Emma's Make A Wish Trip....June 15-21,2009 - Page 2 - The DIS Discussion Forums

5dwarves · 03-11-2009, 08:47 AM

So glad to hear you get to make another trip to Orlando and stay at GKTW! I saw where you said that your 13 year old is taller than you. I hear you! My 15 year old is 6'3" now and my 13 year old (my only girl) is my height....worse yet, my 9 year old is above my shoulders and to my ears...and I am not short! Our grocery bill is horrifying

When we were at GKTW, some of the princesses came to the resort on family photo day. Your daughters may get to meet some of them on the way to breakfast!

dmbfan · 03-13-2009, 07:27 PM

Quote:

Originally Posted by keetmommy

We are HUGE Jimmy Buffett fans, so a trip to Margaritaville will have to happen...

I LOVE Jimmy....can't wait to see him again in a couple of months play here in MA. We went to Margaritaville when we were down there a couple years ago and had a blast, make sure you go one night for dinner...it is a blast, I can't wait to go back in a couple of weeks....

keetmommy · 03-14-2009, 10:09 AM

Quote:

Originally Posted by dmbfan

I LOVE Jimmy....can't wait to see him again in a couple of months play here in MA. We went to Margaritaville when we were down there a couple years ago and had a blast, make sure you go one night for dinner...it is a blast, I can't wait to go back in a couple of weeks....

We have seen him about 7 times here in WI, we were on a yearly thing and then Em's whole brain tumor thing occurred and well other things took priority. This year we may go and just hang out in the parking lot.
As far as margaritaville goes, we will be going probably for lunch, we went last year and got to meet JD (the radio margaritaville dj and still is just in awe over it...I have a birthday the week we are there (the last one before 40 so it is a big deal) and I am shooting for that day.....

myasma · 03-18-2009, 10:08 PM

Congratulations on your trip. My daughter will be eligible to make her wish in April and gets excited just talking about Disney. Hope your family have fun planning the trip and while there.

keetmommy · 03-23-2009, 07:57 AM

Today is Emma's birthday...I can't believe she is 7 already...sad how when you have a sick child you can wake up and wonder how they got so old!
Anyway haven't done to much planning, but 12 weeks from today we will be on our way!!

twinmum · 03-23-2009, 03:48 PM

HAPPY BIRTHDAY EMMA!!!

: cool1:

:c heer2:

keetmommy · 03-25-2009, 05:11 PM

Emma got her first package from her wish granters today...she was thrilled and is busy coloring...

WishMom09 · 03-25-2009, 05:29 PM

Looks like a fun gift!
And Happy Belated Birthday Emma!!!

maroo · 03-25-2009, 05:45 PM

Cool!!!

The magic is starting for you guys!!!!

dmbfan · 03-25-2009, 08:15 PM

I am sorry I am a little behind, but I wanted to say Happy Birthday to Emma. I am sure she had a great day!!

As for buffett...I want to call ahead and see about making sure we can get a table to eat dinner the night we are there and not have to wait in any lines. The website says call for priority seating...so I will see.

keetmommy · 04-20-2009, 02:06 PM

Wow I can't believe 8 weeks from today we will be on our way....we haven't heard anything from them lately, but I suppose we won't until it gets closer...
We aren't doing a lot of pre-planning, we just want to get there and go with the flow...
Em has an MRI in 3 weeks and my mind is on that, once i know it is stable we will focus on the trip....I know it is coming fast....

kdzbear · 04-20-2009, 02:10 PM

I just found your pre-trip report. Your daughters are beautiful. I can't wait to here more about your planning. Thanks for sharing!

sarcasticfiesta · 04-20-2009, 02:16 PM

Subscribing

sammie girl · 04-20-2009, 07:29 PM

Quote:

Originally Posted by keetmommy

My DD Emma (almost 7) was born with a genetic disorder called Neurofibromatosis or NF1, most people (60%) with this disorder have no problems. Some have a few problems (20%) and then ther is Emma , shehasn't been so lucky, she is in the rare 20% of people she was born with a something called pseudoarthrosis of the tibia, most people with this will end up with Amputation, she has been lucky and still has her leg, but often experiences pain and has to be really careful.
Then about 1.5 years ago a MRI showed multiple brain tumors, and hydrocephalus. One of these brain tumors is inoperable being it is on her optic chasim, (where the optic nerves meet), this tumor has left her legally blind.she has had 7 surgeries since July '07, 2 of them being recections,of a tumor that was in her Temporal Lobe, that grew back after July and had to be cleaned up again in Feb '08 after that she started a 15 month protacal Chemotherapy that had to be stopped after a year due to allergic reactions. We are now in what is called watching and living mode. Could we end up back in chemo eventually, Sure but for now we are going to enjoy life, Her next MRI is in May-1 month before we leave...(we are under 100 days now though....)
We were at Disney last year, through the help of family. After all of Emma's surgeries, My Godparents let us use their timeshare, IL's bought plane tickets...my parents rented our car...we called it the NON-Make A Wish, Make a Wish trip..
So now for the fun...she is standing up in a wedding the weekend before we leave and we are leaving EARLY on June 15....we will be in Orlando by 1:15 on that day..they are planning a princess meal for us, as that is who Emma loves the best. We are HUGE Jimmy Buffett fans, so a trip to Margaritaville will have to happen...I think that will be on the 17th because that is my birthday. Don't know what else we will do...just wishing it was now as I am watching MORE snow fall outside (we are going to get 4-8 inches today....)

