|
|
11-10-2012, 05:08 PM
|
#1 |
|
Have an Attitude of Gratitude!
*sadly, no emoticons because my pix max out the limit-my words will have to stand alone* 
Join Date: Oct 2004
Location: California
Posts: 773
|
On hospice
I am now on hospice and preparing to die.
on october 10 I spiked a fever & went to the hospital. I was also in extreme pain. I had a blood infection & scans revealed my gallbladder burst and I had necrosed tissue. i was able to transfer to the picu. after debate a drain was placed to remove leaking fluid from my gallbladder. really helped my bloating. I am on an i.v. pca dilaudid drip to control pain. I haven't been off the vent in a month due to infection issues. I was determined too high risk for surgery and am home on hospice. my temperature is 100.5 which means the blood infection may be returning. i will not treat it (came from gallbladder leak originally) if it returns. I know there is life after death & I have great things waiting. I have a post prepared that will be put up by family after I die. thank you for all your support. I ask for prayers for my family. if you'd like to send a card, you can message me for my address.
__________________
My trip report: Driving 6000 miles for the Magic: A Miracle Trip
http://www.disboards.com/showthread.php?t=1427306 Boo'd!!  Frosted  , Snowed  , Ho ho'd  Tree'd! "Everything in life is a choice. Even if the only choice we have is the attitude with which we embrace each moment." Mattie Stepanek Last edited by SueM in MN; 11-10-2012 at 06:18 PM. |
|
|
| Sponsored Links | |
|
|
|
|
11-10-2012, 05:15 PM
|
#2 |
|
|,,|/ DEAF DISNEY LOVER
Mom to 2 beautiful young ladies SIGNS TO OLDIES ON THE RADIO 
Join Date: Mar 2002
Location: Pooh's Thoughtful Place AKA SE Fla
Posts: 9,707
|
praying for you all. God bless
__________________
 Talking Hands |,,|/ DEAF Disney Lover |
|
|
|
11-10-2012, 06:12 PM
|
#3 |
|
It's like combining the teacups with a roller coaster
Join Date: Aug 1999
Location: Twin Cities area,Minnesota,USA
Posts: 28,585
|
Sending lots of prayers for you and your family.
You have been a source of inspiration to others. I have no doubt that you are going to a better place and hope you have a peaceful journey there. 
__________________
SueM in MN
Moderator of disABILITIES Link to disABILITIES FAQs thread Spaceship Earth: We are all passengers together. Life is what happens to you when you're busy making other plans......John Lennon Be a rainbow in someone else's cloud. Dr. Maya Angelou trip report link in Memory of eternaldisneyfan, who lived these words: Some people are always grumbling because roses have thorns. I am thankful that thorns have roses. Alphonse Karr |
|
|
|
|
11-10-2012, 08:36 PM
|
#4 |
|
I count on y'all to keep me up to date ;)
I'm ok going up, just can't go down... 
Join Date: Feb 2006
Location: columbus, ohio
Posts: 7,502
|
Christamae, I just read your entire trip report! You are one amazing young lady! Your writing is a true gift~ heartwarming, funny, inspirational. Your family is an example of pure love, selflessness, an example of perservearance and faith. Your shared experiences will stay with me always and I will never watch Wishes again without thinking of you!
You've had a long, courageous journey, I'm quite familiar with Muscular Dystrophy. Your amazing spirit and outlook on life HAS outshined any challenge that has brought to you. I see a beautiful, talented girl with a passion for life that few see. Your gifts you shared, in your trip report alone are gems that will remain ingrained in the hearts of anyone who has or may read. I'm sure anyone who has had the pleasure of meeting you and loving you will carry your light in their hearts. I wish for you peace, love and light.  Beth
__________________
minniebeth
 |
|
|
|
|
11-10-2012, 08:48 PM
|
#5 |
|
Mouseketeer
Join Date: Sep 2006
Location: Mississippi
Posts: 222
|
I am so sorry to read this. God bless and prayers to you and your family.
__________________
  |
|
|
|
|
11-10-2012, 08:57 PM
|
#6 |
|
Tossed the butter kept the gin
I had to save it for "special" occasions (like when no one I knew would see me) 
Join Date: Aug 2003
Location: Arkansas and New Orleans
Posts: 7,272
|
I'm so sorry. This sounds pretty familiar to me.
I woke up with a fever in July and went to the hospital by ambulance by the end of the day. I was in ICU on a vent with a feeding tube for over a week. Leakage from my common bile duct/intestines - e coli sepsis. I was not expected to live. My heart, kidneys, and liver were shutting down. I have been in the hospital a couple of times since as the defect in my bile duct is still there. I do have a temporary stent right now. No one has told me that I am terminal but if I get the sepsis again I might not be so lucky the next time. Best wishes to a lovely person.
__________________
Fear the tree!
 |
|
|
|
|
11-10-2012, 11:31 PM
|
#7 |
|
Join Date: Mar 2000
Posts: 2,664
|
Praying for peace for your family and a peaceful journey for you.
__________________
Piper
|
|
|
|
|
11-11-2012, 09:43 AM
|
#8 |
|
DIS Veteran
Join Date: Sep 2010
Location: Oklahoma
Posts: 973
|
I hadn't read your trip report, so when I saw your post I went back and read it. I was just astounded by your beautiful spirit. I didn't really know what to say last night, but I couldn't get you off my mind. I just wanted to write and say that from reading I could tell you are a wonderful person.
|
|
|
|
|
11-12-2012, 07:28 AM
|
#9 |
|
DIS Veteran
Join Date: Feb 2010
Location: New Jersey and proud of it!
Posts: 3,416
|
I just read your trip report, I wish I could comment on it. It needs to be bumped to the top, so many people could benefit from reading it and learn from you. You are such an inspiration and an amazing person. God bless and prayers for you and your family.
__________________
Removing my expired ticker stinks!
 |
|
|
|
|
11-12-2012, 08:29 AM
|
#10 | |
|
It's like combining the teacups with a roller coaster
Join Date: Aug 1999
Location: Twin Cities area,Minnesota,USA
Posts: 28,585
|
Quote:
It is not closed exactly, but I believe once those threads are put in that forum, they can no longer be posted to. I am contacting the Moderator of that Board to see about posting a link to this thread on her trip report thread. There is a link to that thread in post 3 of the disABILITIES FAQs thread.
__________________
SueM in MN
Moderator of disABILITIES Link to disABILITIES FAQs thread Spaceship Earth: We are all passengers together. Life is what happens to you when you're busy making other plans......John Lennon Be a rainbow in someone else's cloud. Dr. Maya Angelou trip report link in Memory of eternaldisneyfan, who lived these words: Some people are always grumbling because roses have thorns. I am thankful that thorns have roses. Alphonse Karr |
|
|
|
|
|
11-12-2012, 09:45 AM
|
#11 | |
|
DIS Veteran
Join Date: Feb 2010
Location: New Jersey and proud of it!
Posts: 3,416
|
Quote:
__________________
Removing my expired ticker stinks!
|
|
|
|
|
|
11-12-2012, 12:13 PM
|
#12 |
|
Mouseketeer
Join Date: Oct 2007
Posts: 438
|
Sending good thoughts your way. You've been a wonderful person to have on the boards. I'm glad that you seem to be at peace with where you are and hope that you are able to enjoy what you can in your remaining time. I hope the rest of your family is also able to find their own levels of peace.
|
|
|
|
|
11-12-2012, 03:42 PM
|
#13 |
|
DIS Veteran
Join Date: Apr 2008
Location: San Diego, CA
Posts: 945
|
I originally found this thread on the Community board Saturday night. I read it and thought it was sad and decided to read the trip report link. I was humbled by what I read and what I take for granted. OP you are an inspiration and I'm sending prayers and hopes of comfort for you and your loving family. Take care.
|
|
|
|
|
11-18-2012, 03:57 PM
|
#14 |
|
It's like combining the teacups with a roller coaster
Join Date: Aug 1999
Location: Twin Cities area,Minnesota,USA
Posts: 28,585
|
There was an earlier thread that some of us had posted to.
I combined the 2 threads into one. Praying for peace for you and your family.
__________________
SueM in MN
Moderator of disABILITIES Link to disABILITIES FAQs thread Spaceship Earth: We are all passengers together. Life is what happens to you when you're busy making other plans......John Lennon Be a rainbow in someone else's cloud. Dr. Maya Angelou trip report link in Memory of eternaldisneyfan, who lived these words: Some people are always grumbling because roses have thorns. I am thankful that thorns have roses. Alphonse Karr |
|
|
|
|
11-19-2012, 09:58 PM
|
#15 |
|
Learned a difficult lesson about eating chocolate in the dark!
Had to admit to eating bird poo to get what she wanted Fully open=cool. Fully closed=cool. Half way=no can do 
Join Date: Apr 2004
Location: Warrington, PA
Posts: 3,189
|
Christamae, I don't know if you're still reading here. I don't post very often on the disABILITIES threads, but I do read because of the work I do with children with disabilities.
I have read your trip report and followed your story. You have been inspirational. I wish you all the peace and love right now. Godspeed to you.
__________________
Mari...A Great Big Beautiful Tomorrow is Just a Dream Away...7/98 Carribean Beach ... 1/03 All Star Movies ...9/03 All Star Music ... 6/04 Port Orleans Riverside Honeymoon
 ... 1/05 Port Orleans French Quarter ... 1/06 Carribean Beach ...9/06 Pop Century ... 8/07 Port Orleans Riverside...9/08 Port Orleans French Quarter...9/09 Coronado Springs...9/11 Port Orleans Riverside |
|
|
|
 |
| Thread Tools | |
| Display Modes | Rate This Thread |
|
|
Hybrid Mode
