Originally Posted by paigestauffer
There are two studies one at NIH and one at Boston Children's. K didn't qualify for either because she is Neupogen dependent. The danazol worked great and then didn't
I'm actually on the plane to MSP for a BMB and see Tolar on Friday.
We got our wish trip dates! WE go May 16-22. So excited. So they asked what K would want for her send off party.... I'm totally clueless as to what that is or what she would want. Please someone fill me in
I am sorry to hear that the danazol has stopped working
Yea! for Wish Trip official dates!
As far as a send off party, the is no "standard". For Bella's send off, we went bowling with about 5 or 6 of her friends, had pizza and soda, and then the Wish Granter gave her some gifts and gave us the packet of information and other stuff. Others have had parties at home. It can be just your family or it can be your child's friends. Talk with your Wish Granter and see if they have any ideas, a budget, or other parameters and go from there.
Originally Posted by starearedkid
I officially started our pre-trip report:
Our wish grantors came to our house last night where Reese declared her wish to meet Mickey who lives in Disney World. Also the lizard from Tangled. (Not Tangled, just the lizard). She seriously LOVES Pascal, and there are VERY few things that have him on it. She also loves the Wizard of Oz and Mary Poppins, and the 1940's version of the 3 Little Pigs. Definitely a unique soul she is
She's a DOLL! Although it's technically not "meeting" Pascal, in the Rapunzel Rest area (right next to ISAW), there is a Pascal Scavenger Hunt. About 10 or so Pascals are hidden among the landscape. It's also a great place to charge your cell phone and take a rest. You can read more about the rest area here: http://www.wdwforgrownups.com/articl...-park-bathroom
Originally Posted by starearedkid
Trading Pins question:
At what age do you recommend your kids start this?
I actually think Reese may like it. She loves talking about things that she was given in different places/different people. For example, any trinket/toy that grandparents/uncles/close friends have given her---she STILL talks about it 6 months later and mentions who bought it for her. So I can see her being really interested in someone giving her a trading pin in Disney. The only thing I am reluctant on is her actually GIVING them away. (However, if she doesn't care for a particular toy, etc--her line is "I can't LIKE it"--and she will give that "reject" toy away to anyone. So I was actually thinking about getting her some pins that I know she won't like at all--because I know she would never have a problem of giving those away.
So where do you get pins? How many should i get her? Do you think she is old enough?
Lots of questions I know.
I think 3 is definitely old enough to start pin trading. As long as your daughter isn't terribly shy and is willing to ask Cast Members to trade, she will have a blast trading. We always buy 20-30 pins for each of our girls off of ebay before we go. By the time we return, they have swapped the random ebay pins for Princesses, Tinkerbells, and Mickeys that they love.
Originally Posted by greenjellybean
Anyone familiar with GKTW enough to know when they tend to be completely booked? Sophie's MAW contacts will be visiting this Saturday and I understand that if she does ask to go to WDW, we'll be asked to give some dates.
My ONLY real desire is that Sophie have completed chemo before we go. She seems to be responding well to it and there is a good chance she SHOULD be done with maintenence sometime in June. At least, her oncologist seems to think that is still viable. I'd like her to have at LEAST a few weeks to recover and get some of her energy and stamina back as well, more the better.
Here's the other thing. Sophie REALLY wants to stay at GKTW. I think she's be really disappointed if, however generous it might be, to stay on property bc she really had her heart set on GKTW. I'm told they do get full and it's usually during the summer months for obvious reasons.
I'd rather the girls not miss school, especially since Savannah is starting middle school and had been signed up for accelerated math and language arts. But I don't want Sophie to miss out on what is part off her wish, either.
By any chance, does anyone have any advice or suggestions? Should I call GKTW? Seems like that might be presumptuous on my part before even meeting with MAW.
I would imagine that the busiest times for GKTW would be Spring Break, Summer, Thanksgiving break, and Christmas thru New Year. Anytime kids already have off of school, they probably fill up fast. However, if you don't mind your kids missing school, you should be fine. When we chose our dates for December 09, we selected them in May and had no problem getting in. Our dates were in the beginning of December and I can tell you there is no more magical time and place than Disney at Christmas. My suggestion/recommendation is the first or second week in Dec.