Amie

We are also leaving on the 15 of June. Are u staying at GKTW?

keetmommy · 04-20-2009, 07:46 PM

Quote:

Originally Posted by sammie girl

We are also leaving on the 15 of June. Are u staying at GKTW?

Yes we are...will you be there too??

03-11-2009, 08:47 AM	#16
5dwarves DIS Veteran Join Date: Jun 2007 Posts: 705	So glad to hear you get to make another trip to Orlando and stay at GKTW! I saw where you said that your 13 year old is taller than you. I hear you! My 15 year old is 6'3" now and my 13 year old (my only girl) is my height....worse yet, my 9 year old is above my shoulders and to my ears...and I am not short! Our grocery bill is horrifying When we were at GKTW, some of the princesses came to the resort on family photo day. Your daughters may get to meet some of them on the way to breakfast! __________________ My Son's Wish Trip - A Year Of A Million Dreams And One Of Them Is Ours! Wish Trippers Unite - Volume One Wish Trippers Unite - Volume Two

03-23-2009, 03:48 PM	#21
twinmum DIS Veteran Join Date: Jul 2006 Posts: 762	HAPPY BIRTHDAY EMMA!!! : cool1: :c heer2: __________________ Sorry, there is just a Pre-Trip Report for Mark's Starlight Wish Trip: November 2008: http://www.disboards.com/showthread.php?t=1883215 With a brief report on Mark's wonderful Wish Trip!

03-25-2009, 05:29 PM	#23
WishMom09 Mouseketeer Join Date: Feb 2009 Location: Texas Posts: 474	Looks like a fun gift! And Happy Belated Birthday Emma!!! __________________ Tiffany , Tom , Emilee (16) , Caleb (12- Wish Kid) , Aubree (8) Caleb's Wish Trip TR http://www.disboards.com/showthread....7#post30337247 2002 Off Site, 2009 GKTW (Caleb's Wish Trip), 2010 POR Created by MyFitnessPal.com - Free Calorie Counter

03-25-2009, 05:45 PM	#24
maroo DIS Veteran Join Date: Aug 2008 Location: MS Posts: 8,049	Cool!!! The magic is starting for you guys!!!! __________________ The ABC's...a Trip Report!Make a Wish Sends Lauren to Disney - A Rainbow TR!Wish Trippers UNITE! A thread for wish families.♥ A Wish Granted - One Magical Morning ♥ Matty and the Gingerbread Men!Video of GKTW on the Today Show!! ~ ~

03-25-2009, 08:15 PM	#25
dmbfan DIS Veteran Join Date: Aug 2006 Location: Massachusetts Posts: 512	I am sorry I am a little behind, but I wanted to say Happy Birthday to Emma. I am sure she had a great day!! As for buffett...I want to call ahead and see about making sure we can get a table to eat dinner the night we are there and not have to wait in any lines. The website says call for priority seating...so I will see. __________________ Jake's Make-A-Wish Disney Trip 3/09 (alot of pictures) http://www.disboards.com/showthread....1#post31223491

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03-18-2009, 10:08 PM	#19
myasma Mouseketeer Join Date: Mar 2009 Location: Philadelphia Posts: 458	Congratulations on your trip. My daughter will be eligible to make her wish in April and gets excited just talking about Disney. Hope your family have fun planning the trip and while there.

03-23-2009, 07:57 AM	#20
keetmommy Mouseketeer Join Date: Jan 2008 Posts: 361	Today is Emma's birthday...I can't believe she is 7 already...sad how when you have a sick child you can wake up and wonder how they got so old! Anyway haven't done to much planning, but 12 weeks from today we will be on our way!!

03-25-2009, 05:11 PM	#22
keetmommy Mouseketeer Join Date: Jan 2008 Posts: 361	Emma got her first package from her wish granters today...she was thrilled and is busy coloring...

04-20-2009, 02:06 PM	#26
keetmommy Mouseketeer Join Date: Jan 2008 Posts: 361	Wow I can't believe 8 weeks from today we will be on our way....we haven't heard anything from them lately, but I suppose we won't until it gets closer... We aren't doing a lot of pre-planning, we just want to get there and go with the flow... Em has an MRI in 3 weeks and my mind is on that, once i know it is stable we will focus on the trip....I know it is coming fast....

04-20-2009, 02:10 PM	#27
kdzbear DIS Veteran Join Date: Jul 2006 Location: KS Posts: 1,316	I just found your pre-trip report. Your daughters are beautiful. I can't wait to here more about your planning. Thanks for sharing! __________________ Me DH DD12 DS7 DD4 Tyler's Wish Trip (Nov. 20-25, 2009): http://www.disboards.com/showthread.php?t=2154359 Sept. 12-20, 2009 Trip report: http://www.disboards.com/showthread.php?t=2292505

04-20-2009, 02:16 PM	#28
sarcasticfiesta Mouseketeer Join Date: May 2007 Location: Houma, Louisiana Posts: 141	Subscribing __________________ Me DS(7) DH DSS(7) DSS(9) "You can design and create, and build the most wonderful place in the world. But it takes people to make the dream a reality."

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