Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Disney Trip Planning Forums > disABILITIES!
Find Hotel Specials & DIScounts
 
facebooktwitterpinterestgoogle plusyoutubeDIS UpdatesDIS email updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read





Reply
 
Thread Tools Rate Thread Display Modes
Old 07-19-2006, 10:19 AM   #1
Mom of 3
Mouseketeer
 
Join Date: Jun 2006
Posts: 195

Still trying to accept that I have to have a ECV...

I still get that niggly feeling in my tummy that I have to use a ECV to get around. I know I need to accept the fact but it's hard.

In my every day life I don't use a wheel chair because I can limit the amount of walking I do and if I'm having a bad day I can take it easy. I have Rheumatoid Arthritus and even though I can walk for a good couple of hours there is no way I could walk for an entire day around Disney.

Plus when you are at Disney and you park the ECV and walk to a regular seat or get up to stretch your legs you get those looks or comments from other people that don't see you as having a disability.

Hubby tells me to be sensible and just use the ECV because if I did over do it on my feet I really wouldn't be able to walk at all. The first time I ever went to Disney I refused to be in a wheel chair and walked around for most of the day even though my feet really hurt and by the end of the day I couldn't walk at all. I couldn't even make it from my bed to the bathroom without being carried.

I'm sure others that don't have an obvious disability or can do normal activities for a couple of hours before feeling tired or being in pain must feel funny about having to be in a wheelchair or ECV.

I suppose I'll get over it and make sure my 3 boys have a great time, DS10, DS6, and DS2.

Thanks for listening,

Anita
Mom of 3 is offline   Reply With Quote
Old 07-19-2006, 11:11 AM   #2
poohbear7
DIS Veteran
 
poohbear7's Avatar
 
Join Date: Sep 2001
Posts: 933

Please use an ECV. I know how you feel it took me a long time before I would admit I needed one. One time when we were at Disney I refused to use one and my family saw me stuggle. They went and rented one for me and brought it to me without me knowing. I had no choice but to use it and what a difference it made. I've never looked back I now take my own to Disney.
Don't worry about what others think by looking at me you would never know I have more than one disability. Go use the ECV and enjoy your trip it will make your trip a lot easier and enjoyable.
__________________





I've been BOOed
poohbear7 is offline   Reply With Quote
|
The DIS
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 07-19-2006, 11:51 AM   #3
Alex2kMommy
I'm going a little nutso myself (and Disney says I'm Goofy)and I dumped gracelessly butt-first into the pool
Who puts a hickey on an eyelid, for cryin' out loud?
 
Join Date: Feb 2006
Location: Washington State
Posts: 21,373

I'm so glad you are going to use an ECV at Disney! My mom is overweight and has bad ankles, and can barely make it through the grocery store. She was embarrassed by a doctor years ago when she asked what could be done about her ankles, and he snorted and told her to lose weight. She just recently (after much nagging on my part) asked for a 'disabled parking' tag for her car.

There are so many things that she just doesn't do anymore because she can't walk that far and doesn't want to use a wheelchair or inconvenience others. She misses out on so much, especially time with her kids and grandkids! I would love it if she would use an ECV and go to Disney, but she wouldn't even consider it.
Alex2kMommy is offline   Reply With Quote
Old 07-19-2006, 11:54 AM   #4
Alex2kMommy
I'm going a little nutso myself (and Disney says I'm Goofy)and I dumped gracelessly butt-first into the pool
Who puts a hickey on an eyelid, for cryin' out loud?
 
Join Date: Feb 2006
Location: Washington State
Posts: 21,373

I'm so glad you are going to use an ECV at Disney! My mom is overweight and has bad ankles, and can barely make it through the grocery store. She was embarrassed by a doctor years ago when she asked what could be done about her ankles, and he snorted and told her to lose weight. She just recently (after much nagging on my part) asked for a 'disabled parking' tag for her car.

There are so many things that she just doesn't do anymore because she can't walk that far and doesn't want to use a wheelchair or inconvenience others. She misses out on so much, especially time with her kids and grandkids! I would love it if she would use an ECV and go to Disney, but she wouldn't even consider it.

YOU, on the other hand, are going to have a great time with your family, and they will be so happy that you are with them and able to enjoy yourself, too!
Alex2kMommy is offline   Reply With Quote
Old 07-19-2006, 11:58 AM   #5
angelbaby29871
Mouseketeer
 
angelbaby29871's Avatar
 
Join Date: May 2006
Location: west lothian, Scotland
Posts: 165

i agree with poohbear7. it makes it easier and more comfortable to get round the world. i can get up and move around also and have heard some rude comments thrown at me but i just ignore them now. i have my reasons for using an ecv and its non of their business. i also have arthritus as well and its hard to get around sometimes especially on a holiday to wdw with your family. rent your ecv, have a great holiday and ignore those people ignorant enough to give you dirty looks and hurtful comments. Have a great vacation
__________________
angelbaby29871 is offline   Reply With Quote
Old 07-19-2006, 01:59 PM   #6
spiceycat
Own at BWV, VWL and BLT
It happens every night on the Bay Lake side
 
spiceycat's Avatar
 
Join Date: Oct 2000
Location: birmingham, Al
Posts: 36,927

mother can barely walk at all and she still claims she is not disability - she just has a problem walking.....

anyway my opinion of those people is they are just jealous. You had the far sight and the ability to get a ECV and they didn't....

all the WDW resorts have free wheelchairs - if you would rather do a wheelchair.

mother hates ECV, scooters and anything else powered,... so she has to be pushed....

so be sure and try out one first - before you rent one. some people can't (how about won't) learn to use one.

oh I am horrible today.
__________________
Pat J

spiceycat is offline   Reply With Quote
Old 07-19-2006, 07:44 PM   #7
Cheshire Figment
Friend of Figment
 
Cheshire Figment's Avatar
 
Join Date: Jan 2001
Location: Poinciana, FL (20 miles to WDW)
Posts: 38,457

Anita, welcome to disABILTIES!

I remember the first time I used an ECV at WDW. Judy told me it was a great relief for her since I did not have to stop every few hundred feet.

To really set your mind at ease, please ask yourself the following questions. Here are the suggested answers to go with them.

1. Are you disabled (even temporarily)? Yes.

2. Do the people you are travelling with, such as your family, know you are disabled? Yes.

3. Do you expect to meet anyone you know during this trip who may not know you are disabled. Probably No!

4. Do you expect to meet a bunch of people who you will probably never meet again in your life? Probably yes!

5. Is there any reason at all that you should care what these people think about you? Absolutely No!!

6. Will using a wheelchair or ECV make for a better vacation for you and your family? Absolutely YES!
__________________
41 WDW Stays Totaling 321 nights between 1987 and mid-2003. (When "commuting" from Northern Virginia.)

Now Working Part Time at Walt Disney World! (Guest Services/Ticket Sales)

A few very helpful links which are on DisBoards:
Everything About WDW Tickets and this one disABILITIES FAQs
Cheshire Figment is offline   Reply With Quote
Old 07-20-2006, 10:24 AM   #8
poohbear7
DIS Veteran
 
poohbear7's Avatar
 
Join Date: Sep 2001
Posts: 933

You said it very well Cheshire Figment I totally agree.
__________________





I've been BOOed
poohbear7 is offline   Reply With Quote
Old 07-20-2006, 10:48 AM   #9
schlepsnort
Family CEO, CFO
I want a farm, in the middle of nowhere, and a rifle
For a great workout, try wrestling a 92 lb. wet dog!
 
schlepsnort's Avatar
 
Join Date: Jun 2006
Location: Arizona
Posts: 794

Exclamation I know exactly what you mean

I'm 30 but have had RA all my life. I've had both hips replaced and my rt. ankle fused. I still have issues with my knees and other joints. I had a handicapped sticker that I used before my hips were done. I was actually verbally attacked by two senior citizens at the mall when they saw me park in the handicapped spot. I tried to explain my RA and was screamed at and was called many unkind names, I was only 18 at the time and walked with an obvious limp. They, like so many others assumed that because of my age there was no way I could be arthritic. Funny, I never knew arthritis came with an age requirement...
So anyway, I used to be rather timid and apologetic about not being "normal" and doing what is expected of my age group. I got tired of the looks and the sniping so I got rather in your face about it. Typically if someone shoots me a look I will shoot them one back and point to one of my more obvious scars (there are several) or a rather largely swollen joint that noone can deny, that's not normal and painful looking. And now I have a healthy collection of Arthritis related t-shirts that I've gotten from my own concoction or from doing arthritis walks to raise funds. I wear those when we go out to a place like WDW or even local fairs/amusement parks. That tends to cut down on the dirty looks and nasty comments.
My limp is even more noticeable now days and I tend to have tunnel vision just concentrating on getting to where I want to be and ignoring those around me.
I don't know if I will rent a chair while we are at the parks. We are only spending one day at MK and it's our last day so I might just go whole hog and take prednisone with me to help stave off the pain for that day. I haven't decided. My DH is very careful about suggesting a chair or ECV to me because he knows that I have a hard time accepting it as well. I had foot surgery about a year ago and I was so bitterly angry about using an ECV just to go grocery shopping but I had to do it. Otherwise DH would totally blow the grocery budget and we'd be eating all kinds of junk food! But honestly, if it starts getting too painful or all of my breaks start impeding on my kids having fun then I will break down and get an ECV and anyone who doesn't like it can stuff it in my opinion. Tolerance shouldn't be saved just for different ethnicities, it should also be for those of different abilities.
ok, off of my soap box now. After dealing with it for 30 years it's still a hot button topic for me.
Good luck, don't feel guilty, and stick your tongue out at those who make comments. It's not like you didn't have to wait any less time for the ride and they are just jealous of you anyway, who wouldn't like to ride around and save their legs?
__________________
Carol
Family CEO, CFO to 3 DS (8) (7) and (5)
DH is VP


They call it PMS because mad cow disease was taken

ASMu '06--Halloween Trip
ASMu '08--Family Therapy Trip
1st trip to Disneyland--Celebrate DS And Mommy 90lbs GONE


schlepsnort is offline   Reply With Quote
Old 07-20-2006, 01:55 PM   #10
Schmeck
Funny thing is now my 17 year old naps almost every day and so do I!

 
Join Date: Aug 1999
Location: Massachusetts Strong!
Posts: 8,492

Quote:
Originally Posted by spiceycat
all the WDW resorts have free wheelchairs - if you would rather do a wheelchair.
These resort wheelchairs are first-come, first-served - can't be reserved in advance, etc, and may be all in use at the time, so I wouldn't depend on getting one. It might be better to rent one from an offsite company if you want a wheelchair the entire trip.
__________________
July '13 - CBR Aug '14 - PC
Mar '13 - PC Aug '12 - PC (Best Trip Ever!)
Aug '10 - PC June '08 - ASMo (school trip)
Aug '05 - BC Aug '04 - PC, AKL
Oct '02 - AKL, POR May '99 - CBR
May '96 - CBR Dec '80 - offsite
Schmeck is offline   Reply With Quote
Old 07-20-2006, 05:27 PM   #11
Biscuitsmom31
Burn a candle to deal with the smell!
Oh yeah? Well, I'm DATING Insert Name
Doesn’t want to talk about uncle Fred's walnut tree
 
Biscuitsmom31's Avatar
 
Join Date: Jun 2005
Posts: 2,603

I've got RA too. My plan is to get a cortisone shot a week before we leave. I'm hoping that will get me through the trip.
__________________
Biscuitsmom31 is offline   Reply With Quote
Old 07-20-2006, 05:37 PM   #12
schlepsnort
Family CEO, CFO
I want a farm, in the middle of nowhere, and a rifle
For a great workout, try wrestling a 92 lb. wet dog!
 
schlepsnort's Avatar
 
Join Date: Jun 2006
Location: Arizona
Posts: 794

Smile Cortisone!

Yep, as much as it HURTS to get it it is so worth it when you do! I think I'll probably need one for my knee before we go. At least my rheumy usually sprays the beejesus out of the area for the injection with freezing spray so I don't feel it as much. I had to get several shots during my pregnancy into my hip thanks to bursitis. So not pleasant but afterwards I got weeks of relief.

I'm going the cortisone, Enbrel injection a day before we leave, and then bringing back up prednisone, motrin, and extra strength tylenol. At night at the resort I plan on soaking my 'old' body in a hot bath tub with muscle relaxing salts and then rubbing ben gay on anything that might possibly hurt.

And again, if I think I'm slowing the group down, I will get an ECV. I want memories of WDW, not of hurting and where I had to sit it out!
__________________
Carol
Family CEO, CFO to 3 DS (8) (7) and (5)
DH is VP


They call it PMS because mad cow disease was taken

ASMu '06--Halloween Trip
ASMu '08--Family Therapy Trip
1st trip to Disneyland--Celebrate DS And Mommy 90lbs GONE


schlepsnort is offline   Reply With Quote
Old 07-20-2006, 06:05 PM   #13
sleepingbeautymama
Aurorasparkle on VMK
 
sleepingbeautymama's Avatar
 
Join Date: Jun 2006
Location: Hoosier State
Posts: 1,248

Quote:
Originally Posted by Mom of 3
I still get that niggly feeling in my tummy that I have to use a ECV to get around. I know I need to accept the fact but it's hard.
Hi, I know how you feel. I am also trying to accept the fact that I will have to rent an ECV. I guess it's so hard because I don't want to be disabled and I feel like I'm too young to be disabled (in my 30s). I have fibro, CFS and PN so it will be virtually impossible for me to make it without an ECV. I don't know why it bothers me but I worry about the stares I may get because I don't look disabled at all. I also feel like I have to worry about my own dh who makes me feel like I should try without one. I think he's going to be more embarrassed than me so it makes it that much harder for me to accept when I can't get him to. I already have a special cushion I have to sit on for one of my disabilities and he's less than thrilled when I take it places. The one thing I keep telling myself though is...should I care about what other people think and it's not like I personally know them anyway and do I want to ruin my dd's first trip to Disney because I'm in so much pain that I end up staying at the resort. Good luck to you and I hope you enjoy your trip.
__________________

My highest fireworks score 7180 on 11-09-07


September 25-29 2006 Wilderness Lodge DD's first trip & our anniversary
September 24-28 1995 Dixie Landings (POR) Honeymoon
sleepingbeautymama is offline   Reply With Quote
Old 07-20-2006, 09:12 PM   #14
videogal1
Boogie Queen
Remember to pack the can opener
 
videogal1's Avatar
 
Join Date: Jul 2003
Location: Texas
Posts: 3,110

You should remember, when people are giving you THAT look, that you don't have to be disabled at the level required by the definition of the ADA in order to use an ECV. Good grief, if that were the case, the on- and off-site medical vehicle rental companies would go broke. Many people who do not qualify as disabled under the ADA rent ECVs and wheelchairs to accomodate their medical conditions...a fact that the more judgemental element of WDW vacationers seems to forget.
__________________
Lynda (often critical of Trolls and other frauds), Service Dog, Cash (R.I.P. 4/2013) Heidi, the princess, (5 yrs. old) and Luke (9 tears old), who is back from a 3-year retirement.
Premier Dis cruises July, Sept. '90, Disney village
Freewheelin' AKL Safari and cruise May '04
Inaugural 10-day Holiday Magic December '04
Inaugural Westward Repositioning cruise May '05
Service Dog Training cruise (HAL) November '04
BWI, BC, AKL, POP, POR, Poly, Sequoia (DLP) between '93 and 2003.
videogal1 is offline   Reply With Quote
Old 07-21-2006, 01:23 PM   #15
starflower
Mouseketeer
 
starflower's Avatar
 
Join Date: Mar 2006
Location: Atlanta
Posts: 86

Quote:
Originally Posted by Mom of 3
I still get that niggly feeling in my tummy that I have to use a ECV to get around. I know I need to accept the fact but it's hard.

In my every day life I don't use a wheel chair because I can limit the amount of walking I do and if I'm having a bad day I can take it easy. I have Rheumatoid Arthritus and even though I can walk for a good couple of hours there is no way I could walk for an entire day around Disney.

Plus when you are at Disney and you park the ECV and walk to a regular seat or get up to stretch your legs you get those looks or comments from other people that don't see you as having a disability.

Hubby tells me to be sensible and just use the ECV because if I did over do it on my feet I really wouldn't be able to walk at all. The first time I ever went to Disney I refused to be in a wheel chair and walked around for most of the day even though my feet really hurt and by the end of the day I couldn't walk at all. I couldn't even make it from my bed to the bathroom without being carried.

I'm sure others that don't have an obvious disability or can do normal activities for a couple of hours before feeling tired or being in pain must feel funny about having to be in a wheelchair or ECV.

I suppose I'll get over it and make sure my 3 boys have a great time, DS10, DS6, and DS2.

Thanks for listening,

Anita
I'm right there with you Anita. I also have RA and have only recently (this year) developed problems walking and standing. My fiance and I are going to Disney World in a couple of weeks and I'm fighting with myself about getting an EVC. I know I really should do it, but there's such a large part of me that is worried about all the things you mentioned, as well as a part of me that feels so helpless and frustrated at having to use an ECV at all. I have arch and ankle braces, and I'm tempted to use them for a half day at one of the parks before trying to take on a full day.

-Joie
__________________
starflower is offline   Reply With Quote
Reply



Thread Tools
Display Modes Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

facebooktwitterpinterestgoogle plusyoutubeDIS Updates
GET OUR DIS UPDATES DELIVERED BY EMAIL



All times are GMT -5. The time now is 05:01 AM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.

You Rated this Thread: