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Old 03-29-2014, 08:55 PM   #2041
rosanab1031
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Originally Posted by DisneyJillian18 View Post
I haven't found he has helped me yet, in fact when I leave I am normally in more pain. But I was going to give him a shot. I had my mother do the spit test, and her results were the same. He told me that a normal persons would just sit on top of the water. I don't feel like the refined sugar was giving me pain, and since stopping eating it, I am still in pain, so there you go. What doctor do you see? Thank you for your help!
This was the case for me as well for some time. It hurt more than it helped with the pain but I found a chiropractor that I absolutely LOVE now. She is awesome! She actually does some massage first to warm up the muscles. I actually enjoy my visits now and feel so much relief. I try to go at least once every other week.

I am not a medication person either. I take some ibuprofen when the pain gets bad and some vicodin if the pain gets REALLY bad. But that's it.

I also go to accupuncture which I have found to be very beneficial now that I have found the right one I have muscle damage in my left shoulder from a car accident and the cold has had me in agony. Went for my first appointment with this new guy yesterday and the pain was gone! Of course it is back today because sleeping is just painful. Lol. I'm doing two sessions a week for now until the relief lasts longer then we can cut back.

I has an issue with my last accupuncturist who was just constantly pushing his home made herbal supplements on me. I decided to give them a try but they made me feel icky I told him they were upsetting me stomach and he was like... "Oh... well keep taking them". That was the last time I saw him! Lol.

Hope that helps!

As for me, things are pretty normal. I started doing yoga again and have definitely felt better. I go to a class called Yin Yoga which is extended holds of stretches. Very uncomfortable while you are practicing but the after effects are A-MAZING! I always feel so good walking out of that class Plus, I started working there 4 hours a week so all my classes are free! It's glorious! Haha. Work is killing me. Trying to get my own business off the ground to make some extra money. Maybe I will make enough some day to live off of. So if anyone in SoCal needs a makeup artist I'm your girl! Lol. Also going back to school to get my esthetician license so I can do facials and stuff I'm really excited.

Hope everyone is doing better. Read everyone's updates and I am very sorry for what so many of you have had to go through this winter

Much love and many pain free hugs to all
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Old 03-29-2014, 11:23 PM   #2042
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Quote:
Originally Posted by DisneyJillian18 View Post
I haven't found he has helped me yet, in fact when I leave I am normally in more pain. But I was going to give him a shot. I had my mother do the spit test, and her results were the same. He told me that a normal persons would just sit on top of the water. I don't feel like the refined sugar was giving me pain, and since stopping eating it, I am still in pain, so there you go. What doctor do you see? Thank you for your help!
I see many..... I would say my primary is my Rheumatologist, he really is amazing.. Understanding, kind, and he believes me, and tells me I am not crazy...
I also have had a few brain surgeries, so the Neuro's are always in their too..

Rosanb.. Awesome on the yoga.. I hear SOOO many wonderful things, I wish I could go.. Maybe one day I will get the all clear, but I am SUPER excited for you I wish I did live nearby, I most certainly would.
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Old 03-31-2014, 08:44 AM   #2043
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Quote:
Originally Posted by rosanab1031

This was the case for me as well for some time. It hurt more than it helped with the pain but I found a chiropractor that I absolutely LOVE now. She is awesome! She actually does some massage first to warm up the muscles. I actually enjoy my visits now and feel so much relief. I try to go at least once every other week.

I am not a medication person either. I take some ibuprofen when the pain gets bad and some vicodin if the pain gets REALLY bad. But that's it.

I also go to accupuncture which I have found to be very beneficial now that I have found the right one I have muscle damage in my left shoulder from a car accident and the cold has had me in agony. Went for my first appointment with this new guy yesterday and the pain was gone! Of course it is back today because sleeping is just painful. Lol. I'm doing two sessions a week for now until the relief lasts longer then we can cut back.

I has an issue with my last accupuncturist who was just constantly pushing his home made herbal supplements on me. I decided to give them a try but they made me feel icky I told him they were upsetting me stomach and he was like... "Oh... well keep taking them". That was the last time I saw him! Lol.

Hope that helps!

As for me, things are pretty normal. I started doing yoga again and have definitely felt better. I go to a class called Yin Yoga which is extended holds of stretches. Very uncomfortable while you are practicing but the after effects are A-MAZING! I always feel so good walking out of that class Plus, I started working there 4 hours a week so all my classes are free! It's glorious! Haha. Work is killing me. Trying to get my own business off the ground to make some extra money. Maybe I will make enough some day to live off of. So if anyone in SoCal needs a makeup artist I'm your girl! Lol. Also going back to school to get my esthetician license so I can do facials and stuff I'm really excited.

Hope everyone is doing better. Read everyone's updates and I am very sorry for what so many of you have had to go through this winter

Much love and many pain free hugs to all
I wish you the best with your business, I know what you mean with work. I can't find anything that I can do comfortably! Currently have a desk job, sitting for 8 hours a day is killing my back! I wish we had yoga where I am. I live in a small town! I have practiced at home at did like the results! Might have to find the time to squeeze that in!
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Old 03-31-2014, 09:09 AM   #2044
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Originally Posted by mommasita

I see many..... I would say my primary is my Rheumatologist, he really is amazing.. Understanding, kind, and he believes me, and tells me I am not crazy...
I also have had a few brain surgeries, so the Neuro's are always in their too..

Rosanb.. Awesome on the yoga.. I hear SOOO many wonderful things, I wish I could go.. Maybe one day I will get the all clear, but I am SUPER excited for you I wish I did live nearby, I most certainly would.
I did try a Rheumatologist, she simply told me to deal with the pain. I need to try to find a good one!
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Old 03-31-2014, 11:19 PM   #2045
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Originally Posted by DisneyJillian18 View Post
I did try a Rheumatologist, she simply told me to deal with the pain. I need to try to find a good one!
I so agree. I so one very near to my house, and he had ME believing I was just about crazy..

Any good Dr is so hard to find, but I find these all the more so... I hope you can find one..
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Old 04-06-2014, 03:35 PM   #2046
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Hi everyone:

Welcome to our new people. Happy to have you with us.

I used to see a chiropractor years ago before I got real bad, and he was pretty good; helped with my back and neck and shoulder pain. I haven't gone to one since but maybe I should try again.

So I'm not working. I'm a mess right now, physically and mentally. Everything hurts, I have extreme weakness, and I'm lethargic.

DH booked us on next year's west-bound panama canal cruise, for our anniversary, especially since we canceled the cruise that we were going on this fall. I hope we go on that cruise. It's 14 nights, with 8 sea days, which we find so relaxing.

Anyway, I hope everyone is ok. I've been trying to keep my mind off of my aches and pains and depression by looking up the ports that the cruise will go to and reading people's trip reports. It's hard to keep my brain focused for more than a little while, so I've been bookmarking a lot of sites.

Hugs and pixie dust to everyone.
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Old 04-09-2014, 12:16 AM   #2047
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SeaSpray: So sorry to hear what you are going through.. It will get better. I hope you get to go on that cruise too!! It is fun planning isn't it?

I need a vacation, and am looking, but with all the renovations, it is has to be a la cheap..

So it seems I am always complaining.. My Aunt who I love dearly had an aneurysm burst Saturday and had a stroke.. My cousin (her daughter) is a singe Mom to two and needs to work.. So, I am watching her children after school.. Total 4 kids LOL, and feeding 7... It is the least I can do, and it works out because I live directly across the street from their school... It just isn't easy with the renos and NO counter tops yet..... My Aunt is over the critical stage, but seems to have lost a lot, so it may be a while (if ever) for her to fully recover.. She is 65..
Meanwhile, I think I have mentioned my cousin 25, who had a brain and spine tumor 10 years ago, and was in remission.. She has been in NICU for 10 months, and it seemed there isn't much hope. We pray and pray for this lovely young lady, and life which is NO WAY FAIR... They actually are both in the same ICU at the Neurological Hospital here...

I have had my period every 2 weeks since January, placed a call today and spoke to my Dr's secretary who seemed totally alarmed. I told her I am just exhausted, and if this is peri-menopause, is it safe? I am waiting a call back on that..
My Rheumy faxed in my paperwork to my insurance, and I am awaiting a decision on that.. Which always freaks me out.. It has been 5 years on LTD , and I just don't know.. With the surgeries, stroke, brain loss, now talk of EDS.. Tearing of all my labrums, shoulders, hips.. I guess I am petrified at the thought of being refused.. I check the mail daily, but nothing yet..

Sorry for the length..

love and gentle hugs all around
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Old 04-15-2014, 08:09 PM   #2048
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mommasita: How are all of the renovations coming along? I know they cause a big mess and interruption to normal routine, but it'll be worth it once its over.

I almost had a(nother) breakdown on Sunday night. I found out that my sister (she lives in NJ) was rushed to the hospital because she woke up that morning and kept fainting when she tried to get out bed. Her husband took her to the ER because they thought she might be having a stroke (she's 61). When I spoke to her on the phone she sounded so weak, and they still didn't know what was wrong with her. If my DH wasn't having surgery this week then I would've been on the train to NJ the next morning! My sister is scheduled to her have her other hip replaced next week, and on top of that, he husband fell and broke his shoulder so now he needs surgery too. It's just too much to deal with, all so soon together like this. I wish I could be in NJ to help them, but their daughter lives very nearby and helps them all the time, but the stress is getting to her, too.

In other news, I had an EEG done today. Not sure how long it takes the report to get to my neurologist.

I haven't had so many anxiety and panic attacks, ever. I only leave the house when I have to, for doctor appts, etc. I am so glad that my husband will off of work for a while after his surgery because I feel better when he's home.

I have started to see a new psychologist because my regular guy is sick and dying. I miss him so much.

My fatigue is pretty bad these days, too. And since leaving work almost 2 months ago, I don't stress as much about it. I have applied for disability, but still no decision as of yet. From what I understand, most people get denied first, then have to appeal the decision.]

Well that's all from me. I hope everyone is doing ok.
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Old 04-18-2014, 12:27 AM   #2049
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OMGoodness, so such you are going through..

I know it is easy to say, but one day at a time.... Everything just happens at once.... Lots and LOTS of love and hugs to you..

The renovations are coming along.... I ordered a special granite sink, so tomorrow DH and I will bring it to my cabinet and counter people.. They can cut the hole, and install the counters (hopefullY) next week We are now in the process of the rest of what we opened up. Floors, painting, etc... It just goes over budget no matter what..

everyone..

My Aunt is now home in a rehab program in her house.. She seems honestly pretty amazing....... Some loss, but not total... It may sound bad, but I am SO glad I don't have the kids this week... I love them, but it was a houseful..LOL... My daughter is in Washington DC until Saturday on a school trip, so it is quiet.. Too quiet..
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Old 05-12-2014, 10:21 PM   #2050
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Hi everyone:

Just wanted to say hi. My DH had his shoulder surgery on April 18th and he's still home from work. He might go back next week. He's been going to out-patient rehab 3 times a week. He's feeling pretty good these days.

The pollen here is so bad right now that everyone of us in my house feels "sick"; sore throats, sinus pain, headaches, etc. That nasty yellow-green pollen is all over everything outside, so we can't have any windows open. It was in the high 80s today. This weather is crazy.


Physically I feel lousy all the time. I'm just trying to hang in there. I will see the neurologist next week to get the results of the EEK and MRA and blood work. I really need to make an appt with my rheumatologist, too.

How are all of you doing??
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Old 05-13-2014, 01:21 AM   #2051
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SeaSpray: Glad to hear DH is on the mend.. ugh that Rehab is rough though.

No pollen to be seen, but I seem to have the constant sniffles, and what feels like allergies.. Great warm weather and sun here.. Sitting out as much as I can. Love it..

Sorry to hear you feel lousy.. Hoping for good and positive results..

Found out I did tear my achilles.... Waiting to hear how badly.. I see the Dr next week.. Last week I had a cortisone injection in my right hip. OMG OMG OMG. PAIN.. worse than my brain surgeries.. I thought I would just pass out later that evening. honest to god.. Dr said my bursae is so full it was leaking. If this doesn't work (it isn't) he is kinda worried in what is the cause of all this happening. .. My daughter lay on me gently to watch the hockey tonight, and it felt like someone just tore my hip right off, or lit a match to it.. the pain is honestly just through the roof..

Aside from that, we are strolling along.. Sink and granite counter is in .. Dh is doing the rest of the floor upstairs, painting (all in his spare time, in the evening), returned my backsplash , can't decide on a new one... Now I need to pick and find $$ for furniture as upstairs has none.. HA HA.. this will be gradual.. Thankfully we got a nice return on our income tax, but it will still be gradual...

My son's last day of college is tomorrow.. I am praying with all my might for good marks.. It is SUCH a struggle for him.. I don't know how this will go..

Oh yes, I started topamax 3 weeks ago, and I have had only ONE migraine since.. I also dropped 10 pds .. It is a very gradual increase week to week, and I have found it difficult with moods, so I hope it works out, because it is the best for migraines I have had in 20 years.. THe doctors are worried for the weight loss, as this is a side, and I can afford perhaps a little, but not a lot.. hoping it is the pill for me.

gentle but a lot of hugs all around
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Old 05-20-2014, 05:06 PM   #2052
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Quote:
Originally Posted by mommasita View Post
SeaSpray: Glad to hear DH is on the mend.. ugh that Rehab is rough though.

No pollen to be seen, but I seem to have the constant sniffles, and what feels like allergies.. Great warm weather and sun here.. Sitting out as much as I can. Love it..

Sorry to hear you feel lousy.. Hoping for good and positive results..

Found out I did tear my achilles.... Waiting to hear how badly.. I see the Dr next week.. Last week I had a cortisone injection in my right hip. OMG OMG OMG. PAIN.. worse than my brain surgeries.. I thought I would just pass out later that evening. honest to god.. Dr said my bursae is so full it was leaking. If this doesn't work (it isn't) he is kinda worried in what is the cause of all this happening. .. My daughter lay on me gently to watch the hockey tonight, and it felt like someone just tore my hip right off, or lit a match to it.. the pain is honestly just through the roof..

Aside from that, we are strolling along.. Sink and granite counter is in .. Dh is doing the rest of the floor upstairs, painting (all in his spare time, in the evening), returned my backsplash , can't decide on a new one... Now I need to pick and find $$ for furniture as upstairs has none.. HA HA.. this will be gradual.. Thankfully we got a nice return on our income tax, but it will still be gradual...

My son's last day of college is tomorrow.. I am praying with all my might for good marks.. It is SUCH a struggle for him.. I don't know how this will go..

Oh yes, I started topamax 3 weeks ago, and I have had only ONE migraine since.. I also dropped 10 pds .. It is a very gradual increase week to week, and I have found it difficult with moods, so I hope it works out, because it is the best for migraines I have had in 20 years.. THe doctors are worried for the weight loss, as this is a side, and I can afford perhaps a little, but not a lot.. hoping it is the pill for me.

gentle but a lot of hugs all around
Hi everyone

mommasita: *ouch* on the Achilles! I've heard that is very painful. How did your doctor appt go?? Is your hip feeling any better from the cortisone injection?

I'm jealous of your new kitchen! Our kitchen is so old and out-dated and we've just been maintaining it since we bought this house 15 years ago. I bet your kitchen looks gorgeous! Eventually we will get around to re-doing our kitchen.

How did your son make out with his grades? I hope they were ok. I can't believe how much more we (the general "we") worry about our kids the older they get! lol

My older son, the one who is on disability, has a job interview tomorrow. He is working with an employment counselor who he met via our state's vocational rehab program. He's so nervous!

I'm glad the medication is working for your migraines and I hope the side effects aren't bad.


My DH went back to work yesterday, although he is continuing with physical therapy after work a few times a week.

I found out last week that I have been denied to disability. Oh well. From what I've read, 70% of people who apply are denied the first time they apply.

Also our beloved psychologist who was priceless to us for these last several years has died. He only discovered that he had cancer about 6 months ago. I miss him so much and feel like without him, I'm on a tightrope without a net.

I hope everyone is doing ok and just too busy to post. If anyone is reading and not able to post due to not feeling up to it, then big hugs for you.
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Old 05-23-2014, 12:33 PM   #2053
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Hi everybody!

Oh goodness it has been a very long and stressful year already! And we aren't even half way through!

Anyway, normally Tuesday would be my last day of work but the district decided to change our calendar so now we are off next Friday I can't wait to be finished!

My vacation is coming up soon and as much as I love planning, no one has made it very easy so it's been stressing me out as well But we are still sure to have a wonderful time! I have never been to Italy or Disneyland Paris so I am super excited!

Another downer is my bf just doesn't seem to get fibromyalgia and he keeps comparing me to his lazy mother who stopped woking at age 23 and has been living with her mother ever since. Um... I'm 26, work full time, and go to school part time. How the heck are we even close to comprable? UGH! It's been really bothersome not having people around me who understand. I'm really sick of hearing "mind over matter". Sorry but it doesn't work that way! It does to a point for the pain but I am exhausted all the time. But i still get up and go to work and do all of my school stuff and help him with his! I really don't know what more he expects. I can't always get to the dishes or laundry but when he is at home more days than I am, why can't he do it? Yes I said I would do those things when we first moved in together but things change! I can't always stay on top of that stuff. I'm actually looking to hire someone to come in and clean the apartment. Someone has to step up and I think it's pretty obvious who but... it's not seen the same way.

UGH! Sorry for the rant! Lol!

Hope everyone is feeling better. I have been scanning the updates here and there and I know we are all having some issues

Much love and many painfree hugs for all!
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Old 05-24-2014, 07:55 PM   #2054
SeaSpray


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What fibromyalgia would look like if it weren't "invisible":




I saw this on Facebook and immediately thought of all of you. I think it so accurately depicts what fibromyalgia feels like.

This was the caption, originally in another language, then translated into English. But the picture is worth a thousand words, no matter the language.

Om Fibromyalgi var synligt på kroppen * om vi kunde se sjukdomen (som annars är osynlig) men som dagligen gör värre ont än den som är frisk kan föreställa sig * för alla er som inte förstår hur Fibromyalgi kan vara så "ont", outhärdligt, fruktansvärt och kroniskt att ha.......här kan du "se" hur sjukdomen skulle se ut om den var "synlig" över kroppen

If Fibromyalgia was visible on the body * if we could see the disease (which is otherwise invisible) but who daily make worse evil than that which is healthy can imagine * for all of you who do not understand how Fibromyalgia may be "evil", intolerable, appalling and chronically having ... ... here you can "see" how the disease would look like if it were "visible" over your body ❤ (Translated by Bing)
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Old 05-26-2014, 12:42 PM   #2055
rosanab1031
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Quote:
Originally Posted by SeaSpray

I saw this on Facebook and immediately thought of all of you. I think it so accurately depicts what fibromyalgia feels like.

This was the caption, originally in another language, then translated into English. But the picture is worth a thousand words, no matter the language.

Om Fibromyalgi var synligt på kroppen * om vi kunde se sjukdomen (som annars är osynlig) men som dagligen gör värre ont än den som är frisk kan föreställa sig * för alla er som inte förstår hur Fibromyalgi kan vara så "ont", outhärdligt, fruktansvärt och kroniskt att ha.......här kan du "se" hur sjukdomen skulle se ut om den var "synlig" över kroppen

If Fibromyalgia was visible on the body * if we could see the disease (which is otherwise invisible) but who daily make worse evil than that which is healthy can imagine * for all of you who do not understand how Fibromyalgia may be "evil", intolerable, appalling and chronically having ... ... here you can "see" how the disease would look like if it were "visible" over your body ❤ (Translated by Bing)
Yikes! Lol! A very disturbing picture but probably quite accurate. Eesh! Ya think people would start believing us then? Haha! Thanks for the post Seaspray!
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