|03-11-2014, 11:40 PM||#1|
Join Date: Aug 1999
Location: Twin Cities area,Minnesota,USA
A new world for us - WDW with urinary catheterization
Some of you may have noticed I have not been posting much in the last 6 weeks or so. I've been reading, but not time to post much.
The reason is that my youngest DD had elective surgery on February 6 to create a Mitroffanoff. This procedure uses the appendix to make a passage thru the abdomen into the bladder.
She didn't have her surgery at Children's, but they have a nice explanation.
She was in the hospital for a week, with one of us with her 24 hours a day (since she can't talk, we wanted to make sure one of us was there to communicate.
She had a catheter in the Mittofanoff and one in the urethra for 1 m
Everything was removed yesterday and we are slowly becoming proficient at our new way of life, which right now includes a catheter every 3-4 hours.
So, give me your best hints for touring.
- I know we can go to First Aid, but were else do you cath?
- what do you do for a 'work surface if you use the Companion or regular restrooms?
- how do you manage supplies?
Thanks in advance
SueM in MN
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