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-   -   Still trying to accept that I have to have a ECV... (http://www.disboards.com/showthread.php?t=1170129)

Mom of 3 07-19-2006 10:19 AM

Still trying to accept that I have to have a ECV...
 
I still get that niggly feeling in my tummy that I have to use a ECV to get around. I know I need to accept the fact but it's hard.

In my every day life I don't use a wheel chair because I can limit the amount of walking I do and if I'm having a bad day I can take it easy. I have Rheumatoid Arthritus and even though I can walk for a good couple of hours there is no way I could walk for an entire day around Disney.

Plus when you are at Disney and you park the ECV and walk to a regular seat or get up to stretch your legs you get those looks or comments from other people that don't see you as having a disability.

Hubby tells me to be sensible and just use the ECV because if I did over do it on my feet I really wouldn't be able to walk at all. The first time I ever went to Disney I refused to be in a wheel chair and walked around for most of the day even though my feet really hurt and by the end of the day I couldn't walk at all. I couldn't even make it from my bed to the bathroom without being carried.

I'm sure others that don't have an obvious disability or can do normal activities for a couple of hours before feeling tired or being in pain must feel funny about having to be in a wheelchair or ECV.

I suppose I'll get over it and make sure my 3 boys have a great time, DS10, DS6, and DS2.

Thanks for listening,

Anita

poohbear7 07-19-2006 11:11 AM

Please use an ECV. I know how you feel it took me a long time before I would admit I needed one. One time when we were at Disney I refused to use one and my family saw me stuggle. They went and rented one for me and brought it to me without me knowing. I had no choice but to use it and what a difference it made. I've never looked back I now take my own to Disney.
Don't worry about what others think by looking at me you would never know I have more than one disability. Go use the ECV and enjoy your trip it will make your trip a lot easier and enjoyable.

Alex2kMommy 07-19-2006 11:51 AM

I'm so glad you are going to use an ECV at Disney! My mom is overweight and has bad ankles, and can barely make it through the grocery store. She was embarrassed by a doctor years ago when she asked what could be done about her ankles, and he snorted and told her to lose weight. She just recently (after much nagging on my part) asked for a 'disabled parking' tag for her car.

There are so many things that she just doesn't do anymore because she can't walk that far and doesn't want to use a wheelchair or inconvenience others. She misses out on so much, especially time with her kids and grandkids! I would love it if she would use an ECV and go to Disney, but she wouldn't even consider it. :sad2:

Alex2kMommy 07-19-2006 11:54 AM

I'm so glad you are going to use an ECV at Disney! My mom is overweight and has bad ankles, and can barely make it through the grocery store. She was embarrassed by a doctor years ago when she asked what could be done about her ankles, and he snorted and told her to lose weight. She just recently (after much nagging on my part) asked for a 'disabled parking' tag for her car.

There are so many things that she just doesn't do anymore because she can't walk that far and doesn't want to use a wheelchair or inconvenience others. She misses out on so much, especially time with her kids and grandkids! I would love it if she would use an ECV and go to Disney, but she wouldn't even consider it. :sad2:

YOU, on the other hand, are going to have a great time with your family, and they will be so happy that you are with them and able to enjoy yourself, too! :sunny:

angelbaby29871 07-19-2006 11:58 AM

i agree with poohbear7. it makes it easier and more comfortable to get round the world. i can get up and move around also and have heard some rude comments thrown at me but i just ignore them now. i have my reasons for using an ecv and its non of their business. i also have arthritus as well and its hard to get around sometimes especially on a holiday to wdw with your family. rent your ecv, have a great holiday and ignore those people ignorant enough to give you dirty looks and hurtful comments. Have a great vacation

spiceycat 07-19-2006 01:59 PM

mother can barely walk at all and she still claims she is not disability - she just has a problem walking..... :rotfl: :rolleyes1

anyway my opinion of those people is they are just jealous. You had the far sight and the ability to get a ECV and they didn't....

all the WDW resorts have free wheelchairs - if you would rather do a wheelchair.

mother hates ECV, scooters and anything else powered,... so she has to be pushed....

so be sure and try out one first - before you rent one. some people can't (how about won't) learn to use one.

oh I am horrible today. :smokin: :moped:

Cheshire Figment 07-19-2006 07:44 PM

Anita, welcome to disABILTIES!

I remember the first time I used an ECV at WDW. Judy told me it was a great relief for her since I did not have to stop every few hundred feet.

To really set your mind at ease, please ask yourself the following questions. Here are the suggested answers to go with them.

1. Are you disabled (even temporarily)? Yes.

2. Do the people you are travelling with, such as your family, know you are disabled? Yes.

3. Do you expect to meet anyone you know during this trip who may not know you are disabled. Probably No!

4. Do you expect to meet a bunch of people who you will probably never meet again in your life? Probably yes!

5. Is there any reason at all that you should care what these people think about you? Absolutely No!!

6. Will using a wheelchair or ECV make for a better vacation for you and your family? Absolutely YES!

poohbear7 07-20-2006 10:24 AM

You said it very well Cheshire Figment I totally agree.

schlepsnort 07-20-2006 10:48 AM

I know exactly what you mean
 
I'm 30 but have had RA all my life. I've had both hips replaced and my rt. ankle fused. I still have issues with my knees and other joints. I had a handicapped sticker that I used before my hips were done. I was actually verbally attacked by two senior citizens at the mall when they saw me park in the handicapped spot. I tried to explain my RA and was screamed at and was called many unkind names, I was only 18 at the time and walked with an obvious limp. They, like so many others assumed that because of my age there was no way I could be arthritic. Funny, I never knew arthritis came with an age requirement... :furious:
So anyway, I used to be rather timid and apologetic about not being "normal" and doing what is expected of my age group. I got tired of the looks and the sniping so I got rather in your face about it. Typically if someone shoots me a look I will shoot them one back and point to one of my more obvious scars (there are several) or a rather largely swollen joint that noone can deny, that's not normal and painful looking. And now I have a healthy collection of Arthritis related t-shirts that I've gotten from my own concoction or from doing arthritis walks to raise funds. I wear those when we go out to a place like WDW or even local fairs/amusement parks. That tends to cut down on the dirty looks and nasty comments. :stir:
My limp is even more noticeable now days and I tend to have tunnel vision just concentrating on getting to where I want to be and ignoring those around me. :blush:
I don't know if I will rent a chair while we are at the parks. We are only spending one day at MK and it's our last day so I might just go whole hog and take prednisone with me to help stave off the pain for that day. I haven't decided. My DH is very careful about suggesting a chair or ECV to me because he knows that I have a hard time accepting it as well. I had foot surgery about a year ago and I was so bitterly angry about using an ECV just to go grocery shopping but I had to do it. Otherwise DH would totally blow the grocery budget and we'd be eating all kinds of junk food! :rolleyes: But honestly, if it starts getting too painful or all of my breaks start impeding on my kids having fun then I will break down and get an ECV and anyone who doesn't like it can stuff it in my opinion. Tolerance shouldn't be saved just for different ethnicities, it should also be for those of different abilities.
ok, off of my soap box now. After dealing with it for 30 years it's still a hot button topic for me.
Good luck, don't feel guilty, and stick your tongue out at those who make comments. It's not like you didn't have to wait any less time for the ride and they are just jealous of you anyway, who wouldn't like to ride around and save their legs? :p

Schmeck 07-20-2006 01:55 PM

Quote:

Originally Posted by spiceycat
all the WDW resorts have free wheelchairs - if you would rather do a wheelchair.

These resort wheelchairs are first-come, first-served - can't be reserved in advance, etc, and may be all in use at the time, so I wouldn't depend on getting one. It might be better to rent one from an offsite company if you want a wheelchair the entire trip.

Biscuitsmom31 07-20-2006 05:27 PM

I've got RA too. My plan is to get a cortisone shot a week before we leave. I'm hoping that will get me through the trip. :cool1:

schlepsnort 07-20-2006 05:37 PM

Cortisone!
 
Yep, as much as it HURTS to get it it is so worth it when you do! I think I'll probably need one for my knee before we go. At least my rheumy usually sprays the beejesus out of the area for the injection with freezing spray so I don't feel it as much. I had to get several shots during my pregnancy into my hip thanks to bursitis. So not pleasant but afterwards I got weeks of relief. :goodvibes

I'm going the cortisone, Enbrel injection a day before we leave, and then bringing back up prednisone, motrin, and extra strength tylenol. At night at the resort I plan on soaking my 'old' body in a hot bath tub with muscle relaxing salts and then rubbing ben gay on anything that might possibly hurt.

And again, if I think I'm slowing the group down, I will get an ECV. I want memories of WDW, not of hurting and where I had to sit it out! :wizard:

sleepingbeautymama 07-20-2006 06:05 PM

Quote:

Originally Posted by Mom of 3
I still get that niggly feeling in my tummy that I have to use a ECV to get around. I know I need to accept the fact but it's hard.

Hi, I know how you feel. I am also trying to accept the fact that I will have to rent an ECV. I guess it's so hard because I don't want to be disabled and I feel like I'm too young to be disabled (in my 30s). I have fibro, CFS and PN so it will be virtually impossible for me to make it without an ECV. I don't know why it bothers me but I worry about the stares I may get because I don't look disabled at all. I also feel like I have to worry about my own dh who makes me feel like I should try without one. I think he's going to be more embarrassed than me so it makes it that much harder for me to accept when I can't get him to. I already have a special cushion I have to sit on for one of my disabilities and he's less than thrilled when I take it places. The one thing I keep telling myself though is...should I care about what other people think and it's not like I personally know them anyway and do I want to ruin my dd's first trip to Disney because I'm in so much pain that I end up staying at the resort. Good luck to you and I hope you enjoy your trip.

videogal1 07-20-2006 09:12 PM

You should remember, when people are giving you THAT look, that you don't have to be disabled at the level required by the definition of the ADA in order to use an ECV. Good grief, if that were the case, the on- and off-site medical vehicle rental companies would go broke. Many people who do not qualify as disabled under the ADA rent ECVs and wheelchairs to accomodate their medical conditions...a fact that the more judgemental element of WDW vacationers seems to forget. :thumbsup2

starflower 07-21-2006 01:23 PM

Quote:

Originally Posted by Mom of 3
I still get that niggly feeling in my tummy that I have to use a ECV to get around. I know I need to accept the fact but it's hard.

In my every day life I don't use a wheel chair because I can limit the amount of walking I do and if I'm having a bad day I can take it easy. I have Rheumatoid Arthritus and even though I can walk for a good couple of hours there is no way I could walk for an entire day around Disney.

Plus when you are at Disney and you park the ECV and walk to a regular seat or get up to stretch your legs you get those looks or comments from other people that don't see you as having a disability.

Hubby tells me to be sensible and just use the ECV because if I did over do it on my feet I really wouldn't be able to walk at all. The first time I ever went to Disney I refused to be in a wheel chair and walked around for most of the day even though my feet really hurt and by the end of the day I couldn't walk at all. I couldn't even make it from my bed to the bathroom without being carried.

I'm sure others that don't have an obvious disability or can do normal activities for a couple of hours before feeling tired or being in pain must feel funny about having to be in a wheelchair or ECV.

I suppose I'll get over it and make sure my 3 boys have a great time, DS10, DS6, and DS2.

Thanks for listening,

Anita

I'm right there with you Anita. I also have RA and have only recently (this year) developed problems walking and standing. My fiance and I are going to Disney World in a couple of weeks and I'm fighting with myself about getting an EVC. I know I really should do it, but there's such a large part of me that is worried about all the things you mentioned, as well as a part of me that feels so helpless and frustrated at having to use an ECV at all. I have arch and ankle braces, and I'm tempted to use them for a half day at one of the parks before trying to take on a full day.

-Joie


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