Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Just for Fun > Coping and Compassion
Find Hotel Specials & DIScounts
 
facebooktwitterpinterestgoogle plusyoutubeDIS UpdatesDIS email updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read





Reply
 
Thread Tools Rate Thread
Old 04-15-2013, 11:10 AM   #2311
Christine
Would love to be able to sit on the couch for a few days, get a good book, and do NOTHING!
Considers the DIS as Bladder Training 101
 
Join Date: Aug 1999
Location: Northern Virginia
Posts: 23,680

Quote:
Originally Posted by luvmarypoppins View Post
Oh and now to take you away for one minute from your regularly scheduled thyroid posts.....

I'm going to Disney Ditching well, having to call the onc. and reschedule my yearly visit for this! lol!

I had to wait because dh is traveling to Los Angeles , San Francisco and then Russia for 13 days. So we finally booked it last night. He needs time to catch up on his reg. work before we go etc.

Of course I am trying to save money because we need a new roof and driveway. Our house is needing lots of tlc. Its getting older.

So we cashed in dh ff miles for 4 days at the Beach Club, Club Level, heah its a really big anniv. for us, so its something he deserves. He works really hard for sure. So thats free! Then we are switching over to the Yacht Club water view for 3 days June 1-4.

Then since I was on a roll I looked at all our southwest points and saw dh had enough for a whole free trip so that costed only a whooping $2.50! and I had enough for 1/2 of my flight, so I only paid $125.

Of course all the money we save we will probably spend eating!

I need a vacation and am so looking forward to this!
I'm so jealous!!

I want to go SO bad this year but can't. My DD's college tuition doubled this year (due to a major change) and my son is starting in the FALL. I feel SO broke. Of course, the government thinks I'm apparently rich because I get no tuition credits, no aid, no nothing. We will be living VERY austere for at least one year. I hope my HVAC system holds out.
__________________
Christine

Vacation Home - Indian Creek - July 2012
Vacation Home - Terre Verde Resort - July 2009
Vacation Home - Terre Verde Resort - Easter 2007
Shades of Green - June 2005
Vistana Resort - May 01
Shades of Green - May 99
Shades of Green - Apr 97
CBR & Shades of Green - May 95
Christine is offline   Reply With Quote
Old 04-15-2013, 12:40 PM   #2312
luvmarypoppins
I am debating whether to put a new one back on his
O.K. who is the sista here right now?
((Hug))
 
Join Date: Aug 2003
Posts: 9,905

Quote:
Originally Posted by buzlite View Post
Hi I just wanted to let people know that they should make sure what type of thyroid carcinoma they have. Their are multiple types. If you plan on doing any type of research about your condition, it will help you be more concise. IE. Follicular, medullary, papillary or anaplastic.
Welcome. What kind do you have??
luvmarypoppins is offline   Reply With Quote
|
The DIS
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 04-29-2013, 11:26 AM   #2313
robynslp
Mouseketeer
 
robynslp's Avatar
 
Join Date: Jan 2012
Location: Coastal NC
Posts: 97

Quiet thread lately. I hope everyone is doing well.

I'm over a month post partial. I feel run down, run over and just in general BLAH. This is normally my best time of the year as I recover from Seasonal Affective Disorder but it just seems to be dragging on.

I am going for labs this week and maybe they will tell the tale, but I assumed all would be well with just a partial. The remaining tissue would do its job.

I was also woefully underprepared for how long I would have swelling (fluid?) in the area. Feels like they put a golf ball in my neck.
robynslp is offline   Reply With Quote
Old 04-30-2013, 08:31 AM   #2314
luvmarypoppins
I am debating whether to put a new one back on his
O.K. who is the sista here right now?
((Hug))
 
Join Date: Aug 2003
Posts: 9,905

Quote:
Originally Posted by robynslp View Post
Quiet thread lately. I hope everyone is doing well.

I'm over a month post partial. I feel run down, run over and just in general BLAH. This is normally my best time of the year as I recover from Seasonal Affective Disorder but it just seems to be dragging on.

I am going for labs this week and maybe they will tell the tale, but I assumed all would be well with just a partial. The remaining tissue would do its job.

I was also woefully underprepared for how long I would have swelling (fluid?) in the area. Feels like they put a golf ball in my neck.
Sorry you are dealing with all the post op issues. Hope the labs will give your endo a good picture as to what is going on. Do you take synthroid? Maybe a dosage adjustment is needed?

I am still dealing with tiredness,but its a constant thing with me.

Is the fluid an actual golf ball sized lump? Or just puffiness, for lack of a better description. If its an actual lump, maybe it could be a seroma? I had one drain in for weeks post op but I had lots of fluid due to the 3 surgeries. If its just fluid I am assuming your body will reabsorb it? But if its a true lump then I would ask the surgeon etc. Do you have any more post ops with the surgeon scheduled?

Wishing you all the best. Hang in there!
luvmarypoppins is offline   Reply With Quote
Old 05-02-2013, 03:22 PM   #2315
AmazingGrace
Life is good, God is great!!!
Born again Texan
Enjoys a good Dole Whip
I saw the "I pooted" one. Made me laugh so hard that I, well, you know, POOTED!!!
 
AmazingGrace's Avatar
 
Join Date: Jan 2004
Location: Home sweet home in Selma Texas!!
Posts: 2,898

Just found this thread. My obgyn saw that my thyroid looked big, so she ordered blood work and an ultrasound. The good news is, my blood work was normal. The not so good news is, the tech let me peek at my ultrasound this morning. There was the thyroid, all butterfly shaped and right there on the left side was a huge darker grey area. The other angle showed that area lit up in red and blue, large patches and the other side showed red and blue dots. When she did the ultrasound, the right side really hurt sharply and the left side felt like I was being strangled, so I don't know what to think. Dr. Google, of course, is no help. So I guess I'm just in the waiting stage. I have noticed over the past month or two, I'm having a hard time swallowing pills. I'm wondering about my blood work too. I've not felt my healthiest in a long time. Just tired, headachy and just not well. Any insight or experience would be greatly appreciated.
__________________
AmazingGrace is offline   Reply With Quote
Old 05-03-2013, 10:44 AM   #2316
luvmarypoppins
I am debating whether to put a new one back on his
O.K. who is the sista here right now?
((Hug))
 
Join Date: Aug 2003
Posts: 9,905

Hi LoriAnn - glad you made your way over here, Oh and on a personal note I saw your ? from a long time ago, I dont know how to answer it on that page, but my grandmas brother owned the house in Sayreville (Parlin) that was by the cemetary on the corner and Dominics Market, does that sound familiar? My cousins wife knew the Bon Jovi boys of course. She said they would always hang out in some deli after school I think.

Now onto your thyroid stuff. What blood tests did you get done? Tiredeness could also be low B12 and iron stuff. Did you just get thyroid blood tests?

Christine probably knows more about the ultrasound stuff so I cant really answer that. I think my one tumor showed up as a black/very dark spot with a while ring around it. They really didnt show me too much, I just peeked and I knew it wasnt good when she made me keep lying on the table and pulled the radiologist in right there to look at it and they said I needed a ct scan. Then after that it was the pet scan.

I think you should def consult with an ent dr./surgeon. They have special cameras they can look down into your throat with in the office. Uncomfortable but tolerable.

Wishing you all the best and keep us updated.
luvmarypoppins is offline   Reply With Quote
Old 05-09-2013, 08:48 AM   #2317
AmazingGrace
Life is good, God is great!!!
Born again Texan
Enjoys a good Dole Whip
I saw the "I pooted" one. Made me laugh so hard that I, well, you know, POOTED!!!
 
AmazingGrace's Avatar
 
Join Date: Jan 2004
Location: Home sweet home in Selma Texas!!
Posts: 2,898

I went in and saw my PCM today. She said that I have a few nodules and the one on the right is about 12 mm. So she put in a referral to endocrine and I'm waiting to get a biopsy scheduled. She also said that my thyroid is definitely enlarged.
__________________
AmazingGrace is offline   Reply With Quote
Old 05-09-2013, 09:27 AM   #2318
mrsklamc
I apologize in advance, but what is a click clack?
 
Join Date: Oct 2006
Location: Husker living in Hoosierland.
Posts: 9,500

I had a non stimulated thyrogobulin level that came back undetectable recently so that was good news. Mostly just dealing with my OTHER medical problems- the fact that my teeth are terrible from the lack of saliva post RAI and the fertility stuff.

Those who are in limbo, just hang in there. I know it's tough and scary but yesterday I was feeling sorry for myself and outside the doctor's office was a woman who had no feet. Reminded me pretty vividly of that old saying "I was sad when I had no shoes and then I met a man who had no feet," or however that goes.
mrsklamc is offline   Reply With Quote
Old 05-09-2013, 10:12 AM   #2319
luvmarypoppins
I am debating whether to put a new one back on his
O.K. who is the sista here right now?
((Hug))
 
Join Date: Aug 2003
Posts: 9,905

LoriAnn - I am glad you are going to an endo. Glad that you are getting the biopsy too. You have dealt with a lot on your plate lately (your other surgery)

Micayla - I hear you about teeth stuff. My dentist says I have very little bone there. Right now I am sitting with 1 capless tooth, my decision. Dont have time to fix it right now etc. Also I am praying for you on your journey. I am sure its stressing both physically and emotionally. I hear what you say about seeing someone else. I think sometimes God helps you put things into perspective.

And on to some other news. I just called the oncologist to reschedule my appt. She says she is booked and gives me July. I said, well it was suppose to be May and you pushed it till June and now you are giving me the end of July?? She said shes really booked. That means translated - you are going to be waiting in the waiting room a long time etc. She doesnt do anything anyway but I know we will be discussing the 5 year scan that will be next year. She books that up then too I think. Well Christine, pipe in on this, Do you know anything that has not had the 5 year scan. Maybe its me but I dont want anymore radiation. I already had that ct scan in the er etc. I dont mind doing the diet etc. But isint the blood test enough?? I am just wondering if they do the 5 year thing as protocol and as part of thyroid cancer algorithm etc?? Anyones thoughts??

Oh and onto some disney stuff for your reading pleasure, lol. We are eating at Cape May, Chefs de France, Hollywood Brown Derby, Yachtsman, Kouzzina Kona, and Citricos.

Most of the planning is done. I just need to order the town car since dh hates the magical express and book a wheelchair.

Oh and since ds3 is flying out to calif. this week end to be with dh they are going to..Disneyland of course. Hmm, I guess they just wanted me to know that little fact and ds1 is going up to Providence or Kingston Rode Island to coach a basketball tournament so its just ds2 and me.
luvmarypoppins is offline   Reply With Quote
Old 05-09-2013, 03:04 PM   #2320
SingingMom
DIS Veteran
 
SingingMom's Avatar
 
Join Date: Jul 2001
Location: New Jersey
Posts: 4,265

Quote:
Originally Posted by luvmarypoppins View Post
LoriAnn - I am glad you are going to an endo. Glad that you are getting the biopsy too. You have dealt with a lot on your plate lately (your other surgery)

Micayla - I hear you about teeth stuff. My dentist says I have very little bone there. Right now I am sitting with 1 capless tooth, my decision. Dont have time to fix it right now etc. Also I am praying for you on your journey. I am sure its stressing both physically and emotionally. I hear what you say about seeing someone else. I think sometimes God helps you put things into perspective.

And on to some other news. I just called the oncologist to reschedule my appt. She says she is booked and gives me July. I said, well it was suppose to be May and you pushed it till June and now you are giving me the end of July?? She said shes really booked. That means translated - you are going to be waiting in the waiting room a long time etc. She doesnt do anything anyway but I know we will be discussing the 5 year scan that will be next year. She books that up then too I think. Well Christine, pipe in on this, Do you know anything that has not had the 5 year scan. Maybe its me but I dont want anymore radiation. I already had that ct scan in the er etc. I dont mind doing the diet etc. But isint the blood test enough?? I am just wondering if they do the 5 year thing as protocol and as part of thyroid cancer algorithm etc?? Anyones thoughts??

Oh and onto some disney stuff for your reading pleasure, lol. We are eating at Cape May, Chefs de France, Hollywood Brown Derby, Yachtsman, Kouzzina Kona, and Citricos.

Most of the planning is done. I just need to order the town car since dh hates the magical express and book a wheelchair.

Oh and since ds3 is flying out to calif. this week end to be with dh they are going to..Disneyland of course. Hmm, I guess they just wanted me to know that little fact and ds1 is going up to Providence or Kingston Rode Island to coach a basketball tournament so its just ds2 and me.
I had papillary carcinoma of the thyroid, totally removed, and spread to about 7 lymph nodes. This was 20 years ago. I did not have radioactive iodine treatment because I wanted to get pregnant and didn't feel comfortable about it. My endocrinologist was supportive in my decision, since my initial scan was just over 2%. They look for you to be under 2%, at least back 20 years ago (The radiologist in the hospital thought I was putting a bullet in my head. He was very nasty and treated me like I was an imbecile.)

Apparently the protocol is different now, but I never had another body scan. I had periodic chest xrays and a few ultrasounds, but that is all.

Disney news: We are heading to Germany on our second Adventures by Disney trip and back to Disney World again in January as our Christmas gifts to each other. (DH, me, and DD20) :-)
__________________
SingingMom


08/76 Fort Wilderness, 09/85 off site, 03/87 off site, 10/91 POFQ, 9/96 Dixie Landings, 07/14-21/01 Disney Magic Cruise! 6/22-7/01/06 Dolphin, 6/22-30/07 Dolphin 6/24-7/02/08 Dolphin, 6/23-7/01/2009 Dolphin, FIVE-PEAT 6/2010 Dolphin! 5/14-21/12 ABD City of Knights & Lights, 1/8-16/13 Dolphin, 7/14-7/22/13 Once Upon a Fairytale, 1/2014 Dolphin, 7/2014 POFQ, 8/2014 Disney Aulani
SingingMom is offline   Reply With Quote
Old 05-10-2013, 12:08 PM   #2321
mrsklamc
I apologize in advance, but what is a click clack?
 
Join Date: Oct 2006
Location: Husker living in Hoosierland.
Posts: 9,500

Update on the "thyroid cancer? sign me up" lady. Looks like she did end up having cancer, and maybe that silly post was written out of denial.

http://www.huffingtonpost.com/michel...b_2849811.html
mrsklamc is offline   Reply With Quote
Old 05-10-2013, 02:01 PM   #2322
Christine
Would love to be able to sit on the couch for a few days, get a good book, and do NOTHING!
Considers the DIS as Bladder Training 101
 
Join Date: Aug 1999
Location: Northern Virginia
Posts: 23,680

luvmarypoppins--I think the protocol is all over the place. My endo told me that the "new" thinking was Thyrogen and blood testing. But you are a unique case and I think based on the extensive and aggressive thyroid cancer you have, I am not surprised on the "5 Year Scan" thing. I also think that there are general recommendations that go out and your doctor has the ultimate choice to decide what they believe is the safest protocol.

I know you don't want more radiation but you can try to comfort yourself with the fact that the scan dose is not too high.
__________________
Christine

Vacation Home - Indian Creek - July 2012
Vacation Home - Terre Verde Resort - July 2009
Vacation Home - Terre Verde Resort - Easter 2007
Shades of Green - June 2005
Vistana Resort - May 01
Shades of Green - May 99
Shades of Green - Apr 97
CBR & Shades of Green - May 95
Christine is offline   Reply With Quote
Old 05-10-2013, 02:12 PM   #2323
mrsklamc
I apologize in advance, but what is a click clack?
 
Join Date: Oct 2006
Location: Husker living in Hoosierland.
Posts: 9,500

It's only been two years since my 'clean' scan and she wants to do it again. Hope she starts reading up on some of this new literature.
mrsklamc is offline   Reply With Quote
Old 05-10-2013, 02:56 PM   #2324
bhagaman
Earning My Ears
 
Join Date: May 2013
Posts: 5

New and need advice

Will be 3 years in October since my complete thyroidectomy and the removal of 2 parathyroids and 24 lymph nodes (7 were cancerous, parathyroids were benign) when I was 19. I have had two ultrasounds on my neck in the past year which have shown a few lymph nodes enlarged. My endo says they have not grown any bigger, which must be a good sign I suppose. This last Monday and Tuesday I had two Thyrogen shots, followed by a blood test Wednesday. I had an I 131 scan yesterday and the result came in today. My scan came up negative, which is good news. But my thyroglobulin level has bumped up a bit. Doc says not a lot but there is definitely thyroid tissue somewhere. She is scheduling me a CT Scan and potentially a biopsy on those lymph nodes in my neck. Anyone else go through this? Did you scan come up negative but there was something somewhere that the scan couldn't pick up? I'm a little nervous. Any advice or insight would help, thank you!
bhagaman is offline   Reply With Quote
Old 05-11-2013, 07:14 AM   #2325
Christine
Would love to be able to sit on the couch for a few days, get a good book, and do NOTHING!
Considers the DIS as Bladder Training 101
 
Join Date: Aug 1999
Location: Northern Virginia
Posts: 23,680

Quote:
Originally Posted by bhagaman View Post
Will be 3 years in October since my complete thyroidectomy and the removal of 2 parathyroids and 24 lymph nodes (7 were cancerous, parathyroids were benign) when I was 19. I have had two ultrasounds on my neck in the past year which have shown a few lymph nodes enlarged. My endo says they have not grown any bigger, which must be a good sign I suppose. This last Monday and Tuesday I had two Thyrogen shots, followed by a blood test Wednesday. I had an I 131 scan yesterday and the result came in today. My scan came up negative, which is good news. But my thyroglobulin level has bumped up a bit. Doc says not a lot but there is definitely thyroid tissue somewhere. She is scheduling me a CT Scan and potentially a biopsy on those lymph nodes in my neck. Anyone else go through this? Did you scan come up negative but there was something somewhere that the scan couldn't pick up? I'm a little nervous. Any advice or insight would help, thank you!
I haven't had this happen personally; however, I do know that you can have a negative scan and a positive Tg. Tg is *supposed* to be THE gold standard for thyroid cancer. Alternatively, you can have a positive scan and a negative Tg which is supposed to be less of a concern. Remnant thyroid tissue produces Tg and so does very small cells of thyroid cancer. Normal thyroid tissue would show up clearly on a scan. Thyroid cancer cells--if not well-differentiated--will often now "glow" as much because they are not behaving as normal thyroid cells.

I actually haven't heard of people following up with a CT for thyroid cancer unless they were trying to get a better look at large masses to see what the size is like. I'm not thinking that's your case as an ultrasound would have picked that up. So that part, I'm not sure of. More than likely, it is the nodes in your neck. My coworker has had thyroid cancer for over 20 years. She always gets a clean scan, but her Tg is persistently elevated. They suspect it's in her nodes but they've removed many and still it persists. She's had alcohol ablation of the nodes. Still has an elevated Tg. It does not seem to really impact her except that she spends a LOT of time being monitored.

Did they, by chance, tell you what your Tg level is?
__________________
Christine

Vacation Home - Indian Creek - July 2012
Vacation Home - Terre Verde Resort - July 2009
Vacation Home - Terre Verde Resort - Easter 2007
Shades of Green - June 2005
Vistana Resort - May 01
Shades of Green - May 99
Shades of Green - Apr 97
CBR & Shades of Green - May 95
Christine is offline   Reply With Quote
Reply



Thread Tools
Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

facebooktwitterpinterestgoogle plusyoutubeDIS Updates
GET OUR DIS UPDATES DELIVERED BY EMAIL



All times are GMT -5. The time now is 01:50 AM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.

You Rated this Thread: