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Old 01-27-2009, 12:23 PM   #1
muttshouse
Earning My Ears
 
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Smile *~Elsa's Royal Wish PreTrip~* BIG GIVE!! MAW/GKTW

Hi. I just found out about the disboards from a scrapbooking friend and am totally overwhelmed by the information and I need help to plan this trip!

Our daughter, Elsa, was diagnosed with Acute Lymphoblastic Leukemia in October 2005. We contacted our local Make a Wish Foundation in May 2008. Elsa made a wish for a Royal Ball with all the Disney Princesses and Megara and a fancy pair of shoes that would grow with her feet (like Cinderella). Right off the bat, we were told that her wish wouldn't be possible. The closest thing they could offer was a trip to WDW and they offered her either a group (with some other wish families) meet and greet with some characters or a Princess lunch @ Akershus. I decided that DD might be overwhelmed by multiple characters all at once and that seeing the princesses across the room might give her time get herself together and enjoy the interaction.

So months later, we get a call to schedule our trip. We decided Jan 17-22 would work great. Two days before the trip, Elsa has a high fever and is vomitting. Trip is postponed! (We had hoped she'd rally by Friday, but no go.)

So, now we are tentatively looking at March 24-29th. I hope we go this week because Elsa wants to be there for her 7th birthday. We'll also be celebrating that she's been off Chemotherapy for 1 year!


Our Cast of Characters:

Mom - me - Donald Duck (aspiring to be Goofy)
DH - Mickey
Elsa - Wish child (6)
DS - a dinosaur or an animal (3)

Our story:

Basically DD was diagnosed in Oct 2005. We lived in the hospital for a month during diagnosis. Whew. Elsa was hospitalized for fevers several times (for 1-3 weeks each) for the next 2 years of her chemotherapy. Her immune system is very sensitive to the chemo drugs and was pretty sick and lethargic during active chemo. She was so sensitive, her therapy was extended about a year because her body needed to recover from the medications. We're hoping that this means the cancer is gone for good.

So now the planning part:

We officially have the word! We get to stay at Give Kids the World!

Advanced Dining Reservations: 1900 Park Fare end of our first day @ MK. No plan for lunch yet.

For DD's Birthday, we're @ Epcot. Princess Lunch @ Akershus. I hope they have food the kids will eat. Dinner will be at the Garden Grill at the Land for dinner.

No ressies for AK or DHS. Not sure what the plan is right now.

We will have 3 day park hopper passes and I've planned for MK, Epcot, and AK. One day will be at Sea World and then we'll have 2 half days (travel days).

We'll be celebrating DD's birthday and the anniversary of ending her Chemotherapy, but don't have any special events planned. Suggestions welcome!

Last edited by muttshouse; 03-17-2009 at 09:18 AM. Reason: Update and title change
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Old 01-28-2009, 06:40 PM   #2
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Welcome to our little family
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Old 01-28-2009, 06:46 PM   #3
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Yeah!!

Another Wish Trip!!

Do you want to be listed on our Wish Trips thread?

You can come check it out...it is the blue link below in my siggie!

Nice to meet you guys!!

Now, I think that MAW could certainly make shoes that grow with her feet!
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Old 02-03-2009, 09:00 AM   #4
muttshouse
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Quote:
Originally Posted by maroo View Post
Yeah!!

Another Wish Trip!!

Do you want to be listed on our Wish Trips thread?

You can come check it out...it is the blue link below in my siggie!

Nice to meet you guys!!

Now, I think that MAW could certainly make shoes that grow with her feet!
Hi Maroo!

I'd love to be on the Wish Trips thread.

I did tell DD that *some* of her wish might be hard to do . . .

UPDATE: Our trip is now scheduled for March 24th-29th!!

YAY! DD wished that we could reschedule for her birthday and voila we're going down to WDW that week.
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Old 02-03-2009, 09:02 AM   #5
muttshouse
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Welcome to our little family

Hi! Thanks for the warm welcome.

This board is HUGE and overwhelming! Just making the smilie decision distracts me!

I don't feel like I have enough time to research. Life does get in the way!
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Old 02-03-2009, 09:34 AM   #6
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Joining in on your pre trip report! Sounds great, and congratulations on 1 yr without chemo
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http://www.disboards.com/showthread.php?t=2182745

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http://www.disboards.com/showthread.php?t=2066680
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Old 02-03-2009, 10:42 AM   #7
muttshouse
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Originally Posted by 3princesses+aprince View Post
Joining in on your pre trip report! Sounds great, and congratulations on 1 yr without chemo
Thanks! Any tips are appreciated!


What do with the last half day of travel?? I want to go to mousememories.com's warehouse, but I'm not sure if that's feasible.
Do we spend the day at DTD? No clues here. Maybe I'll just be packing!
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Old 02-03-2009, 08:00 PM   #8
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Welcome to DISboards. Great start on your PTR, looking forward in hearing from you after you will arrived from your trip. Have fun and enjoy.

Have a safe trip coming.
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Old 02-03-2009, 08:02 PM   #9
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DATES

what a great birthday present
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Old 02-03-2009, 11:23 PM   #10
muttshouse
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DATES

what a great birthday present
We were *supposed* to go during MY birthday week!! I had my personalized cake all ordered and everything. Now the personalized cake will be for DD.


Tonight's adventure: DD fell while at a friend's house. The girls were jumping from the staircase onto a trampoline and then trying to land on the carpet. I knocked on the door just as she fell. I could hear her crying and asking for me. Her bff was upset and ran upstairs.

I got her home and tried to check to see if she dislocated her elbow. It was unclear. Her pain got worse as time went on so I decided to take her to the ER. I had to wait for DH to come home to watch DS. It snowed all day and the traffic was jammed up. It was 7pm by the time I left with DD to go to the ER. Luckily this hospital has a pediatric ER department too. THey got us triaged, Xray'd and home by 9:30p! Wow!

DD apparently has a sprained and bruised elbow which may take a while to heal up. The pain should disappear within a couple of days. (But still give her Tylenol they said! I ended up talking scrapbooking with the ER doc and convinced her to come scrapbooking on Sunday! (DD was a little miffed that I was making scrapbooking friends on her time!)

Off to bed!
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Old 02-03-2009, 11:44 PM   #11
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Guess who!

Ohh poor DD. You didnt tell me that. I feel so out of the loop. cant wait to see what else happens in your planning.
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Old 02-06-2009, 02:08 PM   #12
muttshouse
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Guess who!

Ohh poor DD. You didnt tell me that. I feel so out of the loop. cant wait to see what else happens in your planning.
Hey Rachal!

You're not out of the loop. I ran out of stean and only posted here. Thanks for hooking me up here!
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Old 02-08-2009, 07:36 PM   #13
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sorry she got hurt hope she is on the mend soon
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Old 02-17-2009, 05:51 PM   #14
muttshouse
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Smile

Elsa's feeling much better. She made me write a note and carefully put her arm in and hand her up the bus steps. After the first day at school in the sling, she came off the bus with the sling in her backpack! Guess she was feeling better!

Today we went to clinic for her quarterly check up. Her regular oncologist was on call on the inpatient side so we saw a different doc. The other doc gave us a thumbs up, but seemed very surprised and concerned about DD's report that there were learning problems. UM, don't you expect the chemotherapy drugs you injected to float around her brain to affect the brain?? (GOSH I JUST LOVE THESE SMILIES! )

The good news is that we are now on clinic visits every 4 months. She even wanted to drop the monthly blood tests. She compromised by saying every 2 months. Whew. Then she said, "Well, parents know if anything's wrong." She repeated this several times.

The worst part of clinic was getting Elsa to straighten her arm out for her blood test. She totally freaks out - screaming, kicking etc. I have to pin her arm and legs down. I always feel awful about doing this to her. I always get frustrated that she hasn't gotten used to being calm for these procedures after 4 years!!

We actually got out of the hospital by 10:15 AM!!! Wow! Totally unheard of. So we went to the Philly Zoo. We haven't been there in ages. It was a little cold and not everyone was out of school today. The zoo was so empty - our own little world. The docents were there and gave us private Q&A sessions. The animals were awake and moving around. I've seen animals in their habitats moving around today that I have NEVER seen in their habitats for 5 years of going to the zoo. The kids behaved overall. Really nice trip.

After getting home, I subjected them to 45 minutes of Comcast ondemand Disney Travel Channel!! DS kept asking for "kid tv" when any non-AK parts showed up. After about 20 minutes, DD says to me, "Mom, you don't have to make us watch these videos. I won't be disappointed by my trip no matter what we do." AWWWW!

I've been stressing over the planning part of the trip - especially since it's not *exactly* what she wants. What a sweetheart!

Of course during these videos, they do a segment on Cinderella's Dream Suite. She forgot to ask to stay there as part of her wish. Now she's wondering if we can stay there. Is there any chance of visiting the suite you think?

Gotta get the kids to bed now. Thanks for listening!
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Old 02-17-2009, 06:08 PM   #15
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Wooohoo! Sometimes Dr's dont think.

I have to hold the girls down for shots/blood work too. Its a parent thing. I hate it. We had to hold DD#2 down for a urine test one time. that was the worst.

Glad you had a great day at the zoo. did you take any pics to use your new paper with?

Got your package today! Wow!! Its nice to be .

So what help do you need in the planning? I am always around! I think that it will be a great trip no matter what.

I have no idea about the Suite thing. you'll prolly have to get ahold of your person and see.
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