use a cane at 25 years old...It's not that I think the EVC is wrong, and I completely understand that their purpose is to help enhance the experiences of guests (like me) who wouldn't normally be able to get around on their own. I guess I'm just looking at it as a sign of defeat right now. I've really deteriorated so much in the past 2 years that it's almost like it's happening to someone else. I feel like my body is trapping me inside. I know that there's no choice in the matter other than to get an EVC or endure horrible pain, but it still concerns me that my battle may be made worse by guests who just don't understand how devistating it is (mentally and physically) to have to arrive at the decision to use one.
I'm twice your age, but I hated having to use an ECV just as badly about 6 years ago when I had to do it for the first time. Right now I'm doing so badly that I'm having to use one at the grocery store, Lowe's (big hardware-type store), anywhere that I'll have to walk for any substantial distance or stand for any significant amount of time. It's aggravating, but I am grateful that they exist. Without them, I would be stuck using my grandmother's old wheelchair, and it weighs so much, I don't know how I'd get it in and out of the truck.
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Old 06-21-2010, 01:46 PM   #148
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I've been using an ECV at the stores for the past year. I tried to do a bit of shopping yesterday by just leaning on a cart. I wanted to check to see if I had gotten any better or worse. Got it done, but boy was I ever slo-o-ow at it. If I take teeny tiny steps I can endure the pain, but if I walk at a normal pace, the pain in my legs and back has me in tears. The stress from the pain gives me angina and arrhythmia which makes me short winded and I end up popping Nitro to open up those blood vessels. So I guess it's back to the scooter for my next shopping excursion.

This Degenerative Disk Disease really took me by surprise but I guess it shouldn't have. My mother had the same thing. I remember her saying her back ached all the time, but I thought it was connected with the disease that ended up taking her life.

So, all I can do is accept my limitations with a smile. We all have our crosses to bear... I just didn't expect to have to start bearing mine until I was a bit older.
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Old 06-21-2010, 03:42 PM   #149
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I have been using an ECV for major outings (Disney and other places like this) and for school for the last 2 years. I use a cane most of the time for walking any distances, but my feet are getting worse and the cane just isn't cutting it on my real bad days. I decided today that I needed forearm crutches with the hope that they will allow me to walk farther and longer than the cane does with less pain. I now have a set of these crutches. Trial walking has shown less pain. We will see how it goes later on longer walks.

I say if you need a device go ahead and get it or use it. If it gives you the freedom you need to have some semblance of your former life then use it. Forget what others might say. It is your life and you know what will make things easier for you.
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Old 06-21-2010, 03:48 PM   #150
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Originally Posted by MandyMaloo View Post
I'm just coming to terms with needing to use a cane at 25 years old... It's not that I think the EVC is wrong, and I completely understand that their purpose is to help enhance the experiences of guests (like me) who wouldn't normally be able to get around on their own... I know that there's no choice in the matter other than to get an EVC or endure horrible pain, but it still concerns me that my battle may be made worse by guests who just don't understand how devastating it is (mentally and physically) to have to arrive at the decision to use one.
The part I bolded, I wanted to comment on. I am as insecure and self-conscious as a person can be, and I always have been. HOWEVER, doctors diagnosed my condition as devastating. Social Security declared me 100% disabled without any problem. SO, should I possibly hear unkind comments from the able-bodied, I don't think about it for a minute, because I know my circumstances, and they don't, and anyways, I don't owe them an explanation.

Another way to look at those who make unkind comments is to relate it to something else. My sister has a dog that barks at everyone and everything. Arf, Arf, Arf, Arf, Arf. We all know this is ridiculous behavior and we don't pay attention to the dog noise. This is how you should see these people and their ignorant comments: Arf, Arf, Arf, Arf, Arf. Just like a dumb, stupid dog!!

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