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Old 04-12-2013, 11:48 PM   #151
MrsCrouse08
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Join Date: Apr 2013
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Hii!Newbie here!

Hi everyone! My son was recently approved for a wish! He has a very rare chromosome disorder (first one to be diagnosed with his issue called 14q13.2 duplication) We are still waiting for our team to come to the house and ask my son for his wish, but we already know he wants to go to Disney World! Now what happens? They know all about his history and that he has two younger sisters (2 year old identical twins) who are also special needs and said that depending on what our team says because his sisters are disabled that we may be able to have "extra" people approved for our wish because we are a family of 6 with four kids 6 and under 3 being special needs and would obviously need extra help on our trip. We are in Tennessee so we know we are going to be flying and I've read up about MAW and Disney trips but I've noticed that a lot of the times it's only a few days at Disney and then other days at Seaworld or Universal.. Is there a way we can just do Disney? And after our team comes to ask my son his wish, what happens next?! He is a huge fan of Mickey Mouse, Toy Story and Cars so we would def want the wish to also incorporate one of the characters, but I'm not sure what happens after we meet with our team. Any answers and advise would be great! Thank you!
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Old 04-13-2013, 11:12 AM   #152
macntosh
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Hey all as a former wish family I wanted to stop in and share an exciting life change on my part. I have taken up running and in doing so will be supporting Give Kids The World in next January's Disney Half Marathon. I have committed to raising over $3000 for GKTW, One of the most amazing places on earth. So with that said and knowing I can't do it alone I wanted to share the info here and invite people to check it out.

Last edited by macntosh; 04-13-2013 at 11:24 AM.
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Old 04-13-2013, 01:25 PM   #153
NEmel
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We had an amazing trip, and were sad for it to end! Make a Wish and Disney Cruise Line are wonderful. We have memories to last a lifetime! I am slowly adding pictures to Carter's PTR!
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Old 04-13-2013, 03:18 PM   #154
2012bella13
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Quote:
Originally Posted by MrsCrouse08 View Post
Hi everyone! My son was recently approved for a wish! He has a very rare chromosome disorder (first one to be diagnosed with his issue called 14q13.2 duplication) We are still waiting for our team to come to the house and ask my son for his wish, but we already know he wants to go to Disney World! Now what happens? They know all about his history and that he has two younger sisters (2 year old identical twins) who are also special needs and said that depending on what our team says because his sisters are disabled that we may be able to have "extra" people approved for our wish because we are a family of 6 with four kids 6 and under 3 being special needs and would obviously need extra help on our trip. We are in Tennessee so we know we are going to be flying and I've read up about MAW and Disney trips but I've noticed that a lot of the times it's only a few days at Disney and then other days at Seaworld or Universal.. Is there a way we can just do Disney? And after our team comes to ask my son his wish, what happens next?! He is a huge fan of Mickey Mouse, Toy Story and Cars so we would def want the wish to also incorporate one of the characters, but I'm not sure what happens after we meet with our team. Any answers and advise would be great! Thank you!
If you are going to stay at Give Kids The World, thier package has 3-day park hopper for Disney World, 2- day tickets for Universal Studios, & 1-day for Sea World.
You can go to all of Disney's Parks if you want, Hollywood Studios is the one for Cars, they have a Meet & Greet with Mater & McQeen, ( they just make car noises, but you can have your picture taken with them & the kids love it) & it is also a good one for Toy Story, you can meet Buzz & Woody, see the Green Army Men & ride the Buzz Lightyear Ride. If you want to met Jessie, you will have to meet her & Woody at Magic Kingdom in Frontierland.

At the village, they have Meet & Greet with Mickey & Minnie, also a few other characters on certain days, twice a week. Universal also sends a Character twice a week, but you will not know who it is until the Meet & Greet time.

Our family used the Disney tickets, Sea World & Gatorland tickets. We did not go to Universal Studios.

You will have to talk to your MAW Volunteer about just going to Disney World, I do not know if you can get additional tickets added or if you would have to pay out of pocket for them. Our DD's wish was to go to Disney World also, & we were lucky & got to stay at Give Kids The World Village, we had a wonderful time.
Just enjoy everything, we spent alot of time at the village, lots of Angels there.
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Old 04-14-2013, 12:23 PM   #155
Oneplustwins
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Hi everyone! I am bursting with excitement!! Limo picks us up at 5:30 a.m Tuesday morning! My kids are so excited, awesome to see. Thank you everyone for your prayers for health, jack has bounced back and my daughter is feeling better with strep. We all got checked yesterday, quick one was negative but they are culturing it too. Please continue to pray we are healthy on our trip. Thank you! I am having a hard time not over packing! Lol! They told us to bring an empty suitcase too.....just hard as I never know what we might need.
Thank you everyone for your excitement, tips and help planning. I can't believe we leave so soon!, HOORAY!
Victoria
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Old 04-14-2013, 06:58 PM   #156
Happy Dreams1
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Quote:
Originally Posted by macntosh View Post
Hey all as a former wish family I wanted to stop in and share an exciting life change on my part. I have taken up running and in doing so will be supporting Give Kids The World in next January's Disney Half Marathon. I have committed to raising over $3000 for GKTW, One of the most amazing places on earth. So with that said and knowing I can't do it alone I wanted to share the info here and invite people to check it out.
Wow! Just amazing! I'm a former wish teen( Had my trip in Aug 2011). It was magical and unforgettable. My wish was granted at just the right moment! A year later( fall 2012) , I fell ill and had a pacemaker implanted. I had unusual complications and ended up having 4 pacemaker surgeries between Nov. and Dec. 2012. I was thinking soo much about Disney while I was in hospital. I felt calm and at peace. One of the OR nurses told my mom that that this wasn't sad because I was in the OR twice in a week, but because every time I came, I was smiling and laughing about how I was looking forward ot my next Disney trip and what rides I would ride. I just didn't understand why they expected me to be sad.

After the final PM surgery, I felt like i needed to do something else. I took up running( with my Doc's permission of course). I'm running 5k's now towards local hospitals. I feel sooo happy when I'm running and free. It's helped me concentrate on the most important things in life and has actually helped stay focused in school! Yes, I still have to deal with medical occurrences and emergencies, but I know everything will be fine.

I'm going to Disneyland next Month and will be celebrating my 18th birthday at the parks and my high school graduation! I am very excited!

Anyway, I really want to run in a Disney half-marathon next year- so thank you for giving this info out!
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But in my mind, I'm living in DISNEY!!

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My Make-A-Wish trip to Disney World 2011 :
http://www.disboards.com/showthread.php?t=2791041
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Old 04-15-2013, 08:05 AM   #157
Jakentysmom
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Holy cow! I had NO idea there was a new thread! I was wonderig why no one was posting on the old one...

We leave for disney in 5 days!!!! SOOO EXCITED!!!
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Old 04-15-2013, 09:21 AM   #158
nuts4wdw
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We got our flight times. We will be landing in Orlando at 4:45 on May 31st. SOOOOOO, excited!!!!! We will be leaving in 46 days, but who's counting? Prescott has been feeling good lately. I feel like I need to lock him in a bubble for the next month and a half because I don't want him to get sick before we go. We have a busy next month, so I know the time will fly by. I'm packing slowly and looking on pinterest for great ideas that we HAVE to have before we leave. My kids and I have searched youtube and watched Disney videos and GKTW videos lots. Prescott is so cute! We talk about riding the airplane. (Now you have to understand that he can't talk, but does have a few words). When we ask who he is going to ride the airplane with, he responds with his one syllable "name" for all of his family (there are 6 of us). It melts my heart. Yep! Getting excited. I'm excited to hear of all of the wish trippers as they prepare to go and then their stories when they return. So, be sure to come back and tell us all your memories! Have fun everyone!
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Old 04-15-2013, 11:12 AM   #159
Meeks23
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Thank you everyone for the warm welcomes I haven't been on in a about a week because we haven't had interent service very much. We live in Sioux Falls, SD where we received a massive ice storm that has totally devasted the area...so so so many trees that broke and at one point over 35,000 without power from all the down lines! But we live in a great community where everyone comes together and helps clean up!

Happy and Safe travels to all the families that are on their trip or are leaving soon!!! HOW EXCITING!!!!!!!!
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Old 04-15-2013, 03:55 PM   #160
2012bella13
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Quote:
Originally Posted by Oneplustwins View Post
Hi everyone! I am bursting with excitement!! Limo picks us up at 5:30 a.m Tuesday morning! My kids are so excited, awesome to see. Thank you everyone for your prayers for health, jack has bounced back and my daughter is feeling better with strep. We all got checked yesterday, quick one was negative but they are culturing it too. Please continue to pray we are healthy on our trip. Thank you! I am having a hard time not over packing! Lol! They told us to bring an empty suitcase too.....just hard as I never know what we might need.
Thank you everyone for your excitement, tips and help planning. I can't believe we leave so soon!, HOORAY!
Victoria
Prayers for good health. You could pack a duffle bag, the kids get all kinds of things, something everyday!!
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Disney World Trip Febuary 2013 A.O.A. Cars Suite
MAW-GKTW
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Old 04-15-2013, 04:00 PM   #161
2012bella13
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Quote:
Originally Posted by Happy Dreams1 View Post
Wow! Just amazing! I'm a former wish teen( Had my trip in Aug 2011). It was magical and unforgettable. My wish was granted at just the right moment! A year later( fall 2012) , I fell ill and had a pacemaker implanted. I had unusual complications and ended up having 4 pacemaker surgeries between Nov. and Dec. 2012. I was thinking soo much about Disney while I was in hospital. I felt calm and at peace. One of the OR nurses told my mom that that this wasn't sad because I was in the OR twice in a week, but because every time I came, I was smiling and laughing about how I was looking forward ot my next Disney trip and what rides I would ride. I just didn't understand why they expected me to be sad.

After the final PM surgery, I felt like i needed to do something else. I took up running( with my Doc's permission of course). I'm running 5k's now towards local hospitals. I feel sooo happy when I'm running and free. It's helped me concentrate on the most important things in life and has actually helped stay focused in school! Yes, I still have to deal with medical occurrences and emergencies, but I know everything will be fine.

I'm going to Disneyland next Month and will be celebrating my 18th birthday at the parks and my high school graduation! I am very excited!

Anyway, I really want to run in a Disney half-marathon next year- so thank you for giving this info out!
God Bless!!!! My DD's Trip was in May 2011
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Disney World Trip Febuary 2013 A.O.A. Cars Suite
MAW-GKTW
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Old 04-15-2013, 04:15 PM   #162
Sheri21596
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Hello! I hope everyone is doing well! I am so excited to see more people who are getting their dates!!! I love reading everyones stories and hearing their wishes!

Kara just finished her second round of oral chemo on Saturday and seems to only vomit after waking up on the monday after ... We go back to Hopkins on Wednesday for blood counts. Then May 2nd is her next MRI and IV chemo. Thats gonna be a rough day She really deserves this wish after all the yucky stuff she goes through. We finally got a call from her "wish friends" asking us for 3 different dates/weeks that we would like to go. We have asked for Halloween time since her last Halloween she missed out because of her brain surgery. Part of her wish is to go to BBB and the Castle to eat but im still wondering if I book that myself? I guess all we can do is wait but its so hard! I am slowly getting some outfits for the trip and since I cannot sew Kara's aunt has ordered her a really cute princess pillow case dress.

Jackie - How is Trevor's wish coming along? And how are is your Kara doing? I hope everything is going well!!

Well I will try to post more soon! Keep posting about all the wishes!!
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Old 04-15-2013, 04:51 PM   #163
Lilfoot93
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Quote:
Originally Posted by MrsCrouse08 View Post
Hi everyone! My son was recently approved for a wish! He has a very rare chromosome disorder (first one to be diagnosed with his issue called 14q13.2 duplication) We are still waiting for our team to come to the house and ask my son for his wish, but we already know he wants to go to Disney World! Now what happens? They know all about his history and that he has two younger sisters (2 year old identical twins) who are also special needs and said that depending on what our team says because his sisters are disabled that we may be able to have "extra" people approved for our wish because we are a family of 6 with four kids 6 and under 3 being special needs and would obviously need extra help on our trip. We are in Tennessee so we know we are going to be flying and I've read up about MAW and Disney trips but I've noticed that a lot of the times it's only a few days at Disney and then other days at Seaworld or Universal.. Is there a way we can just do Disney? And after our team comes to ask my son his wish, what happens next?! He is a huge fan of Mickey Mouse, Toy Story and Cars so we would def want the wish to also incorporate one of the characters, but I'm not sure what happens after we meet with our team. Any answers and advise would be great! Thank you!
Welcome!! I have 4 year old twin girls and their older brother is our wish kiddo. That will be great if you can be approved to have someone come help out with the kiddos while you are there! I think the general "package" for GKTW is 3 days Disney 2 Days Universal and 1 day Sea World. My sons wish is to go to Star Wars Weekend and that is what we are getting too.

Quote:
Originally Posted by Oneplustwins View Post
Hi everyone! I am bursting with excitement!! Limo picks us up at 5:30 a.m Tuesday morning! My kids are so excited, awesome to see. Thank you everyone for your prayers for health, jack has bounced back and my daughter is feeling better with strep. We all got checked yesterday, quick one was negative but they are culturing it too. Please continue to pray we are healthy on our trip. Thank you! I am having a hard time not over packing! Lol! They told us to bring an empty suitcase too.....just hard as I never know what we might need.
Thank you everyone for your excitement, tips and help planning. I can't believe we leave so soon!, HOORAY!
Victoria
How exciting!!!! Glad to hear the kiddos are feeling better! I hope you have a magical time and I can't wait to hear all about it when you get back!

Quote:
Originally Posted by Jakentysmom View Post
Holy cow! I had NO idea there was a new thread! I was wonderig why no one was posting on the old one...

We leave for disney in 5 days!!!! SOOO EXCITED!!!
It is coming up SO fast!! I hope you guys have a magical time! Can't wait to hear all about it when you get back!

[QUOTE=nuts4wdw;48109211]We got our flight times. We will be landing in Orlando at 4:45 on May 31st. SOOOOOO, excited!!!!! We will be leaving in 46 days, but who's counting? Prescott has been feeling good lately. I feel like I need to lock him in a bubble for the next month and a half because I don't want him to get sick before we go. We have a busy next month, so I know the time will fly by. I'm packing slowly and looking on pinterest for great ideas that we HAVE to have before we leave. My kids and I have searched youtube and watched Disney videos and GKTW videos lots. Prescott is so cute! We talk about riding the airplane. (Now you have to understand that he can't talk, but does have a few words). When we ask who he is going to ride the airplane with, he responds with his one syllable "name" for all of his family (there are 6 of us). It melts my heart. Yep! Getting excited. I'm excited to hear of all of the wish trippers as they prepare to go and then their stories when they return. So, be sure to come back and tell us all your memories! Have fun everyone![/QUOT

It is getting So close!! We leave the day after you and get in on the 2nd. (We are doing a red eye flight) We have been watching a lot of You Tube videos too. The kids just can't get enough! I can't wait for them to experience the magic of Disney for the 1st time!

Quote:
Originally Posted by Sheri21596 View Post
Hello! I hope everyone is doing well! I am so excited to see more people who are getting their dates!!! I love reading everyones stories and hearing their wishes!

Kara just finished her second round of oral chemo on Saturday and seems to only vomit after waking up on the monday after ... We go back to Hopkins on Wednesday for blood counts. Then May 2nd is her next MRI and IV chemo. Thats gonna be a rough day She really deserves this wish after all the yucky stuff she goes through. We finally got a call from her "wish friends" asking us for 3 different dates/weeks that we would like to go. We have asked for Halloween time since her last Halloween she missed out because of her brain surgery. Part of her wish is to go to BBB and the Castle to eat but im still wondering if I book that myself? I guess all we can do is wait but its so hard! I am slowly getting some outfits for the trip and since I cannot sew Kara's aunt has ordered her a really cute princess pillow case dress.

Jackie - How is Trevor's wish coming along? And how are is your Kara doing? I hope everything is going well!!

Well I will try to post more soon! Keep posting about all the wishes!!
Glad to hear an update! Praying the blood counts are good. I think Halloween would be such a fun time to go!

Trev is doing well. We have his reveal party on May 19th and that is where he will find out when he gets to go to Star Wars Weekend! The kids are getting SO excited!! They know they get to go just not when! My Kara is doing pretty well right now. She just got over and infection in her ear from the surgery. So no getting her ear wet for another couple months. HA! She is 4 so you know how that goes! Last week she decided to dunk her head because she "forgot" what it felt like... We go in May 2nd for her pre op and will find out when the next surgery is. Her sister Allie may have the same condition as Kara and she too will be evaluated on the 2nd. Looks like the 2nd will be busy for the both of us!!

I hope everything is going well for you guys and her tests come back great.

Jackie
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TR: Trev's Star Wars MAW trip

Trevor DS 9 (wish kiddo) Allie DD 6 Kara DD 6
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Old 04-15-2013, 04:57 PM   #164
Happy Dreams1
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Quote:
Originally Posted by 2012bella13 View Post
God Bless!!!! My DD's Trip was in May 2011
God bless your family as well

Awesome- same year!! We had an awesome time- we met many families that lived in the municipality next to us and others close by. It was magical, wonderful, very cool, and just the best thing that has ever happened to me!

We leave for California in 1 month and 1 week ( may 22) and time's flying by.
__________________
Currently Living in this little island
But in my mind, I'm living in DISNEY!!

Mom Wanda(sis-22) Me- Claudia(17)(wish kid)

LOVE California...my home away from home:

My Make-A-Wish trip to Disney World 2011 :
http://www.disboards.com/showthread.php?t=2791041
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Old 04-16-2013, 09:07 AM   #165
Mom2M07
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12 days!!! We received a welcome brochure from GKTW yesterday, so we know that we are all set to arrive on the 28th. Other than that, I'd be very worried that the trip wasn't actually going to happen. We have had VERY little communication from MAW and we still have no idea what times our flights are. Every time I email our Wish Granters with a question, they forward it to the Wish Coordinator and we get an answer within an hour or so, but there has been almost no spontaneous communication from them. I feel like I'm being pushy when I ask them a question, but we're less than 2 weeks away and I know nothing about the trip, really. I'm trying to wait until tomorrow afternoon to email them, but it's so hard. I know we need to meet with them to get our details and documents and the next 12 days are crazy for us schedule-wise. I'm so grateful for the trip, but I feel like the lack of communication is just crazy.
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