The THYROID Thread

John that is good news the biopsy was negative
Always nice to have news like that

Did not her results back yesterday
Guessing the department is backed up and handling readings of the ones prior to me

What type of issues did you have John before your tumor was removed?

I'm trying to figure out if my symptoms are similar to yours
 
John that is good news the biopsy was negative
Always nice to have news like that

Did not her results back yesterday
Guessing the department is backed up and handling readings of the ones prior to me

What type of issues did you have John before your tumor was removed?

I'm trying to figure out if my symptoms are similar to yours

Mostly being tired, weak and not understanding why. Blood test had high calcium then further testing proved the parathyroid issue.

As always, hoping for good results.
 
Well my blood testing has shown calcium has been high the last 23 months
Besides the bone density test , what other test is done to prove it is parathyroid problem ?
Anything anyone can share will be very much appreciated
 


thanks john.

i'm now looking to see if i can find an endo closer to me.
prefer not having to fly to chicago again.

i have vanderbilt and emory for the major medical centers to choose from.
 
thanks john.

i'm now looking to see if i can find an endo closer to me.
prefer not having to fly to chicago again.

i have vanderbilt and emory for the major medical centers to choose from.

Hope things go well. Mine was done by a great ENT guy. He really informed me about everything and was overly concerned about vocal cords since goiter and parathyroid were large. Took some time for voice to return but constant checking on his part, great bedside manner, and his prediction of length of time, which was longer than normal, was pretty much spot on.
 
since i have thyroid and salivary gland issues, i feel confident about my medical treatment with my endo.
what i don't quite grasp is the medical plan to treat my hyperparathyroidism.

labs are now back and she wants me on bisphosphonates for 6 months, retest and if still hyperparathyroid, then surgery.

does this make sense?
i have a high calcium level in the blood, what would taking a scripted calcium med do for me?

i have googled this and have not found an answer i can live with.

if you have any thoughts or knowledge of this, please share with me.
color me confused at this point.

in the meantime, i am trying to locate a new endo that will be closer to where i live.
 


labs are now back and she wants me on bisphosphonates for 6 months, retest and if still hyperparathyroid, then surgery.

does this make sense?
i have a high calcium level in the blood, what would taking a scripted calcium med do for me?


macraven: I found this:

Bisphosphanates
Bisphosphonates (bis-fos-fon-ates) are very effective drugs for helping to get your calcium levels down. You can have some of these drugs through a drip into a vein, but others come as tablets. Which type you need depends on how high your calcium levels are. Your doctor will decide on the best treatment for you.

As well as getting calcium levels down, bisphosphonates can help to reduce pain from bone secondaries and help to stop damaged bones breaking. You may have bisphosphonate tablets to take home to stop the calcium building up in your blood again. We have more information about bisphosphonates and their side effects.

Bisphosphonates can sometimes make your calcium level go too low (hypocalcaemia). This should be picked up by blood tests, but also causes symptoms such as changes in sensation – for example, tingling or burning in the lips or tongue.


Read more at http://www.cancerresearchuk.org/abo...ium/managing-high-calcium#q6OQCceRVGXUjxD3.99
 
Thanks Christine for helping
I already had the info on those drugs but might not be able to take them
 
Hope everyone is doing well

Christine - saw your other post about an August trip. I think 2 years ago I went with ds at the end of August and all I can say was boy was it hot!! I think we finished a case of water when we were there and it was about 4 or 5 days. I think I posted that I almost passed out by China in Epcot but I didnt. Ds was sweating like crazy. Oh and I didnt have to pee all day. I asked ds about this and he said I was just sweating everything out of me so bad.

So if you are going then just be prepared to hydrate. The lines for everything were bearable. He did alot of rides himself single rider like the coasters.

If it works out I hope you have a great time. I dont know if ds wants to go there this time again (august) or not. He was actually talking about going to Las Vegas with his friends. He will die for sure from heat but its the only time they can go and I think they are going to see their relatives too.

I know ds gets the nurses discount at the Dolphin so I am sure he will try to talk me into something sometime soon depending on his schedule, lol.

Well I feel like the witch from the Wizard of Oz....help I'm melting, melting. Going on day 7 with no central air but the guy is finally coming tomm. (earliest he could get here). I have a feeling we will have to get a new system. Its 20 years old and 2 years ago he told us it would only last another 2 years.

Ds3 had today off so he took pity on my non air conditioned state and we went to see Finding Dory and then out to lunch where we bumped into our pastor and a guy from church. It was good to be in the air conditioning and we both liked the movie.

I havent scheduled my sonogram due to all the ac issues and who knows what will be happening, so its on the to do list just dont know when yet.

Check in when you can everyone.
 
Hey LMP, thanks for the input on the August trip. After I thought about it, I realized I probably just can't go. I've got my 16 y/o dog to care for and nothing to really do with her if we go. My husband would have to stay home and I don't think he's up for doing that this time. But who knows, maybe it will work out somehow (magical thinking!). My son pretty much can't do anything during the school year as far as travel so I'm limited to summers and holidays.

Funny about your AC. Mine went last week too. My unit is 22 years old and it's been cooling less and less each year. The only upside is that I have dual zone HVAC so while my main level does not have AC now, my upper level (bedrooms) do as that one is working well. As long as I can sleep comfortably I'm doing okay. I was breaking out in a sweat a few times cooking this week but it's manageable. So, next week, I'm out $8,000.

I had my neck ultrasound last Wednesday. I haven't heard anything so I'm thinking the doctor just won't call. He gave me the order for it back in February so I'm thinking we will just discuss it during my next visit in August. I'm sure if it was "bad" he would probably call. But maybe I should check just to make sure he got the report.

Oh well, thank goodness tomorrow is Friday. I need a weekend!
 
I feel your pain - we had to replace central air unit last year and the furnace this year! Quick - time to sell the house! lol

DD finished her second internship and is waiting to hear about a full time job with Disney. Everything is pretty much on hold due to over budget of Shanghai. She's getting frustrated. Her managers all said they would take her back in a minute - just as soon as positions open up again.

After all the sad events the past week in Orlando, DH decided he wanted to take vacation now and had me book a 7 night cruise on the Fantasy. He said he needed to see DD and give her a diversion. So - we fly in on Friday and spend a night at POFQ, then catch the ship on Saturday. British Virgin Islands and US Virgin Islands, and Castaway Cay. Back next Saturday, one more night at POFQ and then kiss our girl and head home. I can't wait to see her - it's been over a month. :cutie:

At least I'm feeling better - had a terrible bout of asthmatic bronchitis the past few weeks. First time using an inhaler. I was wheezing like crazy! Cough is finally calming.

say a prayer DD hears about a job soon!
 
gain.

After all the sad events the past week in Orlando, DH decided he wanted to take vacation now and had me book a 7 night cruise on the Fantasy. He said he needed to see DD and give her a diversion. So - we fly in on Friday and spend a night at POFQ, then catch the ship on Saturday. British Virgin Islands and US Virgin Islands, and Castaway Cay. Back next Saturday, one more night at POFQ and then kiss our girl and head home. I can't wait to see her - it's been over a month. :cutie:

Sounds like a great way to cheer up!!! Enjoy the trip and seeing your DD.

I ended up calling my endo today to check on the ultrasound results. He never got them so I put in a call to the radiology department and they were supposed to be sending them over. So I guess I can't really count on "no news is good news"!

Oh well, Happy Friday everyone!
 
Heard from the endo and the ultrasound was good. During the call he said "they did note some lymph nodes on one side." I'm like "What do you mean? Were they enlarged?" He says "No, all normal." I asked him why they would *note* them then. I mean, aren't lymph nodes supposed to be in the neck. Yes, they are he says and it's normal. Doctors can be odd at times.
 
Nice to see more here and catching up on how and what they are doing

I have my diagnosis completed and now searching for a new one

Too complicated to keep traveling back and forth to Chicago for my endo there

I need one within a two drive from my home so starting over again in my search

Weather here is hot and humid but not an issue for me

Looking forwards for my Orlando vacation this fall
Have adr's set up just more if a wait to do fp

Hope all are doing fine
 
hello all- I had read a good portion of this thread when I started having thyroid issues last yr and remeber seeing a ref to a good site for more info. Someone here said there was One that had forums, had nice people on it that would answer questions.kind of like here.....I am wondering if any of you might know which site was being recommended?

I am going for my 4th ultrasound, 1st and 3rd were done 5 months apart at the same place and showed no difference in growths. I had another,2nd, done at my 2nd dr office(the first closed his door with no notice)in betwwen no change in six=ze but wanted a biopsy on the other side. Again benign. Insurance changed and had to go to new dr-he just did an ultrasound in office and said 1 nodule has grown rom 3.5 cm to 4 cm. wants to talk surgery or another biopsy as he said its unusual for a begeing nodule to grow that fast. I am now going to have another ultrasound done at the original imaging center where first and 3rd were done to make sure of growth.

Blood work shows normal thyroid function. That is why I am looking for more info. I want to see what experiences people have had with surgery for when a nodule is getting to large, how large until commonly taken out, see what I can expect med wise, recovery...things like that.

Thanks again for input!
 
I have not experienced what you are dealing with but wanted to wish you the best in what you are going through
 
hello all- I had read a good portion of this thread when I started having thyroid issues last yr and remeber seeing a ref to a good site for more info. Someone here said there was One that had forums, had nice people on it that would answer questions.kind of like here.....I am wondering if any of you might know which site was being recommended?

I am going for my 4th ultrasound, 1st and 3rd were done 5 months apart at the same place and showed no difference in growths. I had another,2nd, done at my 2nd dr office(the first closed his door with no notice)in betwwen no change in six=ze but wanted a biopsy on the other side. Again benign. Insurance changed and had to go to new dr-he just did an ultrasound in office and said 1 nodule has grown rom 3.5 cm to 4 cm. wants to talk surgery or another biopsy as he said its unusual for a begeing nodule to grow that fast. I am now going to have another ultrasound done at the original imaging center where first and 3rd were done to make sure of growth.

Blood work shows normal thyroid function. That is why I am looking for more info. I want to see what experiences people have had with surgery for when a nodule is getting to large, how large until commonly taken out, see what I can expect med wise, recovery...things like that.

Thanks again for input!

4HOLIDAYS: I can't think of site that just talks about general thyroid issues. All the ones I know of deal specifically with thyroid cancer.

I can tell you that my best friend was having an issue with a very fast growing nodule. I swear it just popped up one day. She ended up having several nodules but one became very prominent and noticeable. She couldn't really feel it but the neck can hide a lot. Some nodules grow inward. My cousin (male) had one that grew so large it was the size of a baseball but was enlongated and growing down inside his neck.

Both of them had the nodules removed because eventually they can obstruct breathing and swallowing and, even with a biopsy, you can't be sure they aren't "hiding" some cancer. In my friend's case, she did have a small cancer inside the nodule that 4 biopsies did not detect. My cousin had none.
 
4 Holidays - my dh friend had half his thyroid taken out because the nodules were getting bigger and it was getting difficult for him to swallow. His was not cancerous but he had it done at Memorial Sloan Kettering Cancer Center. I think that had to do with some clotting disease he also has. He was/is a high risk patient for surgery in general. But he is doing fine now from that.

macraven - how goes the endo quest?? I just saw an old friend who was visiting at church for,the holidays.She just moved to Decater. She is a social worker for the VA in Atlanta. I thought of you when I talked to her since she is a Georgia girl now too.

When are you going to Food and Wine? We are thinking of going in Oct and staying at the Swan so we shall see. I will avoid F and W on the weekends after last year and Friday up till 3 is bearable.

Christine - I have just experienced the Chik Fil A peach milkshake. So good!

Singing Mom - hope things work out for your dd and that you all have a great time on the cruise.

I start teaching Monday so I am up to my ears with paperwork, decorations etc. Tomm. dh and ds3 are going to help me decorate the room. It will look like the ocean threw up in there, lol.

My R neck is really bothering me again. This is the same side with the bad lymph node that I need the repeatc sono on. Also the tooth is bothering me again, so I am wondering if it is infected again or still infected. I cant do anything about it this week coming up for sure and the next two weeks dh has lots of meeting so he cant take me. I need to do something about this sooner rather than later.

Hope everyone is doing well. Check in when you can.
 
LMP hope your neck pain eases up and the tooth situation also
It takes a lot out of a person when they have constant annoying pains

Feel like burying my head in the sand when it comes to finding a new endo

I google who is in Atlanta but no idea if they are the one for me

I have some months left in my synthesis script so no worries with that


Hope all are doing fine this summer!
 

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