The THYROID Thread

Just finished reading The Accidential Empress by Alison Pataki - historical fiction about Sisi, Empress Elisabeth of Austria-Hungary. We loved learning about her on our Germany ABD and visited her palaces in Vienna on our Central Europe ABD in June.

Finalizing DD's packing for her internship. We leave a week from today! She seems to forget she will be sharing an apartment, bedroom, and closet!!
 
Just looking for some opinions. I am having my left thyroid taken out next Tuesday (8-18-15) because of suspicions of cancer. The biopsy came back inconclusive. My surgeon told me that I should be healed up enough in 30 days and will be able to go on our vacation to universal studios with no limitations on riding rides. For you all that have been through this , do you think this is accurate?
 
I don't know about riding rides, but it doesn't seem out of the question to me.
My original total thyroidectomy surgery went really well and I don't recall having any problems healing it up at all.
The part that took forever was the radiation and all of the prep work for that.
I, personally, would be getting a second opinion, though, before having surgery on an inconclusive result. Unless there's been growth/changes, or some other alarming feature, I personally would take a bit of a watch and wait approach.
There's a girl I work with who has been in a similar situation - two years now of watching and waiting after three inconclusive biopsies, but there has been absolutely no change in the nodules. She has ultrasounds and biopsies every few months. It depends on your tolerance level, though. The word "cancer" is terrifying.
Good luck, keep us posted, and enjoy your trip!
 
Thirty days is probably okay, but personally, I wouldn't. While I think you'll be healed and nothing bad will happen, my neck was sensitive for quite some time. I just can't imagine going on the type of ride that would put G-Force pressure on my head and neck. The surgeon would know best about what goes on inside there. You should just see how you feel.
 


now my surgery in May was different from Lfs planned surgery and my surgeon told me different.
i had the salivary glands removed from my neck/jawline.
incision is from the left ear to the middle of my neck and has closed nicely over the past 11 weeks.

but, he told me it will take 4 to 5 months of healing inside.
nerves were clamped away from the growth areas and glands and it is a slow process for them to calm down and tissue to regrow in the areas where the glands and tumors were removed.
no Mission Space for me on my september trip....

he said i could try a ride like TOT or Test track but if it becomes an issue, back off from doing them.

my outside of the neck is good, the inside is still sensitive and still has swelling issues.

like christine posted, do what you want for rides and see how you feel
you'll know if you have any limitations once you try a ride that has force to it.
 
lfs - Wishing you all the best with your surgery today. I would avoid the jerky motion rides. I have only gone to Universal once or twice. Are you doing both parks?

singing mom - hope you have a safe trip with your dd and that all goes well. I am sure she is so thrilled and excited. I read a little about that book you mentioned.

Well I never heard from the jury duty people and its today, so I guess the blood clot and drs. note worked out well for me, lol. I hope that lady is right and says they will review me again in 2 years. By that time I am sure I will have something else to add to a lovely drs. letter,lol!!

I am starting to plan our Oct. trip. I made most of the adrs, so far just the dinners at BOG, Rose and Crown, Kona,Hollywood and Vine and Cape May for my dh crab coma. I am probably going to book tusker house lunch, chefs de france lunch and yachtsman dinner. Also saw there is one good group for the Eat to the Beat that I would like to hear - Air Supply and maybe Dennis DeYoung, hmm dating myself!!

So far we can get the Swan for free for 3 days, then go to the Dolphin and pay for 2 days since the Swan is sold out and then go back to the Swan for another 2 days for free. Oh well, its only right next door so we can move everything ourselves. Only bad thing is the Dolphin bed size and sometimes we just go and get the bus at the Swan because its the lst stop and less crowded etc.

Hope everyone is doing well
 
LMP, i love trip planning especially the dining parts....
sounds like you have some lush meals set up.

hooray for being exempted on jury duty
 


luvmarypoppins said:
lfs - Wishing you all the best with your surgery today. I would avoid the jerky motion rides. I have only gone to Universal once or twice. Are you doing both parks?

singing mom - hope you have a safe trip with your dd and that all goes well. I am sure she is so thrilled and excited. I read a little about that book you mentioned.

Well I never heard from the jury duty people and its today, so I guess the blood clot and drs. note worked out well for me, lol. I hope that lady is right and says they will review me again in 2 years. By that time I am sure I will have something else to add to a lovely drs. letter,lol!!

I am starting to plan our Oct. trip. I made most of the adrs, so far just the dinners at BOG, Rose and Crown, Kona,Hollywood and Vine and Cape May for my dh crab coma. I am probably going to book tusker house lunch, chefs de france lunch and yachtsman dinner. Also saw there is one good group for the Eat to the Beat that I would like to hear - Air Supply and maybe Dennis DeYoung, hmm dating myself!!

So far we can get the Swan for free for 3 days, then go to the Dolphin and pay for 2 days since the Swan is sold out and then go back to the Swan for another 2 days for free. Oh well, its only right next door so we can move everything ourselves. Only bad thing is the Dolphin bed size and sometimes we just go and get the bus at the Swan because its the lst stop and less crowded etc.

Hope everyone is doing well
Click to expand...

I'll be going for the F&W for the first time. Going for a week to visit DD on my own, since DH is super busy at work in October. I'm not making any dining plans, since I don't know what her schedule will be. I might be doing breakfast with her, depending on work! Lol

Pretty set in our packing right now. A few more things to check for DD. we'll take her shopping once we know her apartment situation. Not looking forward to the autotrain, but we'll survive. Lol
 
Wow, this thread is really quiet

ifs- hope you are healing from your surgery

singing mom - hope your dd is getting settled in. When are you going to F and W and seeing your dd. Dh and I are going Oct. 21-28 I think. Yay for a free Swan room.

Well lets see whats new in my otherwise boring summer. I got stung by a bee yest. Ouch. Glad ds3 the nurse was here before he left for the beach.

Friday I am going to the endo. I will ask ds3 to take me because dh got dumped on since his boss is on vacation.

Christine - this would be for you since I know you are the most knowledgeable. They mailed me my blood work and the tg and tsh are good but I think the T3, T4 etc. are not good. Of course some intern printed this stuff out and they used last years tests and not 6 months ago. But the comparison was that the numbers were all high last year and now they are lower. and now I am questioning if there is something wrong as I dont know how to interpret that.

Reading anything good? I am reading some amish books since I won them. I have won nothing from Goodreads. I think they are mad at me because I did win one book and didnt even finish reading it. I really couldnt get into it and I think they see in their algorithm if you dont review what you win then they dont send you more for quite a while. Oh well. I have enough from other blog wins to read in my tbr pile.

Also I think the tsh was 0.17 and now its 0.19. Would that make any difference???

I have to pullout the papers. (being lazy so I hope I wrote it all right)

Everyone check in when you can. Have a blessed day everyone!!
 
DD is all moved in and completing her training. She is working Attractions in MK FantasyLand. I'm very thankful we were able to spend the extra time with her, helping set things up. Six girls in 3 bedrooms, 3 baths. Nice apartment, but she has to get used to living with 5 other people. As an only child, she doesn't have to share her personal space at home!

The Auto Train was an "interesting" experience! The ride to Virginia was long after DH working all day. We stayed overnight at the Embassy Suites off I-95 and our friends took us to lunch after checking in at the station. We had a bedroom with private bath. The room was comfortable and we also spent some time In the lounge car. Dinner was pretty decent, too. The bad part was bedtime! Once the beds were made up it was extremely warm on the lower bunk that DD & I shared, and very chilly on the top bunk where DH was, since he was directly under the ac. The pillows were really flat, too. Needless to say, I didn't sleep all night. I actually got out of the bed and sat up in the arm chair most of the night. We paid for priority off boarding, which was the best $50 we ever spent! Lol. Our car was the second one off in Florida - out of around 250 cars! It was then about an hour to WDW.

Didn't spend much time in the parks because of moving & shopping with DD and the heat was unbearable. I'm looking forward to F & W the week of Oct 18!
 
luvmarypoppins said:
Christine - this would be for you since I know you are the most knowledgeable. They mailed me my blood work and the tg and tsh are good but I think the T3, T4 etc. are not good. Of course some intern printed this stuff out and they used last years tests and not 6 months ago. But the comparison was that the numbers were all high last year and now they are lower. and now I am questioning if there is something wrong as I dont know how to interpret that.

Reading anything good? I am reading some amish books since I won them. I have won nothing from Goodreads. I think they are mad at me because I did win one book and didnt even finish reading it. I really couldnt get into it and I think they see in their algorithm if you dont review what you win then they dont send you more for quite a while. Oh well. I have enough from other blog wins to read in my tbr pile.

Also I think the tsh was 0.17 and now its 0.19. Would that make any difference???

I have to pullout the papers. (being lazy so I hope I wrote it all right)

Everyone check in when you can. Have a blessed day everyone!!
Click to expand...

Yes, this thread has been quiet. I've been forgetting to check it regularly.

LMP--if your T3 and T4 were high last year and lower this year, it just means that you are less medicated now than last year. Your TSH is a tad bit higher too, so that would make sense, although those numbers are so close together it should not make a HUGE difference. I'd be interested to know what the T3 and T4 were last year and why they were different enough to make the doctor remark this year.

I will tell you that my Free T4 seems to move around a lot. It's really strange.

Nothing much going on here. I went to the beach for the day back in July. Super nice day. Loved it! My son went back to school last weekend so I was busy organizing that. I do miss him but it's nice having less "mess" in the house.

I've been reading but nothing noteworthy. Gosh, I sound so boring.
 
nothing new for me at this point.
getting ready for a mini trip to house hunt next week.
we are tired of living with snow and cold in the winter.
want to move that still have seasons, but no harsh weather.

have 27 days until i will be in orlando.....yippee


need to work in my labs before then for the vit d and thyroid tests.

hope all are doing fine here!
 
singing mom - we will be there oct. 20-27. Where are you staying? Maybe we could meet up sometime.

macraven - where are you looking for a home? Dh and I were thinking about it too. My one friend already bought a condo in Myrtle Beach that they want to retire to. Her husband is already retired (early) and I think she has a couple more years for the pension. I hope you have a great time in Orlando. Are you going to the Food and Wine Festival?

Christine - I got out the papers and here it is:
T4 (total) - 10.9 (now) vs 12.9 (year ago)
T3 uptake 34 (now) vs 39 (year ago)
T4 free calculated 3.7 (now) 5.0 (year ago)

So what does this mean???? I am confused as ever. My meds havent changed in a year except for the blood thinner and I dont think that would affect these numbers. TIA.
 
at first we considered NC, TN or GA.
we ruled out FL as we do want some seasons other than summer....lol

chattanooga was our first choice but the tax system that works better for us is GA.
so we are going to look there next week at the border cities below the TN line.

i'll be in disney later this month and i wouldn't miss F & W !!!
i'll hit it on the beginning of it which i hope won't have large crowds.
i've done F&W early to mid october and found more crowds the later it gets in october.

christine is the expert here on understanding the thyroid test scores.
i remember i told mine here and she gave great info to me.

i think i will hire her to translate my next set of labs......
i trust her more than google..

since my lab results have been up and down, my endo is having me get mine done every three months.
but i'm pushing it off to four months this time....i just hate needles.
 
luvmarypoppins said:
singing mom - we will be there oct. 20-27. Where are you staying? Maybe we could meet up sometime.

macraven - where are you looking for a home? Dh and I were thinking about it too. My one friend already bought a condo in Myrtle Beach that they want to retire to. Her husband is already retired (early) and I think she has a couple more years for the pension. I hope you have a great time in Orlando. Are you going to the Food and Wine Festival?

Christine - I got out the papers and here it is:
T4 (total) - 10.9 (now) vs 12.9 (year ago)
T3 uptake 34 (now) vs 39 (year ago)
T4 free calculated 3.7 (now) 5.0 (year ago)

So what does this mean???? I am confused as ever. My meds havent changed in a year except for the blood thinner and I dont think that would affect these numbers. TIA.
Click to expand...

Hmmm....well these tests are different from the ones my endo runs so I can't tell you what the significance is without the lab ranges. Only that you have less of those which, unlike TSH, less really means that you have less thyroid hormone circulating. As long as these are still in the normal to high range that probably don't mean too much. My doctor does do a Free T4 (but not calculated) so my numbers look a bit different than yours.
 
Well I am back from the endo. She says those other tests are fine and that the numbers are "where she wants them to be", lol, her favorite saying.

Told her about my blood clot drama. She says, its always something with you, lol, don't I know it..

She says my calcium is too low? The printout says it was 9.1 and now its 9.4. So now she wants me to take another 50,000 iu once a week, so I will be getting 100,000 iu a week!!! That seems like a lot but I guess my body is not processing or storing it. My insurance also does not cover this for some reason, so I am glad it is not all that expensive.

I know I am going to have issues with the pharmacy because they just filled it and I have to tell them the ins. doesnt pay for it and then they tell me its also how the dr. writes the prescription. etc.

So I go back in 6 months. At the appointment desk they give me a date. I say what other days of the week do you have, they say, wed. only. WTH??? Now she is only seeing patients one day a week. I did see that they hired 2 more female endos. I sure hope she isnt planning on leaving. Because I am sure they sign a contract etc.

macraven - make sure you find a good endo where you are moving to for sure!!!

Hope everyone has a great week end.
 
luvmarypoppins said:
Well I am back from the endo. She says those other tests are fine and that the numbers are "where she wants them to be", lol, her favorite saying.

Told her about my blood clot drama. She says, its always something with you, lol, don't I know it..

She says my calcium is too low? The printout says it was 9.1 and now its 9.4. So now she wants me to take another 50,000 iu once a week, so I will be getting 100,000 iu a week!!! That seems like a lot but I guess my body is not processing or storing it. My insurance also does not cover this for some reason, so I am glad it is not all that expensive.

I know I am going to have issues with the pharmacy because they just filled it and I have to tell them the ins. doesnt pay for it and then they tell me its also how the dr. writes the prescription. etc.

So I go back in 6 months. At the appointment desk they give me a date. I say what other days of the week do you have, they say, wed. only. WTH??? Now she is only seeing patients one day a week. I did see that they hired 2 more female endos. I sure hope she isnt planning on leaving. Because I am sure they sign a contract etc.

macraven - make sure you find a good endo where you are moving to for sure!!!

Hope everyone has a great week end.
Click to expand...

It's very possible your endo works at other locations on the other days of the week. Many times, the office won't automatically tell you there are other sites. Our physicians almost all go to "satellite" clinics during the week, so if you are a patient at one location, they may only be there one day a week, and 30 miles away the next day.
 
luvmarypoppins said:
Well I am back from the endo. She says those other tests are fine and that the numbers are "where she wants them to be", lol, her favorite saying.

Told her about my blood clot drama. She says, its always something with you, lol, don't I know it..

She says my calcium is too low? The printout says it was 9.1 and now its 9.4. So now she wants me to take another 50,000 iu once a week, so I will be getting 100,000 iu a week!!! That seems like a lot but I guess my body is not processing or storing it. My insurance also does not cover this for some reason, so I am glad it is not all that expensive.

I know I am going to have issues with the pharmacy because they just filled it and I have to tell them the ins. doesnt pay for it and then they tell me its also how the dr. writes the prescription. etc.

So I go back in 6 months. At the appointment desk they give me a date. I say what other days of the week do you have, they say, wed. only. WTH??? Now she is only seeing patients one day a week. I did see that they hired 2 more female endos. I sure hope she isnt planning on leaving. Because I am sure they sign a contract etc.

macraven - make sure you find a good endo where you are moving to for sure!!!

Hope everyone has a great week end.
Click to expand...


low calcium can be due to Hypocalcemia
i end up having high calcium which the endo watches.

mine has stayed at 9.9 up to 10.4

hopefully you'll be within the range on your next draw in 6 months.
when i have had a change for an increase in meds, my doc faxes a new script in for it.
walgreens makes the adjustment on the current script and issues me the difference for increase of meds.

maybe your pharmacy just needs an update for a higher dose of meds and can adjust the present script they are filling.

i hope it turns out to be a simple thing to change at your pharmacy and you don't have any issues with it.
yea, my endo only has hours on certain days of the week.
she moves from three different offices each week.

when i last saw her in july, she told me to return in 6 months but my labs will be every 3 months until i see her again.
the receptionist called me to her desk when i left the exam room and said the doctor wants me to make my return visit now.
the earliest appointment they had available for my 6 month return was next year, second week of May.....2016...

hope i have good luck in replacing her whenever i do move.
she has been perfect for me and i don't know how anyone can top her.
 
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