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Old 10-14-2014, 05:31 PM   #3016
angwill
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Originally Posted by Holly Quinlan View Post
Hello everyone! sorry for the long post! I've been putting off getting checked out but think I'm finally going to schedule an app with my PCP.
My main symptom is excessive hair loss I don't even know how to describe how bad it is I just chopped it all off the other day. Also I'm only 26 and I'm willing to bet that I'll be fully gray with in the next few years. I've been getting hot more than usual and the last few times I've randomly checked my temp I've had a low grade fever(normal for me was around 97.7) I've always been a laid back person and never worried about anything but now I feel nervous/restless all the time causing my heart to feel like its about to pound out of my chest. dry skin around all my joints and random pains in my legs/arms. Does this sound like a thyroid issue?

What symptoms did you have that caused you to get checked out and how long did you have them before you were checked?
Your message is short. Are you used to Twitter? lol Your symptoms do sound like thyroid and a lot of times it is beauticians when cutting a persons hair that notice when someone has thyroid issues. I lose hair even being medicated if I am too far to one end or the other of suggested levels for TSH. I just added Cytomel a T3 med to my levothyroxine and am finally growing my hair back. I have a whole lot of about inch long hair sticking up. lol I too always ran a low grade fever when on the hypo end of the numbers but on the hyper my body temp regulates more and my body can handle the change in temps otherwise I am freezing all the time and running a low grade fever. Anxiety and heart pounding can happen too. Dry skin is typical so keep it hydrated every day so it doesn't get too bad. The joint pain could also be your vitamin D going low along with your thyroid so ask them to check calcium and vitamin D that are regulated by the thyroid. Good luck and let us know how it goes.
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Old 10-16-2014, 01:50 PM   #3017
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Originally Posted by angwill View Post
Your message is short. Are you used to Twitter? lol Your symptoms do sound like thyroid and a lot of times it is beauticians when cutting a persons hair that notice when someone has thyroid issues. I lose hair even being medicated if I am too far to one end or the other of suggested levels for TSH. I just added Cytomel a T3 med to my levothyroxine and am finally growing my hair back. I have a whole lot of about inch long hair sticking up. lol I too always ran a low grade fever when on the hypo end of the numbers but on the hyper my body temp regulates more and my body can handle the change in temps otherwise I am freezing all the time and running a low grade fever. Anxiety and heart pounding can happen too. Dry skin is typical so keep it hydrated every day so it doesn't get too bad. The joint pain could also be your vitamin D going low along with your thyroid so ask them to check calcium and vitamin D that are regulated by the thyroid. Good luck and let us know how it goes.
Thank you! My post looked much longer wren I was typing it out. I have an appointment with my PCP tomorrow afternoon so hopefully soon I can get some answers.

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Old 10-16-2014, 02:22 PM   #3018
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After 17 days in Orlando, I fly back home tonight.

I should have a higher Vit D level with all the sun I have taken it.
Never missed a dose of my ergo while here.

Hope all of you are fine
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Old 10-16-2014, 09:56 PM   #3019
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I got some bad news the other day. I started hemorrhaging so went to gyne and they did a uterine biopsy and I found out I now have endometrial aden carcinoma. I am going to have to research if that is a cancer that can happen after thyroid cancer. Does anyone here recall hearing that? I remember breast was one for sure.

Thanks,
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Old 10-16-2014, 10:11 PM   #3020
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I got some bad news the other day. I started hemorrhaging so went to gyne and they did a uterine biopsy and I found out I now have endometrial aden carcinoma. I am going to have to research if that is a cancer that can happen after thyroid cancer. Does anyone here recall hearing that? I remember breast was one for sure. Thanks, Ang
So sorry to hear that, Ang. Hopefully it was caught early and you will be fine. Prayers for you!

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Old 10-16-2014, 11:36 PM   #3021
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So sorry to hear that, Ang. Hopefully it was caught early and you will be fine. Prayers for you!

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Thanks for the prayers. Yeah, uterine is one that makes sure you know it's there when it is right away so I am sure it's early. I always wondered why they say thyroid is an easier cancer because hypohell was no picnic for me so I guess I will be finding out if other cancers with chemo and radiation are any worse.

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Old 10-17-2014, 03:57 PM   #3022
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ang - I am so sorry to hear that you are going through this. Lots of prayers coming your way.

I dont know if I have heard that, but I did think I heard about breast cancer and I have read I have a higher chance of getting leukemia.

I had some issues post op, first was instant menopause and then I cant remember when but I too started getting terrible cramps and bleeding that was scaring me because of the instant surgical menopause as they called it.

The ob/gyn I went to did some testing. I dont think she did an actual endometrial biopsy. Just a pap and internal sono. She concluded that sometimes our bodies just go through things like this and there was nothing wrong. I havent had any more incidents like that yet again, but if they happened they wouldnt surprise me.

I hope your dr and car team get a good treatment lan in pace for you so you can get the best treatment possible.

Hang in there! You have already proven what a strong fighter you are! We are all here for you
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Old 10-17-2014, 04:39 PM   #3023
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I got some bad news the other day. I started hemorrhaging so went to gyne and they did a uterine biopsy and I found out I now have endometrial aden carcinoma. I am going to have to research if that is a cancer that can happen after thyroid cancer. Does anyone here recall hearing that? I remember breast was one for sure.

Thanks,
Ang
i don't know anyone that has gone thru that after the surgery you have had prior but can say you are in my prayers.

thinking of you.
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Old 10-17-2014, 07:52 PM   #3024
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Thanks. Researching it I found quit a group of people who have had the same but nobody's doctors feel they are related to one another. Although it does tend to grow because of excess estrogen which is created by the same system that makes our thyroid function so it does make me wonder.

Had my mamo in May and thank God don't have to worry about that one. Although it would be a lot less invasive if I had the choice to switch I suppose but that's not how it works.

LMP, My gyne thought my bleeding and early menopause was most likely caused by my thyroid when I went in for the biopsy. It was the day after my first thyrogen shot in April that I got my bad cramps and serious bleeding and I natually blamed it on the meds then.

I am having to travel a couple of hours for treatment since there are not Gyn/oncologists anywhere near me. I am hoping they are good and have a friend in the medical field checking them out for me. I am like I was with my thyroid though and just want the crap out of me. Only then will I feel better.
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Old 10-18-2014, 07:01 AM   #3025
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angwill,

I'm sorry to hear your news and that you have to deal with yet another cancer. It sounds like you are taking the bull by the horns and you're getting your plan in place on how to tackle this and that's the good news. And if there is ever any "positive" things about this for you, it's that you have had the experience dealing with one cancer already. You know what you have to do, mentally, and you have already learned from thyroid cancer that you need to be your own medical advocate.

I think that's a huge learning curve for most people when the are first diagnosed with any cancer and it takes them a long time until they get medically savvy about their condition.

Please know that we are all pulling for you and please keep us updated on this even though it's a thyroid thread!!!
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Old 10-18-2014, 12:21 PM   #3026
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angwill,

I'm sorry to hear your news and that you have to deal with yet another cancer. It sounds like you are taking the bull by the horns and you're getting your plan in place on how to tackle this and that's the good news. And if there is ever any "positive" things about this for you, it's that you have had the experience dealing with one cancer already. You know what you have to do, mentally, and you have already learned from thyroid cancer that you need to be your own medical advocate.

I think that's a huge learning curve for most people when the are first diagnosed with any cancer and it takes them a long time until they get medically savvy about their condition.

Please know that we are all pulling for you and please keep us updated on this even though it's a thyroid thread!!!
Thanks Christine. You are so right that we have to really become medically savy for our own benefit which is sad because we pay the so called specialists so much money it should be covered in the cost. lol Yeah right. I certainly learned why I was always so level headed and the one family dumped all the major problems on to fix. I was in training for my own health war. I deal with the emotional issues after the fight is over.

I am so glad I brought it here because friends and family tend to treat these things with pity but other cancer warriors know how to not do that but instead to instill strength. Thanks everyone.

Ang
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Old 10-21-2014, 10:01 AM   #3027
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After 17 days in Orlando, I fly back home tonight.

I should have a higher Vit D level with all the sun I have taken it.
Never missed a dose of my ergo while here.

Hope all of you are fine
I am just getting back into this thread...I have the issue of low blood calcium and I understand completely about leg and abdomen cramping...I get mine in my ribs and sometimes it gets so bad, that I look like I am just rustling around. My endo can't believe I am not going to the hospital with my levels being around 6.5. My PCP thinks that my parathyroid hasn't been working for longer than having it removed since it was being crushed from my thyroid. I take Rocaltrol for vitamin D and I also have a liquid I take (calcium carbonate...aka Milk of Magnesia). I don't take that as regular as the Rocaltrol because the taste of it bothers me. I also have a large supply of Tums handy.
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Old Yesterday, 02:08 AM   #3028
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I am just getting back into this thread...I have the issue of low blood calcium and I understand completely about leg and abdomen cramping...I get mine in my ribs and sometimes it gets so bad, that I look like I am just rustling around. My endo can't believe I am not going to the hospital with my levels being around 6.5. My PCP thinks that my parathyroid hasn't been working for longer than having it removed since it was being crushed from my thyroid. I take Rocaltrol for vitamin D and I also have a liquid I take (calcium carbonate...aka Milk of Magnesia). I don't take that as regular as the Rocaltrol because the taste of it bothers me. I also have a large supply of Tums handy.
Low calcium is very serious. From what I was told before my surgery is it can effect the heart muscle if it is too low. I am glad you are seeing someone for it and I hope they get those levels up. I take OTC calcium pills with vitamin D. Ask your doctor about taking tums as often as you do. I can't remember where I heard that it shouldn't be taken daily but it could be bad info too.
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Old Yesterday, 01:56 PM   #3029
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Low calcium is very serious. From what I was told before my surgery is it can effect the heart muscle if it is too low. I am glad you are seeing someone for it and I hope they get those levels up. I take OTC calcium pills with vitamin D. Ask your doctor about taking tums as often as you do. I can't remember where I heard that it shouldn't be taken daily but it could be bad info too.
When I left the hospital after my surgery taking 20 Tums a day...After I got on the meds, I just keep the Tums around for when I feel when I am low. I get a tingle in my cheeks and my thumbs will start tightening. My PCP thinks that my parathyroid was damaged way before my thyroid was taken out. When my endo checks me every 3 months she is amazed how my body has adapted.
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