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Old 04-15-2014, 11:17 PM   #1
Adee369
Earning My Ears
 
Join Date: Apr 2014
Posts: 20

Ethan's MAW Disney Cruise

Ethan is my 8yo, middle boy. He has two rare genetic conditions, familial Mediterranean fever and ehlers danlos syndrome (my youngest also has fmf, my oldest is a carrier and all three have eds but all are affected differently)... Unfortunately he has developed many complications (and additional diagnosis's) since his initial diagnosis in 2008 due to his conditions. He was granted a wish by make a wish to go on a Disney cruise!!

Our family leaves May 4th on the Disney dream out of port Canaveral. Were south florida natives and seasoned wdw visitors I can't wait to update with more soon! Our wish granters are two wonderful gentlemen who have gone above and beyond for Ethan, including even sending him a birthday package in the mail. We don't have our itinerary or anything yet, our granters said they are planning on coming in a week or so.

He does have a Facebook page which we give frequent updates on and of course will be sharing some of the pictures there in addition to here.

Www.facebook.com/ethanstitans
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Old 04-17-2014, 09:12 AM   #2
Adee369
Earning My Ears
 
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We spoke to our wish granter today Sometime early next week he should have our packet which means he should be sharing it with Ethan soon!
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Old 05-01-2014, 10:40 AM   #3
Adee369
Earning My Ears
 
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Were leaving in just over two days!! Were staying in 8632 the boys are very excited!
